News and Commentary from the NCBC RSS Feed
New Resources from the USCCB to Protect the Vulnerable
8/31/2010

August 31, 2010. The US Conference of Catholic Bishops has released their 2010-2011 Respect Life Program.  This is a comprehensive program addressing the need to respect the lives of all vulnerable persons, regardless of their stage of development, from conception (fertilization) until natural death.  Materials are available addressing such timely topics as teen suicide, sex trafficking,  American youth and the culture of life, population and the environment, assisted reproductive technologies, end-of-life care, and capital punishment.  See http://www.usccb.org/prolife/programs/rlp/2010/  

Also contained within these materials is a bulletin insert, Caring For Each Other, Even Unto Death, by Dr. Marie T. Hilliard, NCBC Director of Bioethics and Public Policy, which is available on-line from the United States Conference of Catholic Bishops.

The NCBC congratulates the USCCB on the development of these excellent resources.

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The Importance of the August 23, 2010 Federal District Court Decision Blocking Federal Funding of Human Embryonic Stem Cell Research
8/25/2010

Rev. Tadeusz Pacholczyk, Ph.D.
NCBC Director of Education

August 25, 2010. In a major revision to public policy on embryonic stem cell research (ESCR), Federal district judge Royce C. Lamberth on August 23 blocked President Obama’s 2009 executive order that had expanded federal funding for human ESCR. The National Catholic Bioethics Center welcomes this decision.

The plaintiffs bringing the case against the government were Drs. James L. Sherley and Theresa Deisher, researchers whose work focuses on adult, not embryonic stem cell research. They sought an order declaring that the Guidelines for Human Stem Cell Research (which had been issued by the National Institutes of Health in response to President Obama’s executive order expanding stem cell research) are contrary to law, were promulgated without observing the procedures required by law, and constitute “arbitrary and capricious agency action.”

In rules announced last year, the Obama administration encouraged financing of research into any embryonic stem cell lines that either had been allowed by the Bush administration or had been created using embryos left over from fertility treatments and in which unpaid donors had provided written consent for the embryos to be used for research. The Guidelines had been drafted after a consultation process in which nearly 50,000 public comments were submitted to the NIH. Many of these comments raised moral objections to the research, and others noted that the expansion of funding appeared to violate the Dickey-Wicker amendment, a law passed every year by Congress since 1996 which precluded federal funding of embryo-destructive research.

Judge Lamberth ruled that the administration’s policy as contained in the Guidelines violated the clear language of the Dickey-Wicker Amendment, a law that bans federal financing for any “research in which a human embryo or embryos are destroyed, discarded or knowingly subjected to risk of injury or death.” The judge noted that the plain sense of the language of the statute demonstrates the unambiguous intent of Congress “to prohibit the expenditure of federal funds on ‘research in which a human embryo or embryos are destroyed.’” At the center of the judge’s decision was the recognition that:

 This prohibition encompasses all “research in which” an embryo is destroyed, not just the “piece of research” in which the embryo is destroyed. Had Congress intended to limit the Dickey-Wicker to only those discrete acts that result in the destruction of an embryo, like the derivation of ESCs, or to research on the embryo itself, Congress could have written the statute that way. Congress, however, has not written the statute that way, and this Court is bound to apply the law as it is written.

The effects of the judge’s decision are likely to be significant. Dr. Francis Collins, Agency Director of the NIH, noted in a news conference after the announcement of the federal district judge’s decision that 143 scientific grants worth $95 million, which are now up for annual renewal, will be frozen. In addition, 22 grants totaling $54 million, whose existing research is coming up for renewal in September, will also be frozen. Another 131 grants awarded this year already are out the door and will not be affected until they are up for renewal in a year.

Judge Lamberth’s decision is consonant not only with the plain sense of the Dickey-Wicker amendment, but also with the kind of moral reasoning that rejects a false “criterion of independence” or “radical separation of the act from its subsequent uses and applications.” Both the Bush and Obama administrations had supported a position where federal funding of human embryo destruction itself would not be permitted while research on cells derived from such destruction would be funded. The recent Vatican document Dignitas Personae had already emphasized the contradictory character implicit in such a stance:

 In this regard, the criterion of independence as it has been formulated by some ethics committees is not sufficient. According to this criterion, the use of “biological material” of illicit origin would be ethically permissible provided there is a clear separation between those who, on the one hand, produce, freeze and cause the death of embryos and, on the other, the researchers involved in scientific experimentation. The criterion of independence is not sufficient to avoid a contradiction in the attitude of the person who says that he does not approve of the injustice perpetrated by others, but at the same time accepts for his own work the “biological material” which the others have obtained by means of that injustice. (n. 35)

The United States Conference of Catholic Bishops, in their response to the decision, observe how an important duty of good government “is to use its funding power to direct resources where they will best serve and respect human life, not to find new ways to evade this responsibility.” The National Catholic Bioethics Center hopes this important court decision will encourage the federal government and all of its health care agencies to renew and expand their commitment to ethically sound avenues of stem cell research.

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The NCBC joins the USCCB in Calling for Remedies to the Flawed Patient Protection and Affordable Care Act (PPACA)
8/24/2010

Marie T. Hilliard, R.N., Ph.D., J.C.L.
Director of Bioethics and Public Policy

The USCCB has called for proposed remedies to the flawed Patient Protection and Affordable Care Act (PPACA). A bipartisan supported US Congressional bill (HR 5939) would permanently ban federal funding for abortion services. Since 1976, Congress has annually attached the Hyde Amendment to US Health and Human Services appropriations’ bills to bar the use of federal funds for abortion procedures in Medicaid. No such provision is contained in the PPACA.  Furthermore, President Obama’s Executive Order cannot contravene existing law, and PPACA has been enacted, signed and promulgated as existing law. The title of the health care reform legislation, Patient Protection and Affordable Care Act, would indicate that all patients have the right to legal protection. However, the PPACA, in supporting programs that provide abortion on demand, defies its very title.   

The NCBC calls for legislation that assures the protection of all persons, especially the vulnerable, as well as the consciences of health care professionals. See www.usccb.org/prolife/DiNardo-HR5939.pdf.  To have your voice heard see: http://nchla.org/actiondisplay.asp?ID=284.

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Prop 8 is Declared Unconstitutional
8/9/2010


You may download Judge Walker's opinion here

August 9, 2010. Every media outlet has reported on the decision by Judge Vaughn Walker striking down Prop 8 (Judge Walker who is, interestingly, openly homosexual[1]). Proposition 8 reads: Only marriage between a man and a woman is valid or recognized in California.[2] It was put to a popular vote in the November 2008 election and 52% (~7 million Californians) voted for it. A lawsuit was filed arguing that Prop 8 was unconstitutional. Judge Walker presided over the case.

 Before addressing Judge Walker’s opinion, it is important to be clear about why Prop 8 made sense in the first place and to explore why ~ seven million voters voted for it. Proponents of the traditional marriage account make several starting assumptions. First, we understand that for the term ‘marriage’ to be a meaningful term, it must refer to a specific reality. Marriage is not a social construct; it actually precedes logically (not temporally) the formation of society as it is the birthplace for children. You can have families without a society, but you cannot have a society without families.

 The reality to which marriage refers is a complementary union ordered to procreation. Everyone must grant that heterosexual intercourse involves two distinctive features: it is complementary – involving opposite sexes – and is, at least, open to procreation. It is the kind of act that is procreative in kind. Even intercourse between a man and a woman where one is infertile is still a case of performing a procreative-type of act. No other type of sexual “union” can say that for itself. Dr. John Haas observes the obvious writing,

The purpose of sex is so self-evident it is bewildering how some do not see it. At the most fundamental level of human existence we can see that there simply would be no perpetuation of the species without a reproductive cell from the man and one from the woman which find themselves joined in one of the most remarkable of human activities.[3]

Heterosexual union is a distinct reality, and this reality is a necessary condition for marriage (the other conditions being lifelong commitment etc., conditions shared by other kinds of relationships). Marriage refers to a distinctive reality; a complementary union ordered to procreation.[4]

 Changing the definition of the term to refer to other kinds of relationships or sexual acts would be like changing the definition of cat to include dogs. If the term ‘cat’ is extended to include dogs, it will no longer refer truthfully to the way the world is. As Alexander Pruss observes,

Many sentences using the word “cat” that were previously true will no longer remain true: it will, for example, no longer be true that “it is normal for cats to have retractable claws.” Likewise with the extension of the word “marriage:” it will no longer be true that “it is normal for married couples to be able to have children together.”

And Pruss makes a more technical, but important observation, “Note that the use of the word “normal” in both sentences is the same; it does not state a statistical fact, but asserts what happens barring some physical abnormality or deterioration.”[5] The argument here is logical, not moral. One simply cannot change the meaning of the term marriage without compromising the truth of claims involving the term.

The debate, then, between the supporters of Prop 8 and those who oppose it is not about social policy, it is about objective reality. Pruss asks, “Is it possible for the objective reality of marriage to ever exist between two persons of the same sex?” The answer is clearly no. Homosexual intercourse cannot be a complementary union ordered to procreation. That reality can only be realized by heterosexual couples. This is not discriminatory any more than it is discriminatory (in the pure sense of the term, namely, to discern or distinguish) to call all and only canines “dogs” and all and only felines “cats.” Dogs are really dogs, cats are really cats, and marriage is really a complementary union ordered to procreation.

One last comment is noteworthy before addressing Judge Walker’s opinion directly. The argument I have outlined here does not rely on a deep philosophical position regarding the nature of sexuality or the human person. It relies solely on empirical fact, the way the world is. A modicum of reflection on reality would confirm the analysis just provided. Marriage refers to a particular reality that is more than a commitment, and more than amicable feelings between the partners. It requires for its realization, a complementary union ordered to procreation.

Judge Walker’s Opinion (Hereafter the Opinion)

The Procedures Informing the Opinion
The court heard testimony from 17 witnesses who opposed Prop 8, and only 2 who were in favor. The Opinion argues that though the witnesses for Prop 8 withdrew under threat of their personal safety,[6] their withdrawal remained even after the California Supreme Court declared the trial to be non-public. The Opinion comments that there was simply no reason for the withdrawal remaining after guarantees of a non-public hearing were set. The problem with this reasoning of the Opinion is that there is a public record of who gave testimony, namely, the Opinion itself! The heavy-handed tactics of the homosexual activists noted in footnote 6, illustrate that the climate for an engaged and informed discussion is effectively lost, and the Opinion did not take into account the turbulent and often deleterious features of this climate. Procedurally, there should have been greater guarantees of anonymity given the backdrop of violence against Prop 8 supporters, to ensure a rational and well-represented trial.

Another procedural error, we believe, stems from the fact that the Judge ruling on the case is openly homosexual. Professor Gerard Bradley observes that this alone is not sufficient to count as a conflict of interest, but notes two things: no one even asked the question, and more importantly,

Federal law requires that, whenever a judge knows that he has “any other interest [ that is, besides a financial interest] that could be substantially affected by the outcome of the proceeding” at hand, or when “his impartiality might reasonably be questioned”, he must recuse himself.[7]

The point to be made is that there was no questioning done, and no analysis of the Judge’s fitness to rule over the case. Would we say the same thing if the judge in question was a conservative Mormon or Catholic? Yes.

Finally, neither the Governor, nor the Attorney General, supported Prop 8 in contrast to the majority will of the people. And more startling is that the Attorney General refused to defend Prop 8, even though that is his job. It is the job of the state attorney general to defend the state constitution, the aspects of which included a legally approved constitutional amendment defining marriage as between a man and a woman.

The Content of the Opinion
Summarizing the Opinion, Judge Walker says,

Plaintiffs challenge Proposition 8 under the Due Process and Equal Protection Clauses of the Fourteenth Amendment. Each challenge is independently meritorious, as Proposition 8 both unconstitutionally burdens the exercise of the fundamental right to marry and creates an irrational classification on the basis of sexual orientation.[8]

Attempting to justify this judgment, the Opinion considers a number of factors and makes numerous claims and representations. Too many of these claims deserve rebuttal, but I will focus on three “big ideas” that occur and recur throughout the Opinion. The first idea is the claim that Prop 8 is discriminatory, the second is what I will call the argument from social meaning, and the third is a misunderstanding (throughout) concerning the argument for Prop 8.

There are several assumptions that we must recognize in the Opinion as being agreeable, though even some of the agreeable assumptions need a little clarification. It is acknowledged that marriage is a fundamental right. The question presented to the court is whether homosexual couples can exercise this right, or do they seek recognition of a new right. This much is agreeable, though we would urge a proper understanding of what it means to say that marriage is a fundamental right. It is not a civil right, meaning, it is not a right conferred by the State. A heterosexual couple can marry in the absence of any governments or established political order. Families logically precede societies.

A related point is that in order to know that marriage is a fundamental right, one must know what marriage is. And on this point the Opinion is not altogether clear. It only offers us the following: marriage is “a coming together for better or for worse, hopefully enduring, and intimate to the degree of being sacred.” (114, ln. 3) But this is a description of a lasting friendship – or a best friendship depending on how one interprets “to the degree of being sacred.” In any case, this definition fails to distinguish between marriage and friendship.

Another assumption to which we will advert to throughout is actually an idea borrowed from two other opinions. Citing Romer, 517 US at 632 and Heller, 509 US at 321 the Opinion notes that the “basis for a classification must 'find some footing in the realities of the subject addressed by the legislation.'” We could not agree more.

Turning now to the three big ideas, beginning with the notion that marriage in its traditional sense is discriminatory. I should note first that when the Opinion discusses discrimination (119 20ff) the term is used equivocally. In one sense, it is used to describe the law and denotes the notions of making distinctions, discerning, or to collect and divide things according to kinds. But when we reach ln 26, it is clearly used to denote hatred, disapprobation, or contempt. Of course there is a confusion manifested here even at the level of explaining Prop 8. Lines 18-24 are detailing the effects of Prop 8, but in no way target the reasons why Prop 8 makes sense in the first place. But could the effects alone generate a claim that a law is discriminatory? Even more importantly, just what is the moral problem? In asking this, we of course do not condone any act of disapprobation or hatred toward any group of persons. It appears that the Opinion would have us believe that the reasons informing Prop 8 just are the effects, namely, that same-sex couples may not get married. The reason for Prop 8 is that marriage is a complementary union ordered to procreation. An effect of Prop 8 is that homosexual couples cannot get married. When the Opinion discusses discrimination it is looking only at the effects of the law. The Opinion evinces a gross confusion of categories on this point. There are effects of every law. Homicide has the effect of discriminating against murderers, Judge Walker could say, preventing them from murdering without penalty. Or an anti-bestiality law would discriminate against persons who wanted to “marry” their pets, preventing them from doing so. Would we complain about bestiality laws? Do we think homicide laws manifest evil discrimination? What about laws prohibiting fathers from marrying their sons, (or even their daughters)? Would they count as discriminatory simply because they have the effect of precluding incestuous family members from marrying?

There is something else going on here when the Opinion discusses discrimination. Consider a law requiring a state’s police force to hire only men simply because they are men. Clearly, this would be an instance of unjust discrimination. But suppose instead the law required hiring people who are at least 6’ tall since 6’ and above persons are at an advantage in hand-to-hand struggles – just suppose this for the example.[9] And since the police are expected to engage in such to ensure the safety of its citizens, requiring the police to hire 6’ and above persons is in the public interest. Suppose, though, that as it turns out, very few women are over 6’, but numerous men are. The effect of such a law would be that only men would be hired, but no one would say that it is unjustly discriminatory. Contrasting these two cases gives us a glimpse into what it is to say (truly) that a law is discriminatory: A law is unjustly discriminatory when it applies to a particular set of individuals simply because they are members of a certain group. A similar law that had the same effect of singling out certain individuals, but whose content and intent was tethered to reasons pertaining to the “reality of the subject addressed by the legislation,” would not be discriminatory. And it is clear given the reasons outlined in the beginning of this commentary that Prop 8 is in no way unjustly discriminatory. The reasons for it are tethered to the nature of marriage, an effect being that same-sex couples cannot marry. Given this reasoning, the following sentence is obviously false and inflammatory, “Proposition 8 targets gays and lesbians in a manner specific to their sexual orientation and, because of their relationship to one another…” (120 l.26-28 emphasis mine).

Turning now to the social meaning argument, the Opinion aims to answer the question why domestic partnerships are not enough. It says, “while domestic partnerships offer same-sex couples almost all of the rights and responsibilities associated with marriage, the evidence shows that the withholding of the designation ‘marriage’ significantly disadvantages plaintiffs” (116 l. 10-14). And what is the “disadvantage”? “The record reflects that marriage is a culturally superior status compared to a domestic partnership. California does not meet its due process obligation to allow plaintiffs to marry by offering them a substitute and inferior institution that denies marriage to same-sex couples” (116 l. 14-19). Summarizing the position on this issue, it says, “domestic partnerships are distinct from marriage and do not provide the same social meaning as marriage” (115 l. 27-28 emphasis added).

The key claim here is that marriage, traditionally understood, holds a “culturally superior status” compared to domestic partnerships; so does a Ph.D. compared to a Master’s degree. What is the moral or legal problem? There is something insidious about this section of the Opinion. The argument seems to be that same-sex partnerships are not as well accepted as opposite-sex unions. In making ‘marriage’ available to same sex partners, this cultural impression of favoring opposite-sex unions is hoped to fade or attenuate. The reason, then, for why domestic partnerships are not enough is because alone they fail to create an impression in people’s minds (“social meaning”) of the moral legitimacy of homosexual sex. In this regard, the opinion collapses into a tract aiming to proselytize those in favor of a traditional definition of marriage, and effectively aims to “impose the homosexual agenda” on the rest of society. It is a work in cognitive engineering, an attempt to have homosexual actions gain wider acceptance in society. As such, the Opinion has little to do with the Constitutionality of Prop 8.  

Lastly, there are a series of comments meant to rebut the claim that marriage refers to a reality; a complementary union ordered to procreation. Several claims are worth quoting with brief commentary following. From p 111, l. 23 ff. “Never has the state inquired into procreative capacity or intent before issuing a marriage license; indeed, a marriage license is more than a license to have procreative sexual intercourse.” Of course, it is true that marriage is more than being disposed to procreate. Above we noted that the procreative capacity of heterosexual relationships is a necessary condition for marriage, not a sufficient one. So we agree that it is “more than a license to have procreative intercourse.” Our position is simply that it is not less than this either.

We read on page 113 l. 6, “The evidence did not show any historical purpose for excluding same-sex couples from marriage, as states have never required spouses to have an ability or willingness to procreate in order to marry.” This is because heterosexual couples, by virtue of the fact that they are opposite sex, can procreate. No separate inquiry is required. Heterosexual couples may be infertile, but this is not a feature of the kind of relationship they realize, but rather an accidental feature of their bodies.

Most important in regard to the putative rebuttals to the position outlined in the beginning of this commentary is the following: “Proponents did not, however, advance any reason why the government may use sexual orientation as a proxy for fertility or why the government may need to take into account fertility when legislating” (122 l. 6-9 emphasis added). These claims are false on their face. The State would have no interest in regulating the intercourse of citizens unless that intercourse could engender new life since the State has an interest in the safety of our children. What interest does the state have in regulating a relationship that is incapable, in its essence, of engendering children? None. There are no laws governing friendship, or intercourse that is inherently non-procreative. The state only has an interest in governing relationships which are of their nature procreative, because the state has an interest in ensuring the proper rearing and education of children.[10] Homosexual couples may adopt, and in this sense, and in this sense only, can they “raise” children. But they cannot engender children. Without exception, adopted children originate in a heterosexual relationship. Opposite-sex couples have a relationship that is inherently disposed to procreation; homosexual couples do not. It is obvious that we are not talking about what couples (of either sort) choose to do. We are highlighting the nature of their relationship. (The government cannot take an interest in regulating choices directly anyway, at least not in a free democracy. Its laws must take into account “the realities of the subject addressed by the legislation.”) And these realities pertain to the nature of the respective relationships in question. Their natures are fundamentally different with respect to their capacity to engender children.

We should conclude by observing a gross confusion over the concepts of sexuality and gender. The Opinion purports to show that given historical facts concerning evolving gender roles, excluding same-sex couples from marriage is equally an artifact of an atavistic mentality. “The exclusion exists as an artifact of a time when the genders were seen as having distinct roles in society and in marriage. That time has passed” (113 l. 9-11). Though it is certainly true that gender roles – the term gender understood to refer to personality characteristics or social expectations – have changed, what has not changed is that there is still male and female and their respective and distinct contributions to the begetting and rearing of children. Sexual differences still exist as a matter of biological fact. Gender differences may elide and change from person to person and from culture to culture. That there is a difference in sexuality and that each sex must cooperate to engender and rear children, is a distinct feature of the heterosexual relationship; a complementary union ordered to procreation. A marriage cannot be without this distinct feature.



[1] “Judge being gay a nonissue for Prop 8 trial,” San Francisco Chronicle (Feb. 7, 2010), http://articles.sfgate.com/2010-02-07/bay-area/17848482_1_same-sex-marriage-sexual-orientation-judge-walker (accessed August 6, 2010). 

[2] VoterGuide, “Text of Proposed Laws,” Proposition 8, Sec. 7.5. http://voterguide.sos.ca.gov/past/2008/general/text-proposed-laws/text-of-proposed-laws.pdf#prop8 (accessed August 6, 2010).

[3] Dr. John M. Haas, “Catholic Church Invites Homosexuals to Choose Life.” Boston Globe (Feb., 25, 1998) Op-Ed page.

[4] Properly understood, it is redundant to say ‘ordered to procreation’ since the union involved entails a procreative purpose. To say that two heterosexuals having intercourse are united, or become ‘one body’ requires explaining why they are one, or form a unity. The unity they realize is not like the unity realized when I stick my finger in someone else’s ear, or if one were to tie two people together. We can only say there is a unity there because there is a shared purpose. The sexual act is essentially reproductive in kind; and being procreative is the unified purpose to which their bodies strive. It is, then, in virtue of the procreative end of the sexual act that grounds the claim that the couple realizes a union, they become one body, one organism, their bodies striving to bring forth human life.

[5] Alexander Pruss ,  “Not out of Lust but in Accordance with Truth: Reflection on Sexuality and Reality,” (December 6, 2002) Sect. II http://bearspace.baylor.edu/Alexander_Pruss/www/papers/notlust.html (accessed August 9, 2010).  

[7] Gerard Bradley, “Why Has the Media Ignored Judge’s Possible Bias in California’s Gay Marriage Case,” http://www.foxnews.com/opinion/2010/08/04/gerard-bradley-proposition-marriage-sex-california-judge/ (Accessed August 5, 2010.) 

[8] Perry v. Schwarzenegger, (2010), p. 109, https://ecf.cand.uscourts.gov/cand/09cv2292/files/09cv2292-ORDER.pdf (accessed August 9, 2010).

[9] Something like this law is actually the case for state troopers in certain states.

[10] This is the basic reasoning behind anti-fornication laws, namely, to ensure that children were engendered in a stable home environment. Such laws are unenforceable now, but can one really argue against their basic rationale?

The New Eugenics: Eliminating the “Undesirable” by Prenatal Diagnosis
8/2/2010


Dr. Marie T. Hilliard, Director of Bioethics and Public Policy, will Moderate the Upcoming Webinar offered by the National Catholic Partnership on Disability:

Threats to the Life of People with Disabilities, Part 1: Poor Prenatal Diagnosis of Lethal or Non-lethal Conditions & Disability

 Tuesday, October 5, 2010, 1:00-2:30 P.M., Eastern; 12:00-1:30 P.M., Central 11:00 A.M. -12:30 P.M., Mountain; 10:00-11:30 A.M., Pacific. See http://www.ncpd.org/.

 August 2, 2010. How often do we see a great scientific or therapeutic advance, discovered to enhance life and society, turned against humankind? Prenatal testing and diagnosis was conceived as a “good,” to enhance the wellbeing of mother and child and foster the ability to delivery healthy babies. However, when the intent is accomplished by only delivering healthy babies, while denying life to those deemed less than perfect, a Machiavellian distortion of the good has been achieved.

There are phenomenal advances in prenatal testing: ultrasound; testing for Rh incompatibility; infectious disease testing or testing for antibodies; maternal serum protein testing; amniocentesis; chorionic villus sampling; umbilical cord blood sampling; chromosomal and genetic testing of both parents and fetus. The list continually enlarges; and the question needs to be asked: to what end? The American College [now Congress] of Obstetricians and Gynecologists reports that 90% of their surveyed members justify abortion for fetal anomalies that are fatal; and 63% justify it for nonfatal fetal anomalies. [i] That means that almost two-thirds of the responding physicians responsible for the care of a mother and her unborn child believes in eugenics. The very person who is to be the guardian of the health of the unborn baby, the only professional upon whom that baby can rely, believes in the destruction of that very baby who is less than perfect. This is a frightening prophesy for the future.

Enter the child allowed to be born, who has a disability. There have been egregious examples of denial of basic care to such a child. Thankfully, reports of such abuse have led to the federal “Baby Doe” Child Abuse and Treatment Act (1984), which prohibits withholding nourishment and medically beneficial treatment from infants with a disability solely on the basis of present or anticipated mental or physical impairments. However, such care can be denied if: the infant is chronically and irreversibly comatose; the provision of such care will not improve all of the infant’s life-threatening conditions; or the care is deemed futile in terms of infant survival. Thus, nutrition and hydration could be denied to an irreversibly comatose child, constituting passive euthanasia.

Natural moral law dictates that “As far as the right to life is concerned, every human being is absolutely equal to all others.”[ii]  Prenatal testing clearly can accomplish a good:  “If prenatal diagnosis respects the life and integrity of the embryo and the human fetus and is directed towards its safeguarding or healing as an individual, then the answer is affirmative.”[iii]  However, “Certain attempts to influence chromosomic or genetic inheritance are not therapeutic but are aimed at producing human beings selected according to sex or other predetermined qualities. These manipulations are contrary to the personal dignity of the human being and his or her integrity and identity. Therefore in no way can they be justified on the grounds of possible beneficial consequences for future humanity."[iv] Further guidance is provided by the Ethical and Religious Directives for Catholic Health Care Services: “Prenatal diagnosis is permitted when the procedure does not threaten the life or physical integrity of the unborn child or the mother and does not subject them to disproportionate risks; when the diagnosis can provide information to guide preventative care for the mother or pre- or postnatal care for the child; and when the parents, or at least the mother, give free and informed consent. Prenatal diagnosis is not permitted when undertaken with the intention of aborting an unborn child with a serious defect.”[v] However, the intent to kill the less than perfect child often is the intent of prenatal testing.

The newly enacted federal health care reform legislation, the Patient Protection and Affordable Care Act (PPACA), despite President Barack Obama’s Executive Order, will pay for programs providing abortion on demand.  Evidence shows that the unborn baby with a diagnosis of a fetal anomaly increasingly is at significant risk of abortion. The rate of prenatal screening by ultrasonography or amniocentesis before 24 weeks gestation has risen to 89.3%, increasingly resulting in elective termination of pregnancies.[vi]  Prenatal diagnosis of Down Syndrome brings with it a 90% chance of being aborted.[vii] With the historic move to allow tax dollars to pay for programs providing elective abortions, tax payers have been forced to be complicit in this new eugenics.

There is a better way. This webinar will explore prenatal testing and eugenics and provide life giving options. Participants will include: Dr. John Bruchalski, OB/GYN, Tepeyac Family Care Center, Fairfax, VA; Fr. Dan Mindling, OFM Cap., Theologian, Academic Dean, Mount St. Mary's Seminary, Emmitsburg, MD; Tracy Winsor, Parent Support Specialist, Charlotte, NC; and Monica Rafie, Founder of BeNotAfraid.net and parent of a child surviving a poor prenatal diagnosis, Chicago, IL. Webinar participants will be able to participate in live questions and answers.



[i] D. Cavanagh, M.D., et al., “Changing Attitudes of American Obstetricians and Gynecologists on Legal Abortion National Survey,” The Female Patient 20 (May 1995).

[ii] John Paul II, Evangelium vitae (March 25, 1995), n. 57.

[iii] Congregation for the Doctrine of the Faith, Donum vitae (Feb. 22, 1987), I,2.

[iv] Ibid, I,6 (quoting Pope John Paul II, World Medical Assoc., 1983).

[v] U.S. Conference of Catholic Bishops, Ethical and Religious Directives for Catholic Health Care Services, 5th ed. (Washington, D.C.: USCCB, 2009), n. 50.

[vi] Allyson J. Peller, MPH, et al., “Trends in Congenital Malformations, 1974-1999: Effect of Prenatal Diagnosis and Elective Termination,” Obstetrics & Gynecology 104:5, Part 1 (November 2004), 957-964.

[vii] Gary Bauer and Daniel Allott, “The Last Acceptable Prejudice: An epidemic of Down Syndrome abortions,” National Review On-Line (October 15, 2008 6:30 A.M), http://article.nationalreview.com/374990/the-last-acceptable-prejudice/gary-bauer-and-daniel-allott, last accessed July 29, 2010. 

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Now Available: Made for Each Other: A Catechetical and Educational Aid on Sexual Difference and Complementarity
7/28/2010

July 28, 2010. An excellent DVD with an accompanying resource booklet (for clergy, catechists and teachers), as well as a viewer’s guide, are available through the United States Conference of Catholic Bishops (USCCB). These are outstanding materials developed by the USCCB’s Ad Hoc Committee for the Defense of Marriage. The resource booklet and viewer’s guide provide discussion questions and talking points which are ideal for parish and school educational programs, as well as for assisting individual viewers to enhance their understanding of the concepts addressed by the DVD. The complementarity of men and women at a physical, psychological and spiritual level is explored. This complementarity, essential to marriage, is presented through a dialogue between a young couple, Josh and Carrie, who present helpful analogies demonstrating that same-sex unions can never have this same unique character. Excellent citations are provided that the user can utilize for further study. For more information and to access these materials see: http://www.usccb.org/marriageuniqueforareason/.

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The NCBC Welcomes Announcement by the HHS that it Will Not Fund Elective Abortions
7/16/2010
Marie T. Hilliard, R.N. Ph.D., J.C.L.
Director of Bioethics and Public Policy

July 16, 2010. The National Catholic Bioethics Center joins the U.S. Conference of Catholic Bishops, in welcoming the agreement by the U.S. Dept. of Health and Human Services (HHS) to exclude elective abortion coverage in the high-risk pool insurance program allocations to states. 

 Pennsylvania and New Mexico were slated to receive funding which would pay for abortion of demand, consistent with health care reform legislation (Patient Protection and Affordable Care Act or PPACA).  Such funding of abortion on demand was to occur pursuant to provisions in the PPACA  that excludes from the cost sharing provision certain programs including the high-risk pool insurance programs.  These cost sharing provisions required individuals seeking federal health plan coverage that included abortion on demand, to write separate checks for such coverage. The PPACA does not require those participating in the high-risk insurance program to write separate checks.  Even if PPACA did require these mechanisms of separate checks and separate payroll deductions for such abortion coverage, for the first time in US history the federal government will fund health care plans that provide abortion on demand. Although President Obama’s executive order concerning the PPACA cannot contravene existing law, in a recent announcement HHS has stated that it will not include coverage of elective abortions in its high risk pool allocations to states. [i]

 The NCBC, while welcoming this reversal for these allocations, again stresses the need for Congress to enact legislation, clearly stating once and for all that funds appropriated by PPACA will not pay for abortions or for insurance coverage that includes abortion.  [See: : “The National Catholic Bioethics Center Supports Proposed Remedies to the Flawed Patient Protection and Affordable Care Act (PPACA)".

 


[i]http://npwf.convio.net/site/News2?abbr=daily2_&page=NewsArticle&id=25232&security=1201&news_iv_ctrl=-1.

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US Military May Have to Provide Abortions. Please Act Now to Prevent this Additional Assault on Human Life and Conscience
6/30/2010
Marie T. Hilliard, R.N., Ph.D., J.C.L.
Director of Bioethics and Public Policy

June 30, 2010. Current law states that military health care facilities may not be used to perform elective abortions (10 U.S. Code Sec. 1093(b)). This policy was first established administratively in 1988. President Clinton reversed the policy in 1993 but Congress restored it in 1995, and it has remained intact ever since. Now an attempt is being made to repeal this longstanding policy.

An amendment by Sen. Roland Burris (D-IL) to strike this provision from law was approved during committee consideration of the National Defense Authorization Act for Fiscal Year 2011 (S. 3280). For a description of this vote, see: nchla.org/datasource/idocuments/6Burris8a.10.pdf.

In a June 17 letter to the U.S. Senate, the Most Reverend Timothy Broglio, Archbishop for the Military Services, stated that the Burris Amendment “would contravene our military health care providers’ commitment to defending and protecting human life” and “would pressure military physicians, nurses and associated medical personnel to engage in an act of taking innocent human life.” Military medical personnel should be allowed to continue to abide by their commitment to save lives. For text of letter, see: nchla.org/datasource/idocuments/Letter%20to%20Congress%20from%20Archbishop%20Broglio%206.17.2010.pdf.

In a subsequent letter, Cardinal Daniel DiNardo, Chairman of the bishops’ Committee on Pro-Life Activities, urged that the authorization bill not be approved “until the original version of 10 U.S.C. §1093 is restored.” He said it is not the task of the federal government “to directly promote and facilitate elective abortions,” and the longstanding ban on use of these facilities for abortion should be maintained. For text of letter, see: nchla.org/datasource/idocuments/CardinalDiNardoMilitaryLetter.pdf.

S. 3280 is expected to be on the Senate floor after the July 4 recess. The recess will take place during the week of July 4-9.

The House has already passed its version of the National Defense Authorization Act for Fiscal Year 2011 (H.R. 5136), without changing the longstanding military abortion policy. For NCHLA’s Fact Sheet on this issue, see: nchla.org/datasource/ifactsheets/MilAbrtPol.PDF.

ACTION: Please contact your two U.S. Senators by e-mail, phone, or FAX letter:

To send an e-mail message through NCHLA’s Grassroots Action Center click here.

Call the U.S. Capitol switchboard at: 202-224-3121, or call your Senators’ local offices. Contact info can be found on Senators’ web sites at: www.senate.gov.

Senators also should be contacted while visiting their home states during the July 4 recess.

MESSAGE: “Please do not approve the defense authorization bill until the Burris Amendment is reversed and current law on military abortions is upheld.”

WHEN: It is anticipated the Senate will consider S. 3280 after the July 4 recess. Please act today! Thanks!

Pope Benedict XVI Appoints NCBC President to Governing Council of the Pontifical Academy for Life
6/22/2010

 June 22, 2010. John M. Haas, Ph.D., S.T.L., K.M., President of The National Catholic Bioethics Center, has been appointed by His Holiness, Pope Benedict XVI to serve as a member of the Governing Council of the Pontifical Academy for Life for a period of five years. Dr. Haas was appointed as an Ordinary Member of the Academy by the Holy Father in 2006. The Academy chose to announce the appointment on June 22, the feast of the English martyrs Sts. John Fisher and Thomas More who “gave their lives for principles which are very much still actual and which are deeply relevant for the work of the Academy in the defense of human life.”

The Pontifical Academy for Life was established by Pope John Paul II with his Motu Proprio "Vitae Mysterium" on February 11, 1994. The first President was the noted French physician, geneticist, and Servant of God Dr. Jérôme Lejeune who was an ardent defender of life and the researcher who discovered the chromosomal cause of Down syndrome which came to be called Trisomy 21. The principal objective of the Academy is the study of problems of biomedicine and of law relative to the promotion and defense of life and especially the direct relation that they have with Christian morality and the teachings and directives of the Church's Magisterium.  The academy for life is autonomous but collaborates closely with the Pontifical Council for Pastoral Assistance to Health Care Workers and various other dicasteries of the Roman Curia committed to the service of life.

The Governing Council of the Pontifical Academy for Life consists of 8 of the members of the Academy including the President, Archbishop Rino Fisichella, and the Chancellor, Monsignor Ignacio Carrasco de Paula of Spain, who is a moral theologian and physician.

Dr. Haas has said of the appointment, “I am deeply honored and humbled with this appointment from the Holy Father and pray that I, with my colleagues at The National Catholic Bioethics Center, may make some real and lasting contributions to the building up of a Culture of Life worldwide.”

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Two New Members Appointed to the NCBC Board of Directors
6/21/2010

At a recent meeting of the Board of Directors of The National Catholic Bioethics Center Archbishop Donald W. Wuerl (Washington D.C.) as chair of the nominating committee of the Board announced the appointment of the Most Reverend Jose Gomez, Coadjutor Archbishop of Los Angeles, and the Most Reverend Gregory Aymond, Archbishop of New Orleans, to the NCBC Board of Directors.

Dr. John M. Haas, President of the NCBC, was present at the Mass of Reception in Los Angles for Archbishop Gomez (see photo at left) on May 26.

Archbishop Gomez holds a doctorate in sacred theology from the University of Navarre in Pamplona Spain. Before being appointed to the Archdiocese of Los Angeles, he had served as Archbishop of San Antonio since February of 2005. He has a great pastoral interest in bioethics, especially issues related to end-of-life care, and is the author of A Will to Live: Clear Answers on End-of-Life Issues. Gomez brings a scholarly and pastoral interest in bioethics to the NCBC Board, and as the Coadjutor Archbishop of Los Angeles, episcopal representation from the west coast.

Archbishop Gregory Aymond, a native of New Orleans, served as President-Rector of Notre Dame Seminary in New Orleans where he also served on the faculty as a professor of pastoral theology and homiletics. He developed a close relationship with The National Catholic Bioethics Center during his tenure as Bishop of Austin, Texas. In June 2009 His Holiness, Pope Benedict XVI appointed Archbishop Aymond to succeed Archbishop Alfred Hughes as the 14th Archbishop of New Orleans and the first New Orleans native to serve the archdiocese as its Ordinary in its 216 year history.

The NCBC Board of Directors and staff welcome these two distinguished archbishops to our outstanding board of church hierarchy and dedicated lay persons.

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The National Catholic Bioethics Center Supports Proposed Remedies to the Flawed Patient Protection and Affordable Care Act (PPACA)
6/15/2010

Marie T. Hilliard, R.N.. Ph.D., J.C.L.
NCBC Director of Bioethics and Public Policy

June 15, 2010. A bipartisan US Congressional bill, H.R. 5111, sponsored by Reps. Joseph Pitts (R-PA) and Dan Lipinski (D-IL) with the support of 91 House members, would address major flaws in the recently enacted federal health care reform legislation, the Patient Protection and Affordable Care Act (PPACA). See www.usccb.org/healthcare. To learn how to have your voice heard see: http://www.nchla.org/actiondisplay.asp?ID=282

The PPACA, despite President Barack Obama’s Executive Order and despite claims to the contrary, will pay for programs providing abortion on demand and provide inadequate conscience protections for health care providers. Furthermore, it will leave unaddressed the health care needs of many immigrants. The Chairman of the U.S. Conference of Catholic Bishops’ Committee on Pro-Life Activities, Cardinal Daniel DiNardo urged members of Congress to support H.R. 5111, stating that it “will bring PPACA into line with policies on abortion and conscience rights that have long prevailed in other federal health programs.” H.R.5111 will ensure PPACA funds are covered by the Hyde Amendment, along with other conscience protections covered by the Weldon amendment that has been part of the of the annual Labor/US Health and Human Services appropriations bills since November 2004. This will make certain that federal, state and local governmental entities receiving federal funds under PPACA may not discriminate against health care providers who decline involvement in abortion.  It will prevent states from requiring the provision of certain procedures without also providing conscience protections. Furthermore, H.R. 5111 will close a loophole in the PPACA’s non-preemption clause on state laws, so that state laws restricting abortion or protecting conscience rights will not be preempted by PPACA.

Some may assume that President Obama’s executive order of March 21 addresses these flaws in the PPACA.  However, the executive order does not address several of the problems cited above.  On other issues it even reinforces problematic aspects of the PPACA, such as providing federal subsidies for health plans that provide abortion on demand.  Furthermore, an executive order cannot go beyond duly enacted federal legislation. Thus, the provisions of H.R. 5111 will assure that any intention in the executive order to provide protections to human life, human dignity, and conscience will be accomplished in law.

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NCBC Publications Claim 4 Awards from the Catholic Press Association
6/9/2010

June 8, 2010. The National Catholic Bioethics Center is the recipient of 4 awards announced by the Catholic Press Association at their 2010 Catholic Media Convocation in New Orleans last week. The National Catholic Bioethics Quarterly, the Centers professional journal, was granted the distinctive honor of 1st place in the category of General Excellence, Scholarly Magazines. The judges commented that “From cover to cover this journal provides engaging, contemporary writing delineating often very complex issues.” The Quarterly was founded in 2001 with assistance from the Our Sunday Visitor Institute and the American Association of the Order of Malta. It has had the honor of receiving this award for 6 of its 9 years of publication. Additionally, Denis A. Scrandis’ article, “A Demonstration of the Personhood of the Human Embryo”, published in the Winter 2009 issue, received the 2nd place prize award for Best Essay, Scholarly Magazine

The Center’s monthly publication, Ethics & Medics received 2 awards, 1st and 2nd place in the category of Best Essay, Special Interest Newsletters. Dr. Maureen Condic’s “A Comprehensive Primer on Stem Cells: Reviewing the Science and the Ethics” and Dr. Joel Brind’s essay, “Consuming Secondhand Steroids: The Contraceptive Pollution of Nature” both were noted for presenting controversial subjects in a clear and thought provoking way.

John M. Haas is the publisher of The National Catholic Bioethics Center’s publications, and Edward J. Furton is the Editor in Chief. Rebecca M. Robinson is the Production Manager and Melanie Anderson the Production Editor. Subscription information for both publications can be found at the Center’s website: www.ncbcenter.org, or by calling the Center at 215.877.2660.

Click to read a summary of the awards received by NCBC publications. 

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Synthetic Life: Important Technical Achievement But Not Revolutionary
5/28/2010
Stephen Napier, Ph.D.
NCBC Ethicist

May 28, 2010. Craig Venter and his lab successfully altered the genetic structure of a bacterial cell with synthetic DNA.[1] The original bacterial cell was a mycoplasma capricolum but had its DNA stripped – though the original cytoplasm remained – and in its place received a DNA sequence that was structured like mycoplasma mycoides cells using a “digitized” genomic sequence of m. mycoides cells. Explaining just why this is a synthetic living cell, Craig Venter noted that the cell has a computer as its “parent” and behaved like an m. mycoides cell, even self-replicating.[2] That is, a genomic sequence was constructed by a computer model with slight differences from an m. mycoides sequence. Geneticists have been able to “download” genetic sequences of cells for some time. Venter accomplished a feat in the other direction “uploading” a computer modeled genomic sequence resembling an m. mycoides cell into the cytoplasm of an m. capricolumm. mycoides cell with the resulting cell behaving like an m. mycoides cell.

Various news outlets are heralding this as a revolutionary discovery with serious repercussions on our understanding of life and claiming that many theological or religious beliefs may have to be revised. This is overstated. Venter’s study, represents an important technical achievement in that it imported into a cell a wholly synthetic (i.e., computer modeled) genomic sequence manufactured by a machine, and the resulting cell behaved consistent with its new genetic sequence. His experiment did not create life out of non-living matter. The phrase “synthetic life” does not refer to an artificial form of life, as for example the phrase “synthetic wool” refers to an artificial or man-made type of material that imitates wool. Venter began with a living organism, rearranged its genetic sequence, and then called the result “synthetic life.” But the only synthesis he introduced into this existing life form was the new order of the genetic material. Venter did not produce a new form of artificial life that imitates real life. He manipulated an existing living organism.

The work on synthetic life resembles gene therapy, in that what is being proposed is an alteration to the genetic structure of the host organism. What is noteworthy about Venter’s research is that our understanding of how living organisms can be manipulated and altered to manufacture new forms of life may need slight revision. Venter has shown that we can introduce manipulated DNA sequences into cells, effectively changing their characteristic potencies and powers i.e., changing the kind of cell it is. But here again, this is no different in concept from what is being done in gene therapy research. The added technical achievement is that Venter has shown we can do such things with DNA synthesized by a computer model.

Venter’s research on synthetic life is not without potential dangers of a significant magnitude to the environment and with respect to bioterrorism. In principle, the moral quality of this research should be measured against three basic principles: the research should be at the service of the human person in developing effective medical therapies which respect human dignity or ecological preservation technologies. (Venter himself has noted that this is in fact the intent driving the research). It may not destroy young human life in the process nor use or benefit from research that has destroyed innocent human beings. And there should be a specific plan of “containment” to lessen the serious potential risks just noted (i.e., risks to the environment and of bioterrorism).

Venter’s research is an example of scientists participating in the creatio continua of God’s creative activity. Whereas creatio ex nihilo (“creation out of nothing”) emphasizes God’s transcendence, creatio continua (“continuous creation”) draws attention to God’s immanence and the exercise of His sustaining causality. Venter’s research does not tread on God’s ground, but rather participates in His creative activity. The research should be encouraged consistent with the ethical principles just enumerated.  



[1] Daniel Gibson, et. al. “Creation of a Bacterial Cell Controlled by a Chemically Synthesized Genome,” Science (Online May 21, 2010), available at, http://www.sciencemag.org/cgi/rapidpdf/science.1190719v1.pdf. (Accessed May 25, 2010).

[2] A longer explanation of what Venter et. al. did is as follows, “[Venter’s] approach to synthetic biology isn’t hacking, it’s programming from the ground up. Yes, this first bacterium was just a copy of a natural organism. But that copy was assembled base pair by base pair. In the future, instead of pain-stakingly slicing in genes from other bacteria, Venter can just change a few parameters in his computer software. When fully developed this technology will let you ‘code’ a new organism.” http://singularityhub.com/2010/05/20/venter-creates-first-synthetic-self-replicating-bacteria-from-scratch/ (accessed May 25, 2010).

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Presumed Consent Legislation in New York
5/10/2010

Ethicists of The NCBC

May 7, 2010. Assemblyman Richard Brodsky of New York State has introduced a bill that would set aside “informed consent” for organ donation and substitute in its place “presumed consent.” Under this legislation, the body of the person would be viewed as the possession of the state, and not that of the family, unless the individual made a specific indication or statement that his organs should not be removed without his permission.

The National Catholic Bioethics Center recognizes that politicians, physicians, patient advocates, and other people of good will are desperately seeking new sources of organs and tissues for the many people who die in need, but laws authorizing presumed consent violate the fundamental dignity of the person and the prior rights of family members who must have the final say on the disposition of the remains. We would urge the members of the New York legislature to oppose this law.

The body of the deceased person belongs first and foremost to the family, who must be confident that they will receive it intact and without the unauthorized prior removal of organs and tissues. The burial of the body is an important part of the grieving process and a period of unity among family members who gather for the internment. The sanctity of this time should not be undermined by the possibility that the state has removed organs and tissues from a loved one without anyone’s permission.

Proposals for presumed consent encourage us to view the human body as a commodity, whose parts can be harvested for the benefit of others. Already we are seeing efforts to encourage organ donation through offers to pay donors for funeral expenses or provide benefits to family members. Payment for organs, other than reimbursement of monies for the cost of the donation itself, violates the inherent dignity of the body, which is an essential component of a human person. Similarly, removing organs without consent treats the body of the deceased in a utilitarian manner.

The Catholic Church promotes the good of organ donation, where “donation” means the freely given decision to transmit the gift of life to another. A program of presumed consent should not be confused with true organ donation. There is no donation when the state presumes to have the authority over the body of the deceased and allows its organs to be removed.

Directive # 63 of the Ethical and Religious Directives for Catholic Health Care Services (2009), issued by the United States Conference of Catholic Bishops, states: "Catholic health care institutions should encourage and provide the means whereby those who wish to do so may arrange for the donation of their organs and bodily tissue, for ethically legitimate purposes, so that they may be used for donation and research after death."

Similarly, John Paul II spoke of acts of heroism in Evangelium vitae (1995), #86: “They are a sharing in the mystery of the Cross, in which Jesus reveals the value of every person, and how life attains its fullness in the sincere gift of self. Over and above such outstanding moments, there is an everyday heroism, made up of gestures of sharing, big or small, which build up an authentic culture of life. A particularly praiseworthy example of such gestures is the donation of organs, performed in an ethically acceptable manner, with a view to offering a chance of health and even of life itself to the sick who sometimes have no other hope.”

A "sincere gift of self" requires freedom of action, and gifts are never obligatory. If there is a social obligation to have one's organs used to save the lives of others, and the state oversees the enforcement of this obligation, how can one speak of "donation" or even "presumed consent"?  Tax payers do not "donate" portions of their wages to the state to be distributed for the common good.  They are taken by the state with or without our consent.  If the state has the obligation to take our organs for distribution to those in need, and we have an obligation to allow them do this, except when we express a prior objection, we cannot speak of virtue or charity with respect to organ extraction and distribution.

Link to the bill:
http://assembly.state.ny.us/leg/?default_fld=&bn=S07725%09%09&Summary=Y&Text=Y

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Adoption of the Uniform Anatomical Gift Act (UAGA)
5/6/2010
Marie T. Hilliard, RN, PhD, JCL
Director of Bioethics and Public Policy

May 6. 2010. The National Catholic Bioethics Center (NCBC) has been in dialogue with some individual State Catholic Conferences facing adoption by their legislatures of the Uniform Anatomical Gift Act (UAGA). A summary of one State Catholic Conference’s experience is contained in the report of the Maryland Catholic Conference. It is important to note that final refinement of amendments are those attached as the UAGA Amendments Agreed Upon by the National Conference of Commissioners on Uniform State Laws and The National Catholic Bioethics Center. These three agreed upon amendments to the UAGA of 2007 were a result of the NCBC engaging in lengthy dialogue with a representative of the National Conference of Commissioners on Uniform State Laws. It is important to note that in the UAGA the succession of persons allowed to make the anatomical donation ends with “any other person having authority to dispose of the decedent’s body.” (Section 9, (10)). The NCBC opposes such a provision, which violates consent as required by the Ethical and Religious Directives for Catholic Health Care Services, #63, and is akin to “presumed consent.” Agreement on this point could not be reached with the National Conference of Commissioners on Uniform State Laws . An additional amendment of a state statute incorporating provisions of the UAGA was achieved by the Kentucky Catholic Conference. This amendment prevents the use of anatomical gifts for the engendering of human beings (embryos) for research or education.  Text of the Kentucky legislation is available here:  http://www.lrc.ky.gov/record/10RS/SB4.htm.

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NCBC President Dr. John Haas Responds to Peggy Noonan's April 17, 2010 Wall Street Journal Article, "How to Save the Church"
4/22/2010

April 18, 2010. Peggy Noonan is usually so good. But I am afraid she is stuck in the past with regard to the Church’s response to sexual abuse. (WSJ, April 17) She charges Vatican officials with complacency and declares, the “more relaxed the institution, the less likely it will reform”. 

But Peggy has apparently not noticed that tremendous reform has occurred. In fact, more reform has taken place in the Catholic Church than in any other social institution in which the abuse of minors has occurred. In 2002 the U. S. Bishops approved a Charter for the Protection of Children and Young People. They hired the John Jay College of Criminal Justice to conduct an independent investigation of the problem. They established a National Review Board chaired by a woman (Peggy called for a woman’s touch), Justice Anne M. Burke. The National Review Board monitors the policies of the Secretariat of Child and Youth Protection of the bishops and oversees its annual audit.   Five of its current 13 members have that “woman’s touch”.  One of the original members of the Review Board was a media representative, William Burleigh, at the time head of the Scripps news agency. This was surely expressive of a desire on the part of the bishops for transparency.

The chairman of the research committee of the original National Review Board, Robert Bennett, said when the report was issued that the sexual abuse of minors was a broad social problem and that a focus merely on the Catholic Church would be a disservice to our children. Regrettably, however, that is exactly what has happened. 

Continue reading...

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Urgent Need for Comments on American Nurses Association’s Draft Position Statement on Forgoing Nutrition and Hydration by April 28, 2010
4/19/2010

Marie T. Hilliard, Ph.D., J.C.L., R.N.
NCBC Director of Bioethics and Public Policy

April 19, 2010. The American Nurses' Association has prepared a draft position statement, Foregoing Nutrition and Hydration, the stated purpose of which is to "clarify the role of the registered nurse and the healthcare systems in which they work pertinent to the support of patients and their surrogates deciding to withdraw or withhold nutrition and hydration".

The National Catholic Bioethics Center has grave concerns pertaining to the draft position statement. Please read the comments on the draft statement provided by The NCBC and the ANA draft statement which can be found at http://nursingworld.org/DocumentVault/NursingPractice/Forgoing-Nutrition-and-Hydration.aspx.

Nurses are encouraged to provide comments by April 28, 2010 to the American Nurses Association through lbadzek@hsc.wvu.edu.

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New NCBC Publication Available. Affirming Love, Avoiding AIDS. What Africa Can Teach the West
3/26/2010

March 26, 2010. The experts say that the solution to the rampant spread of HIV/AIDS is not to ask anyone to exercise self-control, but to distribute a prophylactic device that will enable everyone to engage in sexual license without consequence. For those who ascribe to this principle, the claims of Matthew Hanley and Jokin de Irala’s book will seem incomprehensible. “Who could possibly believe that human beings can control their sexual urges? How can anyone remain faithful to a spouse? Doesn’t everyone know that the condom is the solution to the problem of AIDS?”

Hanley and de Irala reject this pessimistic view of human nature in their remarkable book, Affirming Love, Avoiding AIDS: What Africa Can Teach the West (The National Catholic Bioethics Center, 2009). They defend the view that the condom is not the solution to the world-wide AIDS crisis. They offer us instead the virtues of chastity and fidelity. They make their case by citing an abundance of scientific and epidemiological evidence. They show that the thoughtlessness of the AIDS establishment, with its huge budgets and access to influential organizations, such as the United Nations, has promoted a plan of containment that has been disastrous for the health and well-being of large populations.

Africa has been the proving ground for these contrasting theories. The African people have shown that it is morality---and not technological interventions---that is the most effective means of reducing HIV/AIDS. Not surprisingly, human beings are capable of self-control. What they need is moral support, not condoms. They need prevention programs that stress the advantages of sexual abstinence and fidelity in marriage. They do not need government agencies encouraging them to believe that they can engage in high-risk conduct with impunity so long as they put their trust in a piece of latex.

 Hardly a week passes without some self-appointed moral authority announcing that more money must now be poured into the world-wide effort to distribute condoms. We are told that programs that stress abstinence and fidelity are dangerous frauds. We are told that people who advance these theories are backwards and ignorant. And yet, the evidence is there, plain to see, not only in the medical literature, but also in common sense. Human beings are capable of prolonged periods of abstinence and can respect the bonds of marriage. this is the solution to the world-wide AIDS epidemic.

Read more about the book here.

Affirming Love, Avoiding AIDS: What Africa Can Teach the West is available from The National Catholic Bioethics Center’s online store or by calling 215-877-2660. NCBC Members will receive this book in the mail as their member benefit publication for 2009.

A House Divided Against the Common Good
3/23/2010
Marie T. Hilliard, Ph.D., J.C.L., R.N.
NCBC Director of Bioethics and Public Policy

March 23, 2010. When the common good takes a back seat to political and corporate interests, all, especially the vulnerable, are at risk. As the largest provider of non-governmental, non-profit health care in this country, the Catholic Church, and those who work as Catholic agencies and organizations, have a special obligation to vulnerable populations, such as the unborn, those with disabilities, and those at life’s end. These populations cannot be compromised in an effort to secure “the greater good.” This is utilitarianism, seeking the greatest good for the greatest number, and never equates to the common good.

It is undeniable that the enacted Patient Protection and Affordable Care Act includes public funding of programs that provide abortion on demand. No accounting practices, or requiring enrollees or employees to write separate checks for abortion coverage, changes that fact. The plan would mandate that in each regional Exchange only one of the qualifying plans not include abortion. Furthermore, there is no restriction on coverage of assisted suicide costs. President Obama’s executive order cannot override federal law. In fact, his Order merely requires adherence to the Act. Specifically, it states: “This Executive Order is not intended to, and does not, create any right or benefit, substantive or procedural , enforceable at law or in equity against the United States.” While he attempts to assure us that the seven billion new dollars for Community Health Centers will be applied consistent with the Hyde Amendment, the placement of that language within the Act does not make it subject to the cost-sharing provisions for abortion coverage. Most significantly, Beal v. Doe, 432 U.S. 438 (1977) dictates that, without statutory provisions for the Hyde amendment within each enacted law, “essential services” are to include abortion.

Both individuals and employers will be penalized for the absence of health care coverage. There is no evidence of conscience protections for individuals or employers, who may find themselves having to write separate checks for undesired abortion procedures that happen to be in the plan of choice. There is limited evidence of conscience protections for providers, and the legislation does not provide for protection against coercion of health care providers and employers related to contraceptives or abortifacients. Here we see, most significantly, that a house divided eventually will pay the price for taking compromising positions. Yet, unfortunately, in public opposition to the US Conference of Catholic Bishops’ call for rejection of this legislation as it was written, the Catholic Health Association and fifty-five women religious urged its passage.

The Act will establish a Medicare Commission, which is to develop Medicare cost-saving measures. Providers to Medicare beneficiaries will be rewarded if they reduce the cost of health care services, while maintaining quality. This could foster care disincentives toward some individuals who are elderly or disabled. Broad authority is given to federal agencies to impose binding regulations. Mandates, with penalties, for failure to meet such requirements, could be imposed. The potential impact upon Catholic health care in areas where it is the sole provider, and refuses to engage in procedures destructive to life or natural human functioning, could be ominous.

Nothing is as intimately linked to fostering affordable health care as a moral approach to a global economy. Last year Pope Benedict XVI issued Caritas in Veritate (“Love in Truth”), offering the world a means to evaluate secular economic and social systems through the moral lenses of charity and truth. This new social encyclical focuses on integral human development. Economic activity is called to be people-centered: “This needs to be directed towards the pursuit of the common good.” (N.36). Most notably, Benedict states, “When a society moves towards the denial or suppression of life, it ends up no longer finding the necessary motivation and energy to strive for man’s true good” (N. 28). Attacks upon life spare no generation: “To the tragic and widespread scourge of abortion we may well have to add in the future – indeed it is already surreptitiously present – the systematic eugenic programming of births. At the other end of the spectrum, a pro-euthanasia mindset is making inroads as an equally damaging assertion of control over life that under certain circumstances is deemed no longer worth living. Underlying these scenarios are cultural viewpoints that deny human dignity.” (N. 75).

One is left to ask, does this health care legislation truly advance the common good? More importantly, when members of a divided house make compromises with principle, has the common good been advanced? The answer is contained in Caritas in Veritate, within which all of the hallmarks of a sound health care reform policy are contained: integral human development; fundamental rights to life and religious freedom; charity with truth; humanistic synthesis; the common good; earth as a gift to humanity to use and protect; civilizing the economy; subsidiarity; a person-based and community oriented culture; people-centered development programs; cooperation of the human family; recognition that every migrant is a human person; and bioethics and human responsibility in human technology. As the encyclical states, in charity and truth, “when a society moves towards the denial or suppression of life, it ends up no longer finding the necessary motivation and energy to strive for man’s true good.”(N. 28)

The Bishops Speak out on Health Care Reform
3/18/2010

March 18, 2010. As the debate on health care reform intensifies prior to an anticipated vote later this week, The NCBC would like to draw particular attention to comments from our bishops regarding the the status of the Senate bill and its provisions for abortion. While there are certainly other troubling issues contained within the proposed legislation, the issue of funding for abortion remains critical and undeniable.

In an attempt to provide health care coverage for all Americans there can be no toleration for the destruction of innocent human life. It has been a desire of the bishops for many years to bring sensible health care reform to our country. The Senate’s refusal to adopt the language of the “Stupak/Pitts Amendment”, which was approved by the House of Representatives, sounds a clear warning that the door remains open to abortion funding and therefore makes the Church’s support for this legislation impossible. There is no greater social good than the protection of human life.

We encourage you to read the following analysis of the legislation provided by the United States Conference of Catholic Bishops and also the public statements of various individual bishops, including the USCCB President and NCBC board member Cardinal Francis George of Chicago.

March 15, 2010 statement of Cardinal Francis George, President of the United States Conference of Catholic Bishops

USCCB Analysis of the Issues in Health Care Reform Comments and Commentary be Leading U.S. Bishops:
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Washington D.C. Same Sex Marriage Legislation and the Implications for Catholic Charities
3/5/2010

On March 2, 2010 the Archdiocese of Washington ceased offering spousal benefits to new employees of Catholic Charities in order to maintain its service to thousands of vulnerable and poor residents of the District. Under new legislation that mandates recognition of same-sex "marriage", and contains no religious exemption, Catholic Charities would be forced to recognize these immoral but legally sanctioned relationships through the provisions of their employee benefit plan. Catholic Charities in the Archdiocese of Washington serves residents through contracts with the local government which require compliance with all local laws.

The Archdiocese had already been informed in December 2009 that it would no longer be able provide placements for foster children or publicly-funded adoption services. Under the new law, the agency would be required to place children with same-sex married couples and to license the couples as adoptive and foster care families.

You may read the March 1, 2010 statement of the Archdiocese here.

More of the Same: President Obama’s Proposal and the Reconciliation Process
2/26/2010

Marie T. Hilliard, Ph.D., J.C.L., R.N.
NCBC Director of Bioethics and Public Policy

February 26, 2010. It is undeniable that President Obama’s plan for health care reform includes a provision for public funding of programs that provide abortion on demand. No accounting practices, or requiring enrollees or employees to write separate checks for abortion coverage, change that fact. It would mandate that in each Exchange in the country only one of the qualifying plans not include abortion. Both individuals and employers will be penalized for the absence of health care coverage. There is no evidence of conscience protections for individuals or employers, who may find themselves having to write separate checks for undesired abortion services that happen to be in the plan of choice. There is limited evidence of conscience protections for providers: only that they cannot be excluded from participating in the plan because of an unwillingness to provide, pay for, provide coverage of, or refer for abortions. Nowhere does it provide for protection against coercion of health care providers and employers related to contraceptives or abortifacients.

The plan also expands Medicaid to all individuals less than 65 years of age, based on income, and is to include essential health benefits. Courts have construed such Medicaid provisions to include abortion: “abortion fits within many of the mandatory care categories, including ‘family planning,’ ‘outpatient services,’ ‘inpatient services, ’ and 'physician's services.’” In fact all basic health plans must provide these “essential health benefits.” While, federal funding of abortion by the US Department of Health and Human Services (e.g., Medicaid) would be in violation of the Hyde Amendment, any health care reform legislation must specifically invoke the Hyde Amendment on all options within the bill to assure its applicability. There is no such invocation in the Obama Plan. Yet proponents of HR 3962 (the Senate bill upon which this proposal builds) insist that provisions for federal funding of abortion are not included. Of particular note is the funding expansion to community health centers to $11 billion dollars. Such centers are the major providers of contraceptives and abortifacients, and referrals for abortion.

The Obama Plan would establish a fifteen member Independent Payment Advisory Board, which is to submit Medicare cost saving measures. While this Board is prohibited from submitting rationing proposals, the Obama Plan will allow providers to high-need Medicare beneficiaries (the elderly and disabled) to share in any savings if they reduce the cost of health care services. This constitutes an incentive not to treat the elderly and disabled. Every three years non-profit hospitals will be required to conduct community needs assessments and develop strategies to meet those needs. Mandates, with penalties, for failure to meet such requirements, as well as requirements pertaining to billing and patient financial assistance, will be imposed. How this will impact areas in which Catholic health care is the sole provider, and refuses to engage in procedures destructive to life or natural human functioning, is unclear.

Nothing is as intimately linked to fostering affordable health care as a moral approach to a global economy. On June 29, 2009 Pope Benedict XVI issued his third encyclical, Caritas in Veritate (“Love in Truth”) , offering the world a means to evaluate secular economic and social systems through the moral lenses of charity and truth. While commemorating the fortieth anniversary of Paul VI’s encyclical, Populorum Progressio, this new social encyclical focuses, not on the development of peoples, but integral human development. Thus, economic activity is called to be people-centered: “This needs to be directed towards the pursuit of the common good, for which the political community in particular must also take responsibility.” (N.36) Most notably, Benedict states: “When a society moves towards the denial or suppression of life, it ends up no longer finding the necessary motivation and energy to strive for man's true good.” (N. 28) He also recognizes that the attacks upon life spare no generation: “To the tragic and widespread scourge of abortion we may well have to add in the future — indeed it is already surreptitiously present — the systematic eugenic programming of births. At the other end of the spectrum, a pro-euthanasia mindset is making inroads as an equally damaging assertion of control over life that under certain circumstances is deemed no longer worth living. Underlying these scenarios are cultural viewpoints that deny human dignity.” (N. 75)

The question remains as to whether our “society” is advancing this proposal, when one looks at the proposed “Reconciliation” process, usually reserved for budgetary matters, not policy matters. Such a process of reconciliation limits debate and amendment, and therefore favors the majority party. Specifically, the House would vote on the Senate proposal, which is the basis for the Obama Plan. Then the reconciliation process would be used to develop a separate bill to resolve differences in the House and Senate versions. Voting procedures on this bill would disallow a filibuster, potentially allowing one political party to control the vote and pass the health care reform proposal.

Finally, one is left to ask, does the Obama Plan advance the common good? The answer is in Caritas in Veritate. All the hallmarks of a sound health care reform policy are contained within Caritas in Veritate: integral human development; fundamental rights to life and religious freedom; charity with truth; humanistic synthesis; the common good; earth as a gift to humanity to use and protect; civilizing the economy; subsidiarity; a person-based and community oriented culture; people-centered development programs; cooperation of the human family; recognition that every migrant is a human person; and bioethics and human responsibility in human technology. As the encyclical states, in charity and truth, “when a society moves towards the denial or suppression of life, it ends up no longer finding the necessary motivation and energy to strive for man’s true good.” (N.28)

Cooperation, Health Care Reform, and Incrementalism
2/22/2010
Stephen Napier Ph.D.

February 22, 2010. We are often consulted at The National Catholic Bioethics Center about cooperation questions. Health reform debates are now in the stage of reconciliation. The US Congress will consider (as of 2/22/10) the reconciliation process to advance the anti-life Senate health care reform proposal. We have been asked about the extent to which person’s of conscience can endorse certain health care reform proposals. At issue is the senate version of health care reform which would implicate citizens in cooperating in abortion. Can we support such legislation even if other aspects of it would ensure serious goods to society?

John Paul II in his Encyclical Evangelium vitae says the following about the stance we should take to unjust legislation,

In the case of an intrinsically unjust law, such as a law permitting abortion or euthanasia, it is therefore never licit to obey it, or to "take part in a propaganda campaign in favour of such a law, or vote for it" (n. 73).
What is clear is that voting for a law that expands the access to or availability of abortion is never licit. More complicated is the scenario when the law in question does not completely abrogate the abortion law, but seeks to limit its effects (e.g., parental consent laws, laws requiring ultrasounds before abortions etc.) To these JPII says,
An elected official, whose absolute personal opposition to procured abortion was well known, could licitly support proposals aimed at limiting the harm done by such a law and at lessening its negative consequences at the level of general opinion and public morality. This does not in fact represent an illicit cooperation with an unjust law, but rather a legitimate and proper attempt to limit its evil aspects.
These comments are sufficient to “test” our current health care reform proposal under consideration.

Assuming that the health care reform bill that makes it out of adjudication still entails that those who object to abortion will have to pay for abortions (either through taxpayer dollars or through the “two-checks” compromise), then the legislation should be opposed. Some would argue that imperfect legislation can be supported if it also led to great goods for society. But if the evil it makes possible or expands access to is the destruction of human life, then it would be an inappropriate application of “incrementalism” to vote for it. JPII’s comments say that it is permissible to vote for imperfect legislation when it limits or reduces the effects of an intrinsically unjust law already in place. But when the legislation being proposed expands access to abortion, even if it ensures certain goods to society, the legislation is itself unjust.

Some would advocate a procedure whereby one calculates the goods and evils a piece of legislation entails. The argument may be that the goods ensured by this aspect of the legislation outweigh or trump the evils ensured by another aspect of the legislation. But this approach cannot be justified in that it would amount to an intention to see abortion access expanded. Why? If given an option of endorsing a version of health care reform that does not provide abortion aid, and one endorses a version that does provide abortion aid (all else being equal), there can be but one intention, namely, to expand access to abortion. Endorsing any legislation that furthers abortion prior to being approved must involve an intent to further abortion because prior to approval there are other options, such as amendments to prevent the effect of furthering abortion.

What our legislators need to understand is that a majority of us think that the direct killing of young human life is wrong. Such an action involves killing the most vulnerable members of the human family. None of us has a right to kill our children. Our stance towards human life, at any stage of development, ought to be one of respect and care, and not treated as a problem to be done away with. Endorsing health care reform that expands access to a procedure that kills the innocent simply cannot be justified. If the State pays for a plan which includes abortions, in whatever form/policy/reform bill, it would effectively endorse a controversial moral position whose arguments are excessively dubious and weak.

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Triage Protocols in Cases of Scarce Medical Resources
2/8/2010


 Often health care professionals can be overwhelmed with casualties resulting from natural disasters, such as the recent earthquake in Haiti, from pandemics, such as the one feared from the H1N1 virus (“Swine Flu”), or from warfare or terrorist attacks. The health care professionals themselves are often taxed beyond normal endurance. But they also face the lack of sufficient medical resources, such as simple anti-biotics or ventilators, to provide life saving interventions. In such situations, very difficult moral decisions have to be made as to who will receive what resources are available. These are often gut-wrenching decisions. The allocation of these scarce resources is often referred to as “triage”.

It is important that hospitals have in place protocols which will enable them to make decisions as objectively as possible, under often horrific conditions, with respect to who will or will not receive the scarce medical resource. In the vortex of a disaster physicians and nurses must often make life-and-death decisions with the medical and the moral resources at hand.

The National Catholic Bioethics Center has not infrequently received requests for help in applying the Catholic moral tradition in such situations, as occurred recently after the devastating earthquake in Haiti. In our discussions with care-givers in the midst of these crises, we point out the need to have an objective policy in place to direct the use of limited resources that would apply equally to all patients. However, an “objective” policy must also be flexible in order to be applied in an extraordinary situation in which circumstances can change by the minute and patients of varying conditions will be brought for treatment and care. Obviously it is best to have these protocols in place prior to a crisis striking.

Let us reflect on this question in terms of the use of ventilators when there are not enough available for all who need one. Some patients would benefit from short-term application of the ventilator; others would require long term use---something often impossible in crisis situations. Furthermore, appropriate reassessments of patients on a periodic basis would be required in the event that a patient shows evidence of being able to benefit from limited medical resources. The hospital would need to determine, by established criteria such as those listed below, what would be a reasonable amount of time and the appropriate circumstances for any one patient to make use of the ventilator. Once that time was up, it could rightly be given to another.

The crisis in Haiti has brought to light the importance of having policies in place to manage crisis situations. A clear policy would help physicians recognize the need to make careful judgments about who would best be helped by short-term use of the ventilator, and who would require more support than could be given. A policy would also diminish the likelihood of arbitrary decisions being made which might appear as favoritism to some over others. We have provided, below, a set of criteria that could be used to guide such a policy. In all cases, when a decision has been made that a patient will not benefit from limited resources, appropriate palliative care should be provided.

We hope that The National Catholic Bioethics Center can assist the suffering victims of sudden and unexpected crises and their care-givers by bringing the highly developed moral tradition and compassion of the Catholic Church to bear in these heart-breaking situations through these reflections on triage.


Criteria for Determining Whether a Patient is a Candidate for Benefitting from Limited Health Care Resources, Including, but not Limited to the Ventilator, as Well as the Resource of Health Care Personnel.
  • Identify exclusion criteria for the allocation of life sustaining care, including ventilators, e.g.:

    End-stage organ failure; repeated cardiac arrest or un-witnessed cardiac arrest, or unresponsiveness to standard measures to maintain cardiac function; incurable malignancy; severe burn >40%; severe inhalation injury.

  • Assess patients for sequential organ failure (assessment methods that could be used if available are in parenthesis), done initially and at 48 and 120 hours, and daily thereafter, allowing for a re-determination of whether a patient can benefit from the limited resource:

    Respiratory and cardiovascular function (PaO2/FiO2); hemopoietic function (platelet level); hypotension; liver function (bilirubin); kidney function (creatinine); neurological status (Glasgow Coma Scale).

  • Categorize patients based on assessment 1, e.g.:

    Palliate – If there is a presence of any of the exclusion criteria. Furthermore, in the absence of any exclusion criteria there is/are a number of organ failures that the facility pre-determines would present an unsustainable condition for the patient to benefit.

    High Priority for Receiving Limited Resources – Single organ failure (the facility may determine that even a single organ failure is not sustainable in the disaster situation).

    Intermediate Priority – A patient with more evidence of organ failure than the “High Priority” patient, but less than the patient in the “Palliate” category. Based on the decisions made as to what constitutes “Palliate” and what constitutes “High Priority,” this category could be determined to be somewhere between the two categories.

  • Develop Priority for Ventilator Access Criteria, e.g.:

    With the aforementioned continuing assessment, if a patient remains in the “High Priority” category (thus still able to benefit), that patient should not be removed from the ventilator for another “High Priority” or “Intermediate Priority” patient.

    If in the presence of sufficient resources, a patient categorized as in the “Intermediate Priority” category has been ventilated, that ventilator should not be removed for a patient in a “High Priority” category unless the patient in the “Intermediate Priority” category has not improved within a set period of time (e.g., 120 hours).
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1For a model of how Sequential Organ Failure Assessment Scores can be used in critically ill patients see: Serial Evaluation of the SOFA Score to Predict Outcome in Critically Ill Patientsby Flavio Lopes Ferreira, MD; Daliana Peres Bota, MD; Annette Bross, MD; Christian Mélot, MD, PhD, MSciBiostat; Jean-Louis Vincent, MD, PhD, JAMA. 2001; 286:1754-1758.

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Request for Comments on the American Nurses Association Draft Document: Registered Nurses' Roles and Responsibilities in Providing Expert Care and Counseling at the End of LIfe
1/22/2010
Marie T. Hilliard, J.C.L., Ph.D., R.N.

Comments Needed by February 8, 2010

Please Provide Comment on the American Nurses Association Draft Document

Registered Nurses’ Roles and Responsibilities in Providing Expert Care and Counseling at the End of Life

The American Nurses Association is revising its position statement pertaining to end-of-life care, which could impact the understanding of the nurse’s role in states where assisted suicide is legal.

To review the draft document and provide comment see: http://nursingworld.org/MainMenuCategories/HealthcareandPolicyIssues/ANAPositionStatements/Public-Comment.aspx

Summary:

The greatest NCBC concerns rest with the fact that the concept of double effect is not articulated accurately. One can never intend the hastening of death. Thus, the NCBC requests the removal of the phrase “sole intention” and substituting the word “intention” as follows (and in other places within the document when “sole intent” or “sole intention” are used): “While nurses should make every effort to provide comprehensive pain control and symptom relief for patients at end-of-life, it is never ethically permissible for a nurse to administer medication with the sole intention of ending a patient’s life.”

One licitly can anticipate a secondary unintended effect of hastening death (with such things as pain control, used for that purpose) while understanding that it could cause respiratory suppression. However, if one intends hastening death either at the time as intending to alleviate suffering, or worse, by causing death, and thus ending all palliative care, such an action clearly is unethical.

Also, the largest provider of non-governmental health care (thus the largest employer of nurses) is the Catholic Church. There is no reference to the ethical framework which guides care in all Catholic health care facilities (The Ethical and Religious Directives for Catholic Health Care Services). At the same time, there is reference to documents from what was known as the Hemlock Society (Compassion & Choices). For a more comprehensive approach to end-of-life care in this document, there should be a reference to The Ethical and Religious Directives for Catholic Health Care Services: http://www.usccb.org/meetings/2009Fall/docs/ERDs_5th_ed_091118_FINAL.pdf.

Lastly and of increasing importance is the issue of conscience rights of the nurse. Health care professionals are not agents of whatever the patient or state wishes. That is the stuff of the Nuremburg Trials. Health care professionals should be able to have the same conscientious objection as provided for those who can refuse to participate in capital punishment.

For a more detailed analysis of the draft document, with comment, see: http://www.ncbcenter.org/NetCommunity/Document.Doc?id=96

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U.S. Bishops Call for Action on Health Care Reform
1/13/2010

Call of the US Conference of Catholic Bishops for Health Care Reform that Does Not Destroy Lives but Saves Lives

Protect Conscience; Ensure Affordable Health Coverage; Allow Immigrants to Purchase Private Health Insurance

January 12, 2010

The Bishops of the United States have called upon Congress to develop Health Care Reform which:

  • Is a truly universal health policy with respect for human life and dignity;
  • Provides access for all with a special concern for the poor and inclusion of immigrants;
  • Pursues the common good, preserving pluralism including freedom of conscience and variety of options; and
  • Restrains costs and applies costs equitably across the spectrum of payers.

As long-time advocates of health care reform, the U.S. Catholic bishops continue to make the moral case that genuine health care reform must protect the life, dignity, consciences and health of all, especially the poor and vulnerable. Health care reform should not advance a pro-abortion agenda in our country.

  • On November 7, the U.S. House of Representatives passed major health care reform that reaffirms the essential, longstanding and widely supported policy against using federal funds for elective abortions and includes positive measures on affordability and immigrants.
  • On December 24, the U.S. Senate rejected this policy and passed health care reform that requires federal funds to help subsidize and promote health plans that cover elective abortions. All purchasers of such plans will be required to pay for other people's abortions through a separate payment solely to pay for abortion.
  • Outside the abortion context, neither bill has adequate conscience protection for health care providers, plans or employers.
  • These two bills must now be combined into one bill that both the House and Senate will vote on in final form. Provisions against abortion funding and in favor of conscience protection, affordability, and immigrants' access to health care must be part of a fair and just health care reform bill, or the final bill must be opposed.

ACTION: Contact your Representative and Senators today by e-mail, phone or FAX.

  • To send a pre-written, instant e-mail to Congress go to www.usccb.org/action.
  • Call the U.S. Capitol switchboard at: 202-224-3121, or call your Members' local offices.
  • Contact info can be found on Members' web sites at www.house.gov & www.senate.gov.

SUGGESTED MESSAGE TO THE HOUSE:

"I am pleased that the House health care bill maintains the longstanding policy against federal funding of abortion. I urge you to work to uphold essential provisions against abortion funding, to include full conscience protection and to assure that health care is accessible and affordable for all. Until and unless these criteria are met, I urge you to oppose the final bill."

SUGGESTED MESSAGE TO THE SENATE:

"I am deeply disappointed that the Senate health care bill fails to maintain the longstanding policy against federal funding of abortion and does not include adequate protection for conscience. I urge you to support essential provisions against abortion funding, similar to those in the House bill. Include full conscience protection and assure that health care is accessible and affordable for all. Until and unless these criteria are met, I urge you to oppose the final bill."

WHEN: Immediately. Votes in the House and Senate on the final bill are expected in January.

For more information and to take action see:
www.usccb.org/healthcare/

Act today! Thank You!

 

Health Care Reform: Betraying the Unborn for a Few Pieces of Silver
12/23/2009
Marie T. Hilliard, J.C.L., Ph.D., R.N.

The use of tax payer dollars to pay for the death of the unborn has been advanced in the Senate by several “pro-life” Democrats, who appear to have yielded to political pressures, and perhaps even to the promise of economic benefits for their states. After putting forth an amendment that would have protected the unborn, Senator Ben Nelson (D-Nebraska) has joined the ranks of Senator Mary Landreau (D-Louisiana) in assuring the sixty votes needed by Senate Majority Leader Harry Reid (D-Nevada) for the Senate to pass landmark federal legislation supportive of American taxpayers’ funding of abortion on demand even as it seeks to make health insurance coverage available to all Americans.

Ultimately all persons will be required to have health insurance. Enrollees can choose from plans within health care Exchanges that meet their needs. However, if that plan also includes abortion coverage, the enrollee must pay for that coverage, whether they want it or not. Despite all of the proposed accounting gymnastics to factor out the premiums and costs for abortion (such as enrollees being required to write a separate premium check to pay for abortion coverage), for the first time in our nation’s history, federally-supported, taxpayer-funded health care plans will provide abortion on demand. One small bit of consolation is that there are some concessions to persons of conscience. States can opt out of providing abortion coverage, and although conscience provisions fall short of the House-passed bill in protecting health care providers who are resolute in not cooperating in the evil of abortion, there are some protections for providers and health care facilities of conscience. Still, all persons will be required to have health insurance, and employers will be fined for not offering such insurance. Furthermore, in states which choose to provide abortion coverage, an enrollee may select from the Exchange options a plan that also includes abortion coverage. Despite the faux mechanisms of separate checks and separate payroll deductions for abortion coverage, employers may be required to facilitate such payments through payroll deductions. Lastly, there is no provision allowing institutions of conscience to provide and purchase health coverage consistent with their moral and religious convictions.

The vote in the Senate is expected by Christmas eve. It is a sad irony that as we celebrate the birth of our Savior, the halls of Congress already are planning His death, again for a few “pieces of silver.”

For information on how to have your voice heard go to: http://www.nchla.org/issues.asp?ID=51.

Copenhagen and Catholic Teaching
12/21/2009

Stephen Napier, Ph.D

December 21, 2009. As of late December 2009, the United Nations’ Climate Change Conference in Copenhagen is still underway. In the wake of the conference, climate change and global warming has become a debatable issue – largely in part due to the recent “Climategate” scandal where a series of emails were published that called into question the scientific validity of the claim that global warming is caused by human activity.1 In this debate, some scoff at the idea of governmental regulation of pollution, others are saying that we have to quell emissions immediately and drastically, and if this involves severely limiting some of our liberties, then so be it. But there is a surprising confusion in this debate. Confusion persists among politicians who may be “pro-life” but are not sympathetic to environmental concerns, or at least not government regulation of industry to curb pollution. And likewise, there are politicians who favor legislation aimed to protect our natural resources but are also committed to a worldview that is actually pernicious to human life – especially young human life. (This is probably due to a perceived link between protecting the environment and over-population.) Consequently, some clarifications are in order about what the Catholic Church teaches on this issue.

First, Catholic teaching is committed to the idea of caring for the environment, protecting our natural resources, and encouraging a diverse eco-system (i.e., endangered species ought to be protected). Recently (December 15, 2009), Pope Benedict XVI in his World Day for Peace address says that our commitment to the created order stems from our commitment to our fellow persons.

The Church has a responsibility towards creation, and she considers it her duty to exercise that responsibility in public life, in order to protect earth, water and air as gifts of God the Creator meant for everyone, and above all to save mankind from the danger of self-destruction. ... Our duties towards the environment flow from our duties towards the person, considered both individually and in relation to others.2
Environmental degradation, pollution, food scarcity etc. obviously contribute to starvation, ill-health, and in general, a failure to promote integral human development worldwide. Quoting Benedict XVI again,
Can we remain indifferent before the problems associated with such realities as climate change, desertification, the deterioration and loss of productivity in vast agricultural areas, the pollution of rivers and aquifers, the loss of biodiversity, the increase of natural catastrophes and the deforestation of equatorial and tropical regions? Can we disregard the growing phenomenon of "environmental refugees", people who are forced by the degradation of their natural habitat to forsake it - and often their possessions as well - in order to face the dangers and uncertainties of forced displacement?3
Clearly, there is a moral imperative to care for the environment and this is rooted in the most basic moral commitments we have to ourselves and others: justice and charity.

 

A second point of clarification concerns the reason upon which our duty to preserve and protect the environment is based. Fundamentally we owe it to each other. When pollution of either air or water, and other forms of environmental degradation inevitably lead to the destruction of human life, we have failed to act with sobriety and solidarity with our fellow persons.

A third and fundamental point of clarification is to observe that the moral reason for preserving and protecting the environment pertains to our duties to act charitably and justly towards our fellow human beings. Solidarity demands sobriety in our lifestyle. Pope Benedict notes, “This means that technologically advanced societies must be prepared to encourage more sober lifestyles, while reducing their energy consumption and improving its efficiency” and “Specifically, they [our ecological crises] call for a lifestyle marked by sobriety and solidarity,…”4 These crises also demand far-sighted policies absent the “pursuit of myopic economic interests.” The cost to society and to the environment needs to be taken into account. The justification for our caring for the environment stems from the respect we owe to ourselves and to other persons.

Notice how different this reasoning is to those who espouse a bio-centric worldview where humans are creatures along a continuum. Those creatures having the most value are those who possess higher-order consciousness or other exercisable mental capacities. An adult monkey, on this view, is more valuable than an immature human being. Such disregard for the value, worth, and distinctiveness of human life is pernicious to a comprehensive life-ethic. “In the name of a supposedly egalitarian vision of the "dignity" of all living creatures, such notions end up abolishing the distinctiveness and superior role of human beings.” 5Locating the value of things in what they can do leads to disastrous consequences and is ultimately morally repugnant. Human beings have their inherent dignity and worth in virtue of what we are, not in virtue of what we can do or perform. In fact, a worldview that locates the value of persons in what they can do means that a person’s value comes and goes with what abilities they can exercise. Upon such a flimsy basis for worth, no moral duty can be grounded, at least, not one that would justify sacrificial action that the current environment crises require of us. In the end, the bio-centric worldview is self-defeating when it asserts a moral duty to protect the environment and save people’s lives when the value of people’s lives is not intrinsic or inherent in them. An ethic that locates the value of people in what they are (namely, what is intrinsic and inherent in them), naturally enough grounds certain absolute moral duties to care for and protect them.

1 See the article and commentary by Richard Stuebi, “On Climate Gate,” The Huffington Post, available at: http://www.huffingtonpost.com/richard-stuebi/on-climate-gate_b_385502.html.
2 Pope Benedict XVI, “Message for World Day of Peace (December 15, 2009),” http://seraphin.vatican.va/news_services/press/vis/dinamiche/b1_en.htm.
3 Ibid.
4Ibid.
5Ibid.
The Revision of Directive 58 of Ethical and Religious Directives for Catholic Health Care Services
12/17/2009
Edward J. Furton, Ph.D

December 16, 2009.  After careful deliberation, the United States Conference of Catholic Bishops has revised directive 58 of the Ethical and Religious Directives for Catholic Health Care Services (2001). Here is the language of the new directive:

In principle, there is an obligation to provide patients with food and water, including medically assisted nutrition and hydration for those who cannot take food orally. This obligation extends to patients in chronic and presumably irreversible conditions (e.g., the "persistent vegetative state") who can reasonably be expected to live indefinitely if given such care. Medically assisted nutrition and hydration become morally optional when they cannot reasonably be expected to prolong life or when they would be "excessively burdensome for the patient or (would) cause significant physical discomfort, for example resulting from complications in the use of the means employed." For instance, as a patient draws close to inevitable death from an underlying progressive and fatal condition, certain measures to provide nutrition and hydration may become excessively burdensome and therefore not obligatory in light of their very limited ability to prolong life or provide comfort.

The bishops also deleted language in the introduction to Part V, “Issues in Care for the Dying,” that indicated the need for “further reflection” on whether nutrition and hydration should be provided for patients in a persistent vegetative state... 

(click to read the complete text)

 

NCBC Opposes Rejection of Nelson-Hatch Amendment in Senate Version of Health Care Reform (H.R. 3590)
12/10/2009

December 10, 2009. The National Catholic Bioethics Center received with dismay the news that the US Senate rejected the Nelson-Hatch Amendment (identical to the Stupak-Pitts Amendment in the House version of Health Care Reform legislation), with a vote of 54-45. In fact, the current Senate version of this legislation requires each state to offer a plan that includes abortion coverage. It also provides tax-support of enrollment costs for private plans that cover abortions. Although Senator Henry Reid (D-NV) has indicated a compromise may be crafted to omit the community health insurance option (public option), the current proposal authorizes the Secretary of Health and Human Services to allow abortion coverage in a public option. Even though there is to be a factoring out of the cost of those procedures in the premiums, abortion will be paid for by tax dollars within the options that remain. In reality, then, there is no prohibition of government support for abortion. Rather, the proposal mandates abortion coverage in each region of the country. Also, while the bill prohibits limiting access to end-of-life care, and protects the consciences of health care workers regarding participation in assisted suicide, there is no prohibition against the funding of assisted suicide.

Lastly, but very significantly, while Senator Reid has indicated openness to a compromise which would remove the provision of a public option, the intended compromise will empower the government to reinstate a public option in a final bill by action of a conference committee if private plans fail to meet certain goals. Conference committees are used to rectify any discrepancies between House and Senate versions of legislation.

A public option offered at lower cost creates a strong incentive for private employers to participate, easily leading to the “public option” becoming a national plan. Should that occur, providers would potentially face legal mandates to supply morally illicit procedures, especially in geographic areas where the only health care provider opposes such anti-life procedures.

There is a clear need to remain vigilant in expressing opposition to publicly funded assaults on human life. As the largest provider of non-governmental health care in the United States, Catholic health care is likely to be the only local provider of care in some geographical areas, and thus may become subject to morally-unacceptable mandates in the delivery of care.

Swift action is needed in contacting congressional members through e-mail, phone calls or faxed letters. To view informational sources from the USCCB and to take action go to http://www.nchla.org/issues.asp?ID=51. Our country is at a crossroads, not only in terms how our most vulnerable members will be treated, but also in terms of the future of conscience protections.

NCBC Opposes Omission of Pro-Life Provisions in Senate Version of Health Care Reform (H.R. 3590)
11/20/2009

November 20, 2009. The National Catholic Bioethics Center received with dismay the US Senate version of Health Care Reform legislation which does not contain the provisions of the Stupak-Pitts Amendment of the House version of the Health Care Reform proposal (H.R. 3962). In fact, the Senate version of this legislation requires each state to offer a plan that includes abortion coverage. It also provides for tax-support of enrollment costs for private plans that cover abortions. It authorizes the Secretary of Health and Human Services to allow such coverage in the public option. For both the public and private options there is to be a factoring out of the cost of those procedures in the premiums; but the overall public and private option plans that support abortion will be paid for by tax dollars. Thus, in reality this does not represent a prohibition of government support of abortion, especially since the proposal mandates abortion coverage in each region of the country. In addition, the bill prohibits limiting access to end-of-life care, while protecting the consciences of health care workers and entities regarding participation in assisted suicide. However, there is no prohibition against the funding of assisted suicide. Conference committees are used to rectify any discrepancies between House and Senate versions of legislation. Herein rests the need to be vigilant in continuing to express opposition to publicly funded assaults on human life.  
 
Lastly, but very significantly, the creation of the community health insurance option (public option) also raises potential threats to conscience. A pubic option creates a strong incentive, if not a mandate, for private employers, to participate in such an option. Thus, the exception easily could become the national plan. Providers then may be faced with legal mandates to supply morally illicit procedures, especially in areas where the only provider opposes anti-life measures. As the largest provider of non-governmental health care in the United States, Catholic health care is likely to be the only local provider of care in some geographical areas, and thus may become subject to morally-unacceptable mandates in the delivery of care.  
 
Swift action is needed in contacting congressional members through e-mail, phone calls or faxed letters. To take action go to http://www.nchla.org/issues.asp?ID=51. Our country is at a crossroads, not only in terms how our most vulnerable members will be treated, but also in terms of the future of conscience protections.
NCBC Advises Caution Despite Pro-Life Protections in H.R. 3962
11/9/2009

November 9, 2009. The National Catholic Bioethics Center applauds the 240 members of Congress who supported The Stupak-Pitts Amendment in the US House of Representatives’ Health Care Reform proposal. This amendment would permanently prevent the funding of abortion within the public option of the plan, consistent with the provisions of the Hyde Amendment.  
 
Also consistent with these same provisions, the Stupak-Pitts Amendment would prohibit the use of public funds for premiums paid to private plans that include abortion. Furthermore, this amendment also contains strong conscience protections for health care workers. 
 
However, the amendment does not provide such protections for pharmacists in the dispensing of abortifacients, nor for private insurance companies, who will be prohibited from discriminating against abortionists who wish to be contracted providers.  
 
The greatest concern rests in the fact that there is no guarantee that the final version of the Health Care Reform legislation will include these pro-life provisions. Conference committees are used to rectify any discrepancies between House and Senate versions of legislation. Two Senate Committees have approved bills that would include public funding of abortion; and the Senate Finance Committee rejected conscience protections for health care workers. Herein rests the need to be vigilant in continuing to express opposition to publicly funded assaults on human life.  
 
Caution also must be exercised in embracing the end-of-life care parameters of the proposals. End-of-life care planning consultations exclude assisted suicide. However, as states embrace and redefine “assisted suicide” as “death with dignity,” and disallow a death certificate to list suicide as the cause of death, consultation for such purposes may be paid for under the plan. 
 
Lastly, but very significantly, the retention of a “public option” also raises potential threats to conscience. A pubic option, for which states will be taxed whether they “opt in” or not, creates a strong incentive, if not almost a mandate, for states, as well as private employers, to participate in such an option. Thus, the “option” easily could become the national plan. Providers then may be faced with legal mandates to supply morally illicit procedures, especially in areas where the only provider opposes anti-life procedures. As the largest provider of non-governmental health care in the United States, Catholic health care is likely to be the only local provider of care in some geographical areas, and thus may become subject to morally-unacceptable mandates in the delivery of care.  
 
The NCBC applauds the passage of the Stupak-Pitts Amendment, while urging continued efforts to assure that all provisions that have an impact on health care provide for the life, dignity, well-being, and conscience rights of all persons.
The National Catholic Bioethics Center Supports the People of Maine in Protecting the Very Essence of Marriage
11/4/2009

November 4, 2009. The people of Maine have spoken, joining thirty other states whose citizens, when given the chance to speak through ballot initiatives, have embraced the objective moral order in their recognition of what constitutes marriage. The National Catholic Bioethics Center congratulates them for assuring that their voices were heard and for their vote to protect the very essence of marriage. The NCBC affirms that all persons have innate dignity, regardless of their sexual practices. However, societal recognition of marriage is based upon centuries of understanding concerning the philosophical, social and physical nature of marriage. Such a union receives the protection of law, not because any person can claim such a right; after all, no one has the right to marry their daughter or to have multiple spouses. Marriage receives legal status because of the benefits society receives from a permanent and exclusive union of one man and one woman, and the children they will engender and educate to be productive citizens. No other social construct is equal to this union. The people of Maine have affirmed the value of protecting this sacred institution; and we congratulate them.
NCBC Supports USCCB's Position on Health Care Reform and Asks Advocates for the Vulnerable to Let their Voices be Heard
10/30/2009

October 30, 2009. Consistent with the position of the US Conference of Catholic Bishops The National Catholic Bioethics Center supports a health care proposal which is truly universal with respect to protecting human life and dignity. This requirement relates not only to the absolute imperative to exclude provisions that violate human life and dignity, but also to the need to protect conscience rights. Not only should taxpayers not be required to pay for immoral procedures, but provisions also must exist to prohibit mandates on providers. Excluding such provisions is contrary to the integrity of a free and pluralistic society. The NCBC believes that immoral mandates will be imposed if there is no explicit conscience provision, especially in the presence of a public option. 
 
Thus, it is essential that longstanding and widely supported federal restrictions on abortion funding and mandates, and protections for rights of conscience, explicitly be included in any health care reform legislation. No current Congressional proposal has such provisions. The NCBC supports the position of the USCCB that if acceptable language in these areas cannot be found, vigorous opposition to the proposal must occur.  
 
There is a proposed amendment (The Stupak Amendment) that if adopted would address essential pro-life concerns on abortion funding and conscience rights in the House version of the health care reform bill. Since votes on health care reform proposals in Congress could come as soon as early November, the Bishops of the United States have asked that each person contact their Representative and Senators immediately, urging them to amend proposed legislation with pro-life amendments. For more information go to http://www.usccb.org/healthcare/. Parishes across the country will be invited to make use of educational materials, including a web address that allows parishioners to send an e-mail message to Congress with a click of a button.  
 
The bishops have asked for swift action in contacting congressional members through e-mail, phone calls or faxed letters. To take action go to http://www.nchla.org/issues.asp?ID=51. Our country is at a crossroads, not only in terms how our most vulnerable members will be treated, but also in terms of the future of conscience protections.
Cardinal Justin F. Rigali Issues Statement for Respect Life Sunday (2009)
9/30/2009

September 30, 2009. Cardinal Justin Rigali, Chair of the USCCB Pro-Life Committee released a statement on September 29, 2009 for Respect Life Sunday, which states, in part: “despite the opposition of 67% of Americans to taxpayer-funded abortion, all current health care proposals being considered by Congress would allow or mandate abortion funding, either through premiums paid into government programs or out of federal revenues.”  
 
Noting that the unborn are not alone in being under attack in current proposals, Cardinal Rigali called for health care that recognizes the humanity of the immigrant. “How can a just society deny basic health care to those living and working among us who need medical attention? It cannot and must not.” [http://www.usccb.org/comm/archives/2009/09-189.shtml] To have your voices heard on this and other important issues impacting the sanctity of human life go to http://www.nchla.org/issues.asp?ID=51.  
Evaluating Health Care Proposals in Light of Caritas in Veritate (1)
8/28/2009

Marie T. Hilliard, Ph.D., J.C.L., R.N.
NCBC Dir of Bioethics and Public Policy
 

 
August 28, 2009. Nothing is as intimately linked to fostering affordable health care as a moral approach to a global economy. On June 29, 2009 Pope Benedict XVI issued his third encyclical, Caritas in Veritate (“Love in Truth”), offering the world a means to evaluate secular economic and social systems through the moral lenses of charity and truth. While commemorating the fortieth anniversary of Paul VI’s encyclical, Populorum Progressio,2 this new social encyclical focuses, not on the development of peoples, but integral human development. Thus, economic activity is called to be people-centered: “This needs to be directed towards the pursuit of the common good, for which the political community in particular must also take responsibility.” (N.36)  
 
While the encyclical has as one of its major themes the environment as the created world entrusted to human beings for the good of everyone, it emphasizes that charity is at the heart of the Church’s social doctrine. But as its title suggests, such charity must be based in truth: “a Christianity of charity without truth would be more or less interchangeable with a pool of good sentiments, helpful for social cohesion, but of little relevance.”(N. 4) In so stating, the encyclical renounces relativism and extensively addresses the fundamental rights to religious freedom and to life. Benedict links subsidiarity to freedom: “In order not to produce a dangerous universal power of a tyrannical nature, the governance of globalization must be marked by subsidiarity, articulated into several layers and involving different levels that can work together.”(N. 57) Most notably, Benedict states: “When a society moves towards the denial or suppression of life, it ends up no longer finding the necessary motivation and energy to strive for man's true good.” (N. 28) He also recognizes that the attacks upon life spare no generation: “To the tragic and widespread scourge of abortion we may well have to add in the future — indeed it is already surreptitiously present — the systematic eugenic programming of births. At the other end of the spectrum, a pro-euthanasia mindset is making inroads as an equally damaging assertion of control over life that under certain circumstances is deemed no longer worth living. Underlying these scenarios are cultural viewpoints that deny human dignity.” (N. 75) Thus, while this new social encyclical has not been focused on health care reform, it provides an excellent moral measuring stick to analyze federal health care reform proposals.3  
 
It is undeniable that the Federal Health Care Reform Proposal HR 3200 includes a provision for publicly funded abortions. It would mandate that “essential benefits packages” be provided in every region of the country. These benefits, as defined in Section 122, include provisions similar to those included in the Medicaid Act. Courts have construed such Medicaid provisions to include abortion: “abortion fits within many of the mandatory care categories, including ‘family planning,’ ‘outpatient services,’ inpatient services,’ and physicians’ services.’”4 Every meaningful amendment offered to remove abortion from these packages has failed. In fact, the Capps Amendment to the bill, passed by the House Energy and Commerce Committee, specifically authorizes the provision of abortion. Federal funding of abortion by the US Department of Health and Human Services would be in violation of the Hyde Amendment.5 However, any health care reform legislation must specifically invoke the Hyde Amendment on all options within the bill to assure its applicability, which it does not. Yet proponents of HR 3200 insist that provisions for federal funding of abortion are not included in the bill. While there currently are two provisions within the proposal protective of the consciences and religious liberty of health care providers, mandates inevitably will follow. This is particularly true in regions of the country where Catholic health care is the only provider in a region. Thus, not only is the right to life in great jeopardy, but also the right to religious liberty. These violations of rights will be by the very hand of a government charged to protect them. 
 
Receiving great attention has been concerns related to the care available to the elderly, those with disabilities, and veterans. These concerns are not only related to the potential for the rationing of care. They also are based upon the specific provisions of the proposal that could be seen as encouraging those deemed to be less productive members of society, based on “quality of life” parameters, to deny themselves care which may be beneficial. - Even worse, they may be encouraged to refuse beneficial treatments because they come to be convinced that they are a burden to family and loved ones.6  
 
One is left to ask, do such proposals advance the common good? The answer is in Caritas in Veritate. All the hallmarks of a sound health care reform policy are contained within Caritas in Veritate: integral human development; fundamental rights to life and religious freedom; charity with truth; humanistic synthesis; the common good; earth as a gift to humanity to use and protect; civilizing the economy; subsidarity; a person-based and community oriented culture; people-centered development programs; cooperation of the human family; recognition that every migrant is a human person; and bioethics and human responsibility in human technology. As the encyclical states, in charity and truth, “when a society moves towards the denial or suppression of life, it ends up no longer finding the necessary motivation and energy to strive for man’s true good.” (N.28) 
 
 
_____________________________________ 
 
1Benedict XVI, Encyclical Letter CARITAS IN VERITATE, June 29, 2009. 
2Paul VI, Encyclical Letter Populorum Progressio, 41: loc. cit., 277-278. 
3For an excellent specific guide for Catholics in evaluating federal health care reform proposals see Helen M. Alvaré, J.D., and E. Christian Brugger, Ph.D., “HEALTH CARE PROPOSALS PENDING BEFORE CONGRESS: Ethical Questions A Catholic Should Ask,” Culture of Life E-Briefs, August 19, 2009, http://culture-of-life.org//content/view/582/96/.  
4Planned Parenthood Affiliates v. Engler, 73 F.3d 634, 636 (6th Cir. 1996). 
5“The Hyde Amendment is a rider to the annual Labor/Health and Human Services (HHS)/Education appropriations 
bill which prevents Medicaid and any other programs under these departments from funding abortions, except in limited cases. It is named after Rep. Henry J. Hyde (R-IL) who, as a freshman legislator, first offered the amendment.” See www.nchla.org/datasource/ifactsheets/4FSHydeAm22a.08.pdf.  
6Robert Brody, et al., Your Life, Your Choices, www.rihlp.org/pubs/Your_life_your_choices.pdf.  
 


 
Belmont Abbey College Accused of Discrimination in Health Care Coverage
8/12/2009
Stephen Napier, Ph.D.
NCBC Ethicist


August 12, 2009. On August 5, 2009, Belmont Abbey College in North Carolina received a letter from the Equal Employment Opportunity Commission (EEOC). The Letter was accompanied by a ruling which stated that Belmont Abbey College had discriminated against women when it excluded coverage for prescriptive contraceptives from its health care plan. Prior to a review of their policy, the College was unaware that their plan covered such immoral drugs and devices. Belmont Abbey is a Benedictine college and committed to preserving and strengthening its Catholic identity in its mission and values. Recognizing that it would be immoral to continue to offer such products that were themselves intrinsically immoral the college requested the exclusion of coverage.  
 
Eight faculty members filed a complaint against the college claiming that the exclusion of such coverage discriminated against women. After initially dismissing the complaint in a March 2009 ruling, the EEOC reversed its decision and stated that “By denying prescription contraceptive drugs, [Belmont Abbey College] is discriminating based on gender because only females take oral contraceptives. By denying coverage, men are not affected, only women.” 1  
 
Complicating and calling into question the EEOC ruling is the fact that in North Carolina there is a religious exemption for “religious employers.” A religious employer is defined as an employer who satisfies all of the following:  
 
(1) The entity is organized and operated for religious purposes and is tax exempt under section 501(c)(3) of the U.S. Internal Revenue Code. 
(2) The inculcation of religious values is one of the primary purposes of the entity. 
(3) The entity employs primarily persons who share the religious tenets of the entity.2  
 
One can quibble with the requirements here, for example, (3) seems completely irrelevant in identifying a religious employer. The composition of the employees may hold radically different views from the employer, and yet the religious views of the employer are well known and clearly defined. Furthermore, a strict interpretation of (3) will force religious employers only to hire likeminded employees since the State would then, and only then, allow the institution to act consistent with its religious commitments. In practice, however, this would have the effect of cloistering off religious institutions from secular involvement, further bifurcating our society and closing off dialogue – effects exactly opposite of what the anti-discrimination laws were meant to accomplish. Aside from these complaints, there are grave defects in the reasoning of the EEOC.  
 
First, nowhere is discrimination defined in the EEOC opinion. In fact, discussions of this sort are hard to carry out without a definition. One could easily have argued that the faculty members who complained were discriminating against their Catholic employer by rejecting Catholic teaching on the use of contraceptives.  
 
Second, the reasoning offered by EEOC claims that women would be discriminated against since they are the only ones who would use prescriptive contraceptives. This is curious reasoning. Would objecting to abortion be discriminatory since only women suffer abortions? Would objecting to speech opposing same-sex marriage discriminate against heterosexuals since they likely are the primary ones engaging in such speech? The answer is a resounding “no!” in both cases. The point is, claiming that a policy, by its very nature, does not have universal applicability in itself is not a sufficient justification for the action being discriminatory as illustrated in the above two examples. One needs to focus on what is being objected to, and whether the reasons for objecting to it are good reasons. This was clearly not done in the EEOC-Belmont case. When one considers Catholic teaching with regard to the nature of marriage and the meaning of conjugal love, then it becomes obvious that one would oppose the use of contraceptives or direct sterilizations as an evil. But by this ruling, Belmont Abbey College is prevented from acting in a manner consistent with its religious and moral commitments.  
 
__________________________________________________ 
 
1. EEOC Letter Dated July 30, 2009. Charge no. 430-2008-00962. One may access the news report on this here, which also includes a link to the actual letter, “Rebuke for Religion-Driven Policy,” .  
2. 58 3 178. “Coverage for prescription contraceptive drugs or devices and for outpatient contraceptive services; exemption for religious employers.”
A Response to the Federal Health Care Reform Proposal HR 3200 Health Care a Right: Even for the Elderly, Infirm, those with Disabilities, and the Unborn
7/31/2009
Marie T. Hilliard, Ph.D., J.C.L., R.N.
Director of Bioethics and Public Policy


July 31, 2009. Christ’s healing ministry directs the Christian’s concern for the sick, particularly the vulnerable, and those who have little or no voice in decisions pertaining to their health care. Cognizant that all of human kind are created in the image of God, the human family must share in the healing ministry manifested by Jesus Christ. The Catholic Church, as the largest provider of non-governmental health care and social services in this country, has responded to this Gospel imperative. However, government has continually intruded in the exercise of this ministry, through mandates that impact the free exercise of religion of those involved in this delivery of health care. Such intrusions have escalated, threatening the well-being of the most vulnerable, most recently by some of the provisions contained in the federal Health Care Reform proposal. The issue is not whether all persons deserve access to affordable health care; the issue is who will decide, particularly for vulnerable populations, what health care is mandated, received, and publicly funded. Intense negotiations to produce health care reform legislation have been taking place in Congress, most recently in the Senate Finance Committee and in the House Energy and Commerce Committee. With the August Congressional recess upon us, constituents have the opportunity to express their concerns to their members of Congress before a final vote occurs in the Fall. The message to Congress is: “Please support amendments that exclude abortion mandates, prevent federal funding of abortion, uphold state laws that regulate abortion, protect the conscience rights of health care providers, and protect the elderly, the infirm, and persons with disabilities from rationing as well as mandates impacting their end-of-life care.” Click for more information

Analysis of Current Provisions: HR 3200. (clicking on link will open the text of the bill)
 
Abortion Mandate, Funding, Violations of Conscience: Federal law has long excluded most abortions from federal employees’ health benefits plans and places no requirement on private plans. This could radically change. Current provisions stipulate that there is at least one plan in every region of the country that covers abortion. While public monies will not pay directly for abortion, health plans would receive federal subsidies to help pay enrollment premiums for low-income people, for plans that will cover abortion. Furthermore, provisions such as those requiring timely access to all benefits covered by qualified health plans could be used by courts to override state laws regulating abortion. Thus, it should be clear in the legislation that such laws will not be preempted. Also, federal laws protective of conscience rights of health care providers will be in jeopardy, particularly with this requirement of regional access to abortion. The conscience rights of parents in terms of vaccination requirements could be impacted. There even are provisions for “increasing intervals between pregnancies” of those enrolled (See Sections 1711-1714). Congress should ensure that this legislation will maintain protections for conscience rights. 
 
Rationing and Mandatory End-of-Life Care: The proposal creates a government committee determining allowable benefits and treatments, and restricts enrollment in this plan of persons with special needs. The latter is an attempt to interface with health plans for those with special needs included under the Social Security Act, the outcome of which remains unclear. Hospitals will be penalized for government-deemed preventable readmissions. This constitutes rationing of care. Eligible health care plans will be required to offer Medicare recipients the opportunity to engage in advanced care planning consultations every five years, or more often if there is a change in health status. This could result in actionable medical orders to exclude life affirming and proportionately beneficial care, within an unforeseeable circumstance. Such orders will remain actionable across continuums of care and across all health care settings. Reasonable medical interventions, including certain medications, could be excluded from the plan of care. Persons could inadvertently agree to dehydrate or starve unto death, when reasonable use of assisted nutrition and hydration would be beneficial within the unanticipated health care scenario. With the aforementioned rationing, decisions concerning end-of-life care could be taken away from patients and their families. (See Sections 122, 123, 203, 1151, 1176, 1177, 1233, 1751) 

NIH Guidelines for Human Embryonic Stem Cell Research Ignore Public Opinion and the Human Cost
7/9/2009

July 9, 2009. July 7, 2009, marked a major ethical shift in United States government-funded research. The National Institutes of Health (NIH) implemented President Obama’s executive order, Removing Barriers to Responsible Scientific Research Involving Human Stem Cells (March 9, 2009). The new NIH Guidelines authorize taxpayer funding of research on human embryonic stem cells (hESCs) harvested from human embryos as of July 7, 2009, or from earlier sources, both domestic and foreign, with the approval of the Working Group of the Advisory Committee to the Director.  
 
Historically, federal funding of research on humans from which they derived no benefit has been prohibited. Now the destruction of human beings in their earliest and most vulnerable stages is promoted and funded by federal taxpayer dollars. Lengthy explanations exist as to how informed consent from the embryo donors will be obtained, and about how conflicts of interest will be handled, but no mention is made about the rights of the embryos themselves. In fact, the guiding principles are listed as follows:  
 
1. Responsible research with hESCs has the potential to improve our understanding of human health and illness and discover new ways to prevent and/or treat illness. 
2. Individuals donating embryos for research purposes should do so freely, with voluntary and informed consent. (p. 15).  
 
No mention is made of the destruction of human life that these Guidelines support. Such a lacuna fails to represent the breadth of reasoned public opinion on this issue.  
 
This egregious violation of human life is exacerbated by the fact that there are ethical alternatives (namely induced pluripotent stem cells) that share the same plastic-like properties as embryonic stem cells. Second, there exists wide consensus that stem cell research using adult stem cells, or induced pluripotent stem cells, or stem cells from cord blood should be used and funded. There is not wide consensus on the use of embryonic stem cells. To say that there is, is to ignore a sector of the population and more importantly, the arguments they have against such research. Third, the Guidelines open up funding for research that has yet to show any distinctive therapeutic benefit in humans. Such use of funds is irresponsible.  
 
The NCBC is grateful that the NIH responded to its call for more explicit prohibitions against inducements of parents to donate embryos, and to NCBC’s support of prohibitions against expanding the sources of embryos to be destroyed by this research. However, these Guidelines represent a break in a tradition of respecting human subjects, especially the most vulnerable of human beings, who have no voice. Human embryos are human beings in their earliest stage of development. Their value is not dependent upon age, genetic makeup, development or maturity. Discrimination against these human beings is no less reprehensible and arbitrary than any other form.
The Compensation of Women for Egg Donations for Research Purposes
7/6/2009
Rev. Alfred Cioffi, PhD, STD
NCBC Ethicist


July 6, 2009. On June 11, 2009, New York became the first state to pay women for their eggs.

New York’s Empire State Stem Cell Board (ESSCB) has approved the Resolution regarding Recommended Standards for the Compensation of Women Donating Oocytes Solely for Research Purposes. The plan is to pay women up to ten thousand dollars for each harvest of their eggs. The State of New York considers this necessary, since women are not coming forth with altruistic egg donations in sufficient numbers to supply research demands. 
 
The resolution states that a woman’s eggs are to be used “solely for research purposes.” The research, however, requires embryonic stem cells. This means that after harvesting, the women’s eggs will be fertilized in vitro (in a laboratory), and the resulting human embryos will be grown in an incubator for about a week and then destroyed, so that the embryos’ stem cells can be harvested for research in turn. In other words, these human beings will be engendered for the sole purpose of lethal research―and obviously without the embryos’ consent. Needless to say, this is gravely immoral and inhumane. 
In addition, this action by the ESSCB has a great potential to exploit women. Given the current economic situation, how many women will not feel pressured to undergo the painful, risky, and occasionally fatal procedure of egg harvesting? And won’t the legislation exploit poor women in particular? On what basis, by what principles, will the ESSCB protect a poor woman from being exploited by this offer of up to $10,000 for her eggs? Truly, the ESSCB has put itself in an impossible situation: It offers to pay women for their eggs but considers disqualifying poor women from the offer to avoid exploiting them. Yet poor women are precisely the ones who would benefit most from the sale of their eggs. If the ESSCB disqualifies poor women from the program because of their tendency to take higher health risks for money, it is discriminating against the poor; if it does not, it is endangering the health and even the lives of the poor disproportionately. 
 
Even the very notion of “compensating women for their donation,” as fair and just as this might sound at first, betrays an underlying contradiction: if a donation is paid for, is it a donation? Notice that part of the “compensation” is for such things as risks, burdens, discomfort, pain, and suffering. How much money are these things worth? Isn’t it, rather, that seeking to put a price tag on a woman’s pain and suffering―or, indeed, risking her very life for no medical reason―further objectifies women, turning them into egg-producing machines that can be marketable for a price? 
 
The National Academy of Sciences and many universities and institutes (Rockefeller University, Cornell University, Sloan-Kettering Institute) prohibit paying women for 
their eggs. 
 
Paying women for their eggs is, in fact, a form of organ and tissue trafficking. By adopting the ESSCB Resolution, the State of New York has agreed to engage in such trafficking, and with taxpayers’ money.
Obama’s Declaration of June as “Lesbian, Gay, Bisexual, Transgender (LGBT) Pride Month”
6/17/2009

June 17, 2009. On June 2, 2009, President Barack Obama declared “June Lesbian, Gay, Bisexual, Transgender (LGBT) Pride Month”. And with this declaration he has given us an opportunity to comment on aspects of the President’s position.  
 
The declaration begins by noting certain injustices committed against individuals who identify themselves as belonging to a group called the “LGBT community”. The acronym refers to a wide range of sexual dysfunctions, including homosexual activities, cross-dressing, indiscriminate sex with men and women, and mutilating surgery that attempts to change a man into a woman or a woman into a man. Each of these activities raises serious moral concerns. In keeping with the teachings of our faith, we love the sinner and hate the sin, but we certainly do not believe that we should celebrate these unhealthy activities or take pride in them. 
 
The NCBC agrees that any harm, ridicule or harassment aimed at such persons – any person for that matter – ought to be repudiated. In this sense Obama’s position is accurate. The declaration then notes the achievements that such individuals have made to the betterment of American society. Of course, persons of good will come from many different ethnicities, cultures, and beliefs, and there is no doubt that homosexual or “transgendered” persons have made contributions in their professional lives to the construction of a just society.  
 
President Obama then notes his commitment to achieve certain aims on behalf of such persons. Each part of the declaration will be commented on separately for within each part there are fine distinctions. President Obama states, “At the international level, I have joined efforts at the United Nations to decriminalize homosexuality around the world.” Though it is certainly true that harassment or abuse of any individual should be criminal, it is not necessarily the case that certain actions ought to be decriminalized. Homosexual activity is disordered and can pose public health dangers even though each person ought to be the object of dignity and respect – simply because each is a person!  
 
Societies should be free to enact laws pursuant to families, communal life, and the common good. These societies may outlaw homosexual activity because they find it morally offensive or due to a public health concern about the spread of AIDS. Obviously, President Obama views homosexual activity as not only permissible, but laudable. He holds the same view of bi-sexuality and sex reassignment surgery. Some societies do not. Consequently, that President Obama is making an effort to decriminalize these activities “around the world” can only be described as a form of cultural imperialism. President Obama and other members of the United Nations are effectively imposing their views about sexuality upon other societies. The preservation of a true pluralism among nations would allow societies and peoples to follow their established cultural norms and to object to certain acts that are inconsistent with their understanding of the moral law and of the common good. 
 
Next, President Obama notes what he is doing for our country. “Here at home, I continue to support measures to bring the full spectrum of equal rights to LGBT Americans.” Here again, fine distinctions are necessary to separate the wheat from the chaff. It may initially seem obscure about which rights President Obama is speaking. After all, he noted previously that many members of this group are upwardly mobile, and making significant contributions in their professional lives. What rights are they lacking? President Obama specifically cites adoption rights. But many adoption agencies are religiously based, and so historically driven to promote adoption as an alternative to abortion. Many agree with the research showing that optimal child development is fostered with the presence of both a mother and a father. Furthermore, many of these agencies subscribe to the view that homosexual acts are immoral, and they would not want to place children in a setting in which such activity is sanctioned and practiced. Here again, the NCBC must part company with President Obama’s reasoning, in which it would appear he supports the violation of religious freedom in the exercise of these ministries.  
 
One last point is worthy of note. President Obama’s declaration is titled LGBT Pride Month. The Federal Government should not force its citizens to celebrate actions that many, if not a majority, find morally objectionable. In making June LGBT Pride Month, Obama has committed an act of tyranny. Making all Americans celebrate these sexual dysfunctions during the month of June is oppressive. One is left to ask, would President Obama be open to declaring some month: “Traditional Marriage Pride Month”? Until he does, many would not be convinced that the President is interested in preserving a healthy pluralism, but rather is committed to an agenda that favors a view of sexuality at variance with sound moral reasoning, common sense, and the views of the American people.  
 
 
_______________________________________ 
1. See the text at, http://www.whitehouse.gov/the_press_office/Presidential-Proclamation-LGBT-Pride-Month/.  
2. For a note on the reasons why one may think this, see “Proposition 8 and the Impossibility of Same-sex Marriage,” (November 19, 2008).  
3. By optimal development we mean to include development of a child’s sexual understanding and identity. Children of homosexual couples manifest more homoerotic dispositions and are statistically more promiscuous than children raised in heterosexual households. These features of a child’s development are critical from a Catholic understanding of human development. See Walter R. Schumm, “Re-evaluation of the “No Difference” Hypothesis Concerning Gay and Lesbian Parenting as Assessed in Eight Early (1976-1986) and Four Later (1997-1998) Dissertations,” Psychological Reports 103(1) (2008): 275-304. See also Daniel Avila, “Refusing to Assist Same Sex Adoption: Rationale Behind the Church’s Opposition,” Ethics and Medics 31(7) (2006): 1-3.  
4. An example of this has already occurred in England. See, “Catholic Care Loses Charity Tribunal Appeal,”  
 
British Parliament, Human-Animal Hybrids and Savior Siblings
6/3/2009

Recently, the British parliament approved the creation of human-animal hybrids, and also the creation of “savior siblings” (IVF-created human embryos who are a genetic match to an injured or diseased sibling). These two proposals are contained within a single bill aimed at relaxing current regulations of the Human Fertilisation and Embryology Authority regarding human embryonic experimentation in Great Britain. 
 
Read the news article from the BBC. 
 
Background 
 
In the case of hybrids, the idea is to insert human nuclei into mammalian (cow) enucleated ova, allow the hybrid embryo to grow for up to two weeks (to the blastula stage) and then extract their inner cell mass (embryonic stem cells) for making human cell lines that might cure a number of diseases. Once perfected, the inserted nucleus would come from an actual patient; this way the cell lines obtained would match that patient and there would be little or no immune rejection of the tissue to be transplanted. 
 
In the case of savior siblings, an IVF embryo is selected (through Pre-Implantation Genetic Diagnosis) to match genetically his or her born and diseased sibling as much as possible. Then, this selected embryo would be implanted (maybe in his mother, but not necessarily) and gestated to term. After birth, the “savior child” can then become an organ or tissue donor for the sick brother or sister. For now, the idea is to use only tissue from the savior child that can be obtained with minimal or no invasion, such as his embryonic stem cells contained within his umbilical cord blood at birth, or discarded placenta. 
 
Ethical Analysis 
 
In the case of hybrid embryos, one fundamental concern is that, by introducing a human nucleus (therefore the entire human genome) into a mammalian egg, there is the very real possibility that one is engendering a new human being in the lab. Of course, hybrid proponents counter that, even if that were the case, this new human being would never be allowed to live beyond the blastula embryonic stage (extracting the inner cell mass effectively destroys/kills the embryo). But, ethically, this only compounds the problem because now we have created a human being in the lab for the sole purpose of destroying him to obtain his stem cells. 
 
In the case of savior siblings, the embryo is indeed allowed to live, but only because he will serve as a tissue donor. What if, after he is born, he is no longer a good match –for any number of genetic or environmental reasons? Will he then be rejected? Will he have to live with the stigma for the rest of his life that he was a ‘failure’? It is easy to see an entire constellation of immense expectations, pressures and possible disappointments building up upon this “savior” child: from his sick brother or sister; from his parents; from the rest of his family; from the medical profession; and from society at large. 
 
In both cases, the techniques (IVF and human cloning) involved in the creation of these embryos are grave moral evils and the procedures themselves lead to a large number of procured abortions. For articles on why IVF and human cloning are grave moral evils, and on why these procedures lead to a vast number of procured abortions, please search our webpage under the underlined topics. 
 
Additionally, savior sibling selection introduces quality control upon the unborn: the ‘best’ will be selected, while the ‘lesser’ humans will be discarded, very much like a product of superior or inferior quality. Engendering human hybrid embryos would likewise involve a high degree of “quality control” in order to obtain the desired embryonic cell lines. 
 
One common ethical thread between these two procedures is that the human embryo is treated as a means and not as an end in himself. No one questions the nobility of seeking to cure horrible illnesses or accidental injuries. In fact, the Catholic healthcare tradition defends and promotes this. What is in question –ethically speaking-, is the way in which these cures are sought. Both of these procedures fail to treat human life with the dignity and respect it deserves; both procedures manipulate the most early and vulnerable stages of human life: the first couple of weeks of embryonic development. Any civilized nation should seek to protect rather than endanger this most vulnerable stage of our life. Rather than allowing for more experimentation with human embryos, the NCBC urges all in vitro fertilization and all non-therapeutic human embryo research to be outlawed, nationally and abroad.
NCBC Comments to NIH on Draft Guidelines for Human Stem Cell Research
5/14/2009

May 14, 2009. On May 14, 2009, the NCBC submitted a letter to Dr. Raynard Kingston, the Acting Director of the National Institutes of Health, which was critical of the Draft Guidelines for Human Stem Cell Research. These Guidelines were proposed in the wake of President Barack Obama's Executive Order which provided for federal funding for human embryonic stem cell research.

Click here to read the text of the letter. Acrobat Reader is required.


The Pope Grounds Human Rights in Rational Discourse
5/14/2009
Rev. Alfred Cioffi, Ph.D., S.T.D.
NCBC Ethicist

May 14, 2009. On May 4th, 2009, Pope Benedict XVI addressed the fifteenth Plenary Session of the Pontifical Academy of Social Sciences, which had gathered in the Vatican to study the question of human dignity and human rights. He began by thanking Professor Mary Ann Glendon, current President of the Academy, for her welcoming words to the plenary. 
 
Our Holy Father emphasized that human history, even with all of its inconsistencies, has shown an increasing sensitivity for human dignity and human rights. He highlighted, as an example, three fundamental human rights, and their grounding in our nature. He pointed to, “…the right to life and the right to freedom of conscience and religion as being at the centre of those rights that spring from human nature itself.” 
 
The Pope proceeded to deepen his reasoning by stating that: 

 
Strictly speaking, these human rights are not truths of faith…They receive further confirmation from faith. Yet it stands to reason that, living and acting in the physical world as spiritual beings, men and women ascertain the pervading presence of a logos which enables them to distinguish not only between true and false, but also good and evil, better and worse, and justice and injustice. This ability to discern - this radical agency - renders every person capable of grasping the "natural law", which is nothing other than a participation in the eternal law.
 
 
Expanding on the subject of natural law, Benedict XVI stressed its universal appeal and hence the ethical and political relativism that its denial brings: 
 
The natural law is a universal guide recognizable to everyone, on the basis of which all people can reciprocally understand and love each other. Human rights, therefore, are ultimately rooted in a participation of God, who has created each human person with intelligence and freedom. If this solid ethical and political basis is ignored, human rights remain fragile since they are deprived of their sound foundation.
 
 
The Roman Pontiff concluded by exhorting all to transcend religious factions, and engage instead in the universal language of reason: “The Church's action in promoting human rights is therefore supported by rational reflection, in such a way that these rights can be presented to all people of good will, independently of any religious affiliation they may have.” 
 
ClickFor the full text of the Pope’s address.  
 
Also, on May 8th, 2009, Archbishop Raymond Burke, current Prefect of the Supreme Tribunal of the Apostolic Signatura, delivered the keynote address at the National Catholic Prayer Breakfast, in Washington, D.C. In it, he made numerous references to the natural moral law and to the discourse of reason, all within the context of the constant Teachings of the Catholic Church, which was this years’ theme. 
 
Click for the full text of Archbishop Burke’s address. 
 
A number of so-called “rights” claimed in society today are without serious grounding in the natural law. For example, the “right” to same-sex marriage cannot really exist, since the natural complementarity of human sexes requires that one be a man and one a woman. Rights are not created by what we desire to do; rather, what we desire to do should conform to our rights.

 

The Immorality of Same-Sex Marriage
4/13/2009
Rev. Alfred Cioffi, STD, PhD
Staff Ethicist


April 13, 2009. On April 3, 2009, Iowa became the third state in the USA to legalize same-sex marriages (Massachusetts and Connecticut are the other two). And, in New England, there is a move to have all six states (Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut) recognize homosexual marriages by 2012. On April 7, 2009, the Vermont legislature approved same-sex marriage. Also, at least six other states (Illinois, Maryland, Minnesota, New Jersey, New York and Washington) have pending legislation to legalize homosexual marriages. 
 
The Catholic Church is opposed to same-sex marriage because it is against nature, and because it is not what Jesus Christ taught. He did teach, however, respect for the intrinsic dignity of all peoples. He also said regarding marriage: “For this reason a man shall leave his father and mother and be joined to his wife, and the two shall become one flesh. So they are no longer two but one flesh. Therefore what God has joined together, no human being must separate." (Mk 10,7-9) 
 
Same-sex marriage advocates seek the same recognition given to traditional marriage. However, what is recognized about traditional marriage is precisely the fact that it is between one man and one woman. Therefore, what same-sex marriage advocates seek is intrinsically impossible to obtain. 
 
The legalization of marriage is to protect the value that it has to society, to a large extent, by the proper engendering and nurturing of the next generation. It is safe to assume that homosexual activity has always existed among some sectors of society. Yet, no society has ever recognized it as marriage. Why? Because by its very nature, it threatens the core of what marriage and family represents. 
 
If marriage is not between one man and one woman, then it does not have to be between two persons. In other words, if society ―and legitimate government― does not have the right to tell me that I cannot marry my same-sex partner, then with what right does it restrict me to marry only one other person at a time? Similarly, if it cannot tell me to marry only a person of the opposite gender, with what right does it restrict me from marrying a member of another species? 
 
When taken to its ultimate conclusion, same-sex marriage totally dissolves the meaning of marriage into no meaning at all. 
 
If truth be said, same-sex marriage advocates seek to legitimate objectively abnormal behavior, and gravely sinful sexual activity. The NCBC invites Catholics and all people of good will stand up for decency, civility and honesty: same-sex marriage is an immorality and will have disastrous consequences for society. 
 

NCBC Comment to HHS on Proposed Rescinding of Provider Conscience Rule
4/2/2009

April 2, 2009. On April 2, 2009, the NCBC provided comments to Acting Secretary, Charles E. Johnson of the U.S. Department of Health and Human Services on the proposed rescinding of the Provider Conscience Rule instituted by President George W. Bush “Ensuring that Department of Health and Human Services Funds Do Not Support Coercive or Discriminatory Policies or Practices in Violation of Federal Law.”

The text of the letter may be read here. Adobe Acrobat Reader is required.

Human Blood from Human Embryonic Stem Cells
3/26/2009
Stephen Napier, Ph.D.
NCBC Ethicist


March 26, 2009. A BBC article dated March 23rd reports that scientists are investigating the potential to derive human blood from human embryonic stem cells. The proposed project aims to “test human embryos left over from IVF treatment to find those destined to develop into the universal "O-negative" blood donor group.”1 Researchers will then remove the stem cells from the embryo, thus destroying the embryo. They then culture the stem cells to coax them into becoming blood cells. The end result is to have trillions of red blood cells that can be used for blood transfusions.  
 
News reports on the potential for embryonic stem cells to solve a major medical need manifest once again fundamental errors in ethics and science. Regarding ethics, embryonic stem cell research typically destroys young human life. The idea that these young human beings are labeled “left over” or “spare” manifests a complete disregard for their inherent dignity. Embryos are young human beings who, left on their own in a supportive environment, develop in a continuous and unbroken fashion to the adult that you and I are. You are identical to your embryo. Making moral distinctions in the human family between the mature and the immature or between the young and the old is fundamentally discriminatory.  
 
Proponents of embryonic stem cell research would have us believe that because embryos cannot think or feel, or form interests and intentions, they do not bear “moral worth”. Such an idea illustrates three gross errors. First, if this idea were true, then it would be permissible to kill persons who are in a reversibly comatose state, since they cannot think, feel, or form intentions (at that time). But clearly none of us, I hope, would think that that is remotely permissible. Second, the idea of someone possessing “moral worth” in virtue of what that person can do is ridiculous. Fundamental moral worth is not something one has in virtue of what that person can do, but in virtue of what that person is, namely, a member of the human family. The fact that a human embryo (as an embryo) cannot think, or feel, or form interests, only makes the embryo more vulnerable to harm. But being more vulnerable to harm in no way translates into having less moral worth.  
 
A third error is that it is simply false to say that embryos cannot think, feel, or form interests. Human embryos do have, in a certain sense, the ability to think and feel and form interests. Consider the difference between the human embryo and the canine embryo. The human embryo clearly does follow a developmental trajectory in which he or she manifests the ability to think, feel, and form interests, whereas the dog will at no point manifest any of these, or manifests these abilities in a considerably different form. It makes perfect sense then to say that the human embryo has (as an embryo) the capacities to think, feel and form interests, in virtue of having an internally directed developmental course leading to the exercise of these abilities.  
 
More specific to the type of embryonic stem cell research referenced in the BBC article, a further objection is that this type of project, if successful, would force patients who need such transfusions into benefiting from evil. Conscientious patients who are in need of a transfusion and come to know that the blood they are about to receive was developed by killing a young human being, puts such a patient in a difficult moral situation. They may refuse to benefit from a grave injustice committed against young human life, and by doing so, refuse potentially life saving therapy. Readers may have heard the perfunctory cavil made against Christians to “stop shoving your views down my throat.” And yet this research has the sequelae of doing just that by forcing patients to benefit from a grave injustice.  
 
The Catholic Church holds the idea that all human beings are worthy of fundamental respect, and by “fundamental respect” she means the respect owed to another’s very life. The Church also holds the idea that science is properly ordered only when it serves the dignity of every human person. Research that kills vulnerable human beings is morally abhorrent even if such research holds out therapeutic promise. It is contradictory to say both that “this research destroys young human life” and “this research serves the dignity of the human person.” And yet proponents seem to accept this contradiction considering the ideas of ‘fundamental respect for all humans’ and ‘science serving human dignity’ to be outrageous, ridiculous, or meaningless. On the contrary, that all human beings are owed fundamental respect, and that science is properly ordered when it serves the dignity of every human being, are far from outrageous or meaningless. They are ethical pillars of our culture, holding it up, if you will, keeping it from crumbling into amorphous fragments (a consequence we are already witnessing). Abandoning them will not only have deleterious consequences for our young, but for us all.  
____________________________________________ 
 
1 See “Synthetic blood from embryos bid.” Accessed March 24th, 2009.  
The Pope and Condoms
3/23/2009

March 23, 2009. On March 17, a reporter asked Pope Benedict XVI, while en route to Cameroon, to defend the Church’s promotion of monogamy and opposition to condoms in the fight against AIDS, especially since such positions are “frequently considered unrealistic and ineffective.” He responded in part by saying that “the scourge cannot be resolved by distributing condoms; quite the contrary, we risk worsening the problem.” This prompted a fresh, if predictable, round of scorn from the western press. France went so far as to say his statements represent a threat to public health. Yet it might surprise the casual observer to learn that empirical record supports the Pope’s assertions. 
 
First, every instance in which HIV rates have fallen in Africa is most attributable to fundamental changes in sexual behavior, most importantly an increase in faithfulness. In contrast, HIV transmission rates have remained high and even grown in other African countries where widespread behavior change has not occurred, despite considerable increases in condom use. An influential article in Science last year lamented that international HIV prevention priorities had not yet shifted to reflect this epidemiological profile.  
 
In recent years, researchers have paid greater attention to the specific issue Benedict raised: the possibility that condom promotion even risks “worsening the problem.” The theory that people may take greater risks in exposing themselves to harm because they feel a new technology grants them a measure of protection in doing so, goes by the names of “risk compensation” or “behavioral disinhibition” in public health circles. A series of recently published articles (including in the Lancet) have concluded that this phenomenon – that condom promotion can lead to greater risk taking - is quite real indeed. 
 
Finally, the track record for condoms – by far the most emphasized approach over the years – has been rather poor in Africa. An exhaustive review of the impact of condom promotion on actual HIV transmission in the developing world concluded that condoms have not been responsible for turning around any of the severe African epidemics. This rigorous study was originally commissioned by UNAIDS, and conducted by researchers at the University of California at San Francisco. Instead of welcoming the findings, and adapting HIV prevention strategies accordingly, UNAIDS first tried to alter the findings, and ultimately refused to publish them. The findings were so threatening to UNAIDS that the researchers were finally forced to publish them on their own in another, peer-reviewed journal.  
 
This episode provides a disturbing glimpse into the priorities of the lead United Nations’ AIDS agency. Though normally quick to insist on the right to “accurate information” about condoms, in this case they placed their own ideological convictions above the welfare of those they are charged with protecting. Still, the New York Times claims, mere hours after the Pope’s remarks, that he “deserves no credence when he distorts scientific findings about the value of condoms in slowing the spread of the AIDS virus.” The informed observer might well conclude that the outrage aimed at the Pope over the fight against AIDS is poorly directed. 
Matthew Hanley 
 
The National Catholic Bioethics Center will publish Matthew Hanley’s book, with Jokin de Irala, M.D., “Avoiding AIDS, Affirming Love: What the West Can Learn from Africa,” in the Summer of 2009. 
The Suleman Octuplets and the Immorality of IVF
3/10/2009

Rev. Alfred Cioffi, Ph.D., S.T.D.
NCBC Staff Ethicist


March 10, 2009. On January 26, Nadya Suleman, a single mother, gave birth by C-section to premature octuplets. Nadya, an only child, was born on October 12, 1975 and studied to be a psychiatry technician. She married in 1996, but separated four years later because the couple was unable to have children. In 2001, she began IVF fertility treatments from Doctor Michael Kamrava, with sperm donated from a friend. This resulted in her bearing 6 children, now aged 7, 6, 5, 3, 2 and 2. She still had 6 embryos frozen from the previous treatments. So, in 2008 she requested that all remaining embryos be implanted in her ―all at once. All implanted, and two of them split into identical twins, resulting in octuplets. A reason Nadya has claimed for having so many children is that, when she was young, she was very lonely due to her being an only child, and that she would not want any child of hers to have to experience that. She has been receiving worker’s compensation from a back injury in 1999. 
 
While some motivations have been laudable ―such as not wanting her children to be alone and not wanting her frozen embryos to be destroyed―, the NCBC considers gravely irresponsible all these actions: undergoing IVF treatment; endangering the life of these 14 children, most especially the octuplets; denying a father to all these children, and; the financial hardship at public expense. It must be noted that, of grave concern, is the general public’s acceptance of IVF. However, IVF is an intrinsic evil because, among other things, it radically separates the unitive from the procreative dimensions of the marital act. This is one more drastic example of the many reasons why IVF is highly unethical. Essentially, it dehumanizes people by turning children into a commodity and it totally obviates the fundamental way in which God intended for a family to come about: by the loving union of spouses who, together, raise the children that the Lord grants them.
 

Government’s Lethal Exploitation of the Most Vulnerable of Human Beings
3/9/2009

March 9, 2009. The National Catholic Bioethics Center received with dismay the news of President Barack Obama’s executive order to allow citizens’ tax dollars to be used to support research that requires the destruction of human embryos in the name of speculative scientific research.  
 
Historically, the government has never permitted the use of federal funds for research on human subjects if it was not for their benefit. Congress extended the same protection to the embryo and fetus as to any other human subject of research. Since 1975 Congress has refused to allow federal funds to be used for research on unborn children at any stage of their development. In 1985 Congress amended the National Institutes of Health reauthorization act to make it clear that the prohibition of the use of federal funds for research on human subjects was "the same for fetuses which are intended to be aborted and fetuses which are intended to be carried to term" (42 USC §289g). In 1996 Congress passed legislation to provide the same protections to the embryo. The Dickey Amendment states that federal funds are not to be used for engendering human embryos for research purposes or for research in which embryos are destroyed, discarded, or knowingly subjected to risk of injury or death greater than that allowed for research on fetuses in utero. The ban defined "human embryo" as including any organism that is derived by fertilization, parthenogenesis, cloning, or any other means from one or more human gametes (sperm or egg.). The fact that the embryos engendered by their parents are not wanted, in no way lessens their innate dignity. The government must maintain a posture of respect towards human life by not allowing tax payers’ money to be used for research involving the destruction of human beings. It cannot single out certain lives as somehow uniquely suited for harmful or destructive research. 
 
The National Catholic Bioethics Center supports stem cell research which respects innate human dignity. However, this new Obama policy constitutes a misuse of public money for immoral research that has not yielded one single clinical benefit. In fact embryonic stem cell therapy is known to cause tumors and tissue rejection. Recent advances have obviated the need for destroying human embryos to access pluripotent stem cells. Scientists have demonstrated that they can reprogram ordinary human skin skills into pluripotent stems cells which will not cause tumors or rejection. There are several ethical stem cell research alternatives that already have successfully treated thousands of patients. By using adult sources of stem cells (including umbilical cord blood, amniotic fluid and placental sources) it has been possible to treat, and sometimes even cure, numerous maladies and pathologies, from spinal cord injury to cardiac disease, pediatric brain tumors to cerebral palsy, to the widely-known successes in blood diseases. 
 
Each of us was once an embryo. Science makes it clear that from fertilization a new human being exists, distinct from the father or mother, with his or her own internal principle directed toward continuing development towards adulthood. Thus, he/she is a bearer of human rights, with intrinsic dignity which outweighs any utilitarian consideration. Providing public funding to support research on cells obtained through the destruction of human beings, especially at their most vulnerable stages, is an affront to the dignity of all persons, and beneath the moral stature of the United States of America.  
 
A humane policy of prohibition on the use of federal funds for destructive research on innocent human beings has been in place throughout our history until now. However, even it was inadequate. There should be federal laws protecting all human beings from the first moment of their existence.
Commentary on President Obama's Rationale for Rescinding the Mexico City Policy
2/10/2009
Rev. Alfred Cioffi, Ph.D., S.T.D.
NCBC Staff Ethicist


February 10, 2009. On Friday, January 23rd, 2009, President Obama rescinded the "Mexico City Policy," and gave the following rationale for doing so: 
 
It is clear that the provisions of the Mexico City Policy are unnecessarily broad and unwarranted under current law, and for the past eight years, they have undermined efforts to promote safe and effective voluntary family planning in developing countries. For these reasons, it is right for us to rescind this policy and restore critical efforts to protect and empower women and promote global economic development. 
 
For too long, international family planning assistance has been used as a political wedge issue, the subject of a back and forth debate that has served only to divide us. I have no desire to continue this stale and fruitless debate. 
 
It is time that we end the politicization of this issue. In the coming weeks, my Administration will initiate a fresh conversation on family planning, working to find areas of common ground to best meet the needs of women and families at home and around the world. 
 
I have directed my staff to reach out to those on all sides of this issue to achieve the goal of reducing unintended pregnancies. They will also work to promote safe motherhood, reduce maternal and infant mortality rates and increase educational and economic opportunities for women and girls. 
 
In addition, I look forward to working with Congress to restore U.S. financial support for the U.N. Population Fund. By resuming funding to UNFPA, the U.S. will be joining 180 other donor nations working collaboratively to reduce poverty, improve the health of women and children, prevent HIV/AIDS and provide family planning assistance to women in 154 countries.
 
 
The provisions of the Mexico City Policy ensured that no US public funds were used for either performing or promoting abortions in foreign countries, and these provisions have now been rescinded. Due to the moral gravity of this action, a paragraph-by-paragraph commentary of President Obama’s rationale is warranted. 
 
In the first paragraph, President Obama tells the American people that “the provisions of the Mexico City Policy…have undermined efforts to promote safe and effective voluntary family planning in developing countries.” From the onset, it must remain abundantly clear that, for the aborted children, rescinding this policy is never safe, rather always lethal. Also, to provide or promote abortion as a method of ‘family planning’ is to thoroughly confuse families in developing countries into thinking that killing one’s child in the womb is a legitimate method of ‘avoiding children.’ Also, since it is a well-known fact that expectant mothers in many developing countries preferentially abort their unborn daughters, then stating that reversing this policy will “restore critical efforts to protect and empower women” is a blatant contradiction and deception. 
 
In the second paragraph, President Obama states: “I have no desire to continue this stale and fruitless debate.” Yet, in paragraph three, he states: “my Administration will initiate a fresh conversation on family planning, working to find areas of common ground…” How can one initiate a fresh conversation to find common ground and at the same time have no desire to continue this stale and fruitless debate? Simply, one cannot. 
 
In paragraph three, President Obama states: “It is time we end the politization of this issue.” Again, to be clear, the issue at hand is two-fold. First, to consider abortion as a method of ‘family planning.’ Second, to use public funds for the provision or promotion of abortion, with the expanded view of using abortion as a legitimate method of birth control. It is illegal to do so in the United States, because many Americans rightly believe that abortion is a grave crime and genocide. Hence, Congress has had the minimal prudence not to coerce the American people into paying for something so abominable. This is political in the sense that the body polity ―the wish of the people as expressed through representative government― has spoken and, yes, precisely because the nation is so divided on this issue, politicians are ―up to now― not coercing us to participate in the genocide. This is an extremely serious issue and, consequently, it is a political issue. To “de-politicize” this issue, then, is tantamount to “de-politicize” any other issue of national interest, such as the budget, national defense, or health care. In a democracy, it would be unthinkable to seek to erase any of these vital issues from the public forum. 
 
In paragraph four, President Obama states that he has: “directed [his] staff to reach out to those on all sides of this issue to achieve the goal of reducing unintended pregnancies.” However, the executive order to rescind the Mexico City Policy is already signed, sealed and delivered; what is the purpose, then, of consulting with those who think differently from him on this issue, if the decision is already made? Could it be so as to claim that some sort of consultation took place? To what purpose; so that those who think differently from him on this issue realize that, unless they align their opinion with his, they will never have a say in the matter? 
 
Also in paragraph four, President Obama states that he wants to “promote safe motherhood, reduce maternal and infant mortality rates and increase educational and economic opportunities for women and girls.” But; how can the killing of the unborn possibly reduce the infant mortality rate? And, how can a mother’s realization that she has killed her child through an abortion promote safe motherhood? Evidently, the President’s statement only makes sense if one is to consider the unborn not a human being ―at any stage of development. Then, the “educational opportunity” for women and girls that he is talking about must be exclusively of the sort that denies the basic biological facts about human embryology. This would actually be depriving women and girls of their right to a good education which, in turn, would also seriously compromise their ability to take advantage of the economic opportunities presented to them, since their education would be slanted toward and colored by a pro-abortion ideology. 
 
In paragraph five, President Obama states: “In addition, I look forward to working with Congress to restore U.S. financial support for the U.N. Population Fund.” One main aspect of the UNFPA is precisely the very controversial issue of providing or promoting abortion, contraception and sterilization in developing countries. Notice that there is no mention here of whether the US should restore the funding or not, as a democratic nation would seek to decide in debate. Rather, his interest is only is getting Congress to restore the funding. 
 
Overall, what this new policy does is to coerce all American taxpayers into funding abortions in developing countries. Hence, rescinding the Mexico City Policy not only fails women and families abroad, it fails them here at home, particularly during these difficult economic times. 
 
There is no doubt that President Obama considers that abortion is one of the “best [ways to] meet the needs of women and families at home and around the world.” It is perfectly logical, then, to expect that the next step will be for American taxpayers to fund abortions here at home. This disregards the millions of Americans who believe that abortion is the killing of innocent human beings and therefore a grave crime. Where is the dialogue before the executive order? Is there truly a desire to find a common ground on this issue? Sadly, we are poignantly aware that abortion is legal in the United States; but to coerce the American people into paying for it in other countries takes this issue to an entirely new ―and unacceptable― unethical level.
 
Testimony Submitted to the Maryland Legislature Opposing Terminal Condition Counseling
1/27/2009

January 27, 2009. On January 27, 2009 Dr. Marie Hilliard, NCBC Director of Bioethics and Public Policy and also a the chair of the ethics committee of The National Catholic Partnership on Disability submitted testimony to the Maryland Legislature opposing legislation that would mandate terminal condition counseling.

The text of the testimony may be read here.


FDA Approval of Embryonic Stem Cell Trial
1/26/2009

January 26, 2009. On January 23, 2009, it was announced by Geron Corporation that for the first time, embryonic stem cells are to be put to use in clinical trials with humans with the approval of the Food and Drug Administration. It is interesting to note that Geron, at this time, will be using only those cell lines which had been approved by the Bush Administration for stem cell research. The trials will be performed on those suffering spinal cord injury. The aim of this new study is primarily to test for safety, not effectiveness as a treatment. News stories are playing up the potential of the use of embryonic stem cells, as they have been for nearly a decade, despite the lack of significant progress. Meanwhile, great strides are being made using adult stem cells, which are already in extensive clinical use.  
 
Embryonic stem cell lines begin with a destroyed human embryo. The lines then produce cells that are not genetic matches for the patients in whom they are injected, necessitating the use of anti-rejection drugs to suppress adverse reactions. The dangers of using these cells have been noted by several scientists cited by the media in the recent reports, but few are reporting that cells with the same properties and potential as the embryonic are now available through the process of “dedifferentiation.” In this process, adult stem cells are returned to their earlier pluripotent state and take on all of the characteristics of the pluripotent embryonic type. These “induced pluripotent stem cells” do not require the destruction of embryos, but are taken directly from the body of the patient into whom they are later injected, thus also avoiding the problem of immune rejection. 
 
Despite these facts, scientists continue to claim that embryonic stem cells are the “gold standard” in the field of regenerative medicine. Stem cell research is the only scientific discipline where the paradigm for success is a procedure that does not work, and where other avenues that have proven successful are found wanting because they fail to live up to that defective standard. 
The HHS Rule Protecting Health Care Consciences
12/23/2008

December 23, 2008. Recently, the Department of Health and Human Services (HHS) promulgated into law regulations aimed to protect health care workers’ consciences. The press release on HHS website says that, “The right of federally funded health care providers to decline to participate in services to which they object, such as abortion, is affirmed….” And  
 
Over the past three decades, Congress enacted several statutes to safeguard the freedom of health care providers to practice according to their conscience. The new regulation will increase awareness of, and compliance with, these laws.(1) 
 
In spite of the benign, even laudatory, intentions of HHS, and the clarity of the rule itself, the regulation has been the subject of numerous criticisms, most of which resort to inflammatory language and/or overstatements of the rule.  
 
Consider the following statement from the American College of Obstetrics and Gynecology, “This new HHS regulation places patients' rights directly behind the rights of ideologically-driven physicians and anyone else directly or indirectly involved in their health care.”(2) The National Abortion Rights Action League (NARAL) says that the new rule “would seriously jeopardize patients’ rights to receive quality, comprehensive health-care services.”(3) In point of fact, both NARAL and ACOG misstate the true character of the rule. First, this is not a “new rule” as ACOG indicates, but rather is a rule codifying already existing protections for health care workers. Second, ACOG says that the rule subverts patient’s rights to “ideologically-driven” physicians. Clearly this is inflammatory language. If the rule were described, rather, as protecting a person’s individual moral and religious beliefs, beliefs which constitute the core of a person’s identity, then the new rule looks much more favorable. Likewise for NARAL’s assertion that the rule would jeopardize access to “quality, comprehensive health-care.” If the rule were described, rather, as protecting an individual’s or institution’s conscience objection to what they consider murder (abortion), or mutilation (direct sterilization), then one could more readily understand why one would want to protect conscience 
 
Protecting a health care worker from having to kill a human being or mutilate a patient, is exactly the intention of the rule:  
 
The Department is concerned about the development of an environment in sectors of the health care field that is intolerant of individual objections to abortion or other individual religious beliefs or moral convictions. Such developments may discourage individuals from entering health care professions. Such developments also promote the mistaken belief that rights of conscience and self-determination extend to all persons, except health care providers.(4)  
 
Clearly the intention behind the rule is to preserve the conscientious delivery of health care. Additionally, it recognizes appropriately that health care workers are not mere automatons, doling out health care, but are persons committed to the healing art of medicine. Consider also, that the new rule implements federal regulations already in existence.  
 
[T]his rule implements federal laws protecting health care workers and institutions from being compelled to participate in, or from being discriminated against for refusal to participate in, health services or research activities that may violate their consciences, including abortion and sterilization, by entities that receive certain funding from the Department.(5)  
 
Those who oppose the rule are put into the awkward position of saying that such protection of health care workers or institutions is not just, or that giving due recognition to a person’s or institution’s conscience is not itself a great social good.  
 
The misstatements of what the rule intends to accomplish may not be deliberate. There is, after all, a widespread misunderstanding of what conscience is and this misunderstanding affects one’s ability to appreciate why conscience should be protected. To clarify, conscience is an act of one’s reason whereby a person judges that a particular act is wrong (or right). Conscience claims are bound up with the person’s rational, volitional and spiritual identity and thus, they cannot be considered a “bias,” as some have called it. Disobeying one’s conscience, then, leads to an internal contradiction (i.e., disintegration of the person). Acting against one’s conscience is, in a real sense, acting against oneself. When we are discussing certain acts such as abortion and sterilization, acts that countless health care workers consider murder and mutilation respectively, not protecting the health care worker’s conscience would be tantamount to forcing the worker to do wrong or leave the profession. The medical profession is a healing art, and those who are truly sensitive to this end should be allowed to practice their art knowing that their consciences will be protected. The rule, then is a just law and comports with the art of medicine, aimed as it is at healing the human person.  
_________________________________________ 
Notes: 
1. See http://www.hhs.gov/news/press/2008pres/12/20081218a.html.  
2. http://www.acog.org/from_home/publications/press_releases/nr12-18-08.cfm. 
3. http://www.prochoicemissouri.org/action/alerts/200809241.shtml. 
4. See, “The Final Rule,” page 78073, accessed at: http://edocket.access.gpo.gov/2008/E8-30134.htm. 
5. See, “The Final Rule,” page 78074 accessed at, http://edocket.access.gpo.gov/2008/E8-30134.htm.  
Abortion and the Onus of Proof
12/22/2008
Stephen Napier, Ph.D.
NCBC Ethicist

December 22, 2008. With an incoming administration hostile to protecting unborn human life, opponents of abortion are put into the position of defending their anti-abortion position rather than the pro-abortion advocates defending theirs. That is, the default position is, unfortunately, becoming the pro-abortion position. These comments aim to correct this insidious inversion of proper moral reasoning.  
 
The correct understanding of the anti-abortion position is simply this: we accept the commonsensical moral principle that it is impermissible to kill innocent human beings. We then suggest, again consistent with common sense, that human fetuses and embryos are simply young human beings and therefore fall within the scope of the moral principle. Since abortion is the killing of a human fetus or embryo, abortion is impermissible. These claims are straightforward and commonsensical. Furthermore, if one adds the principle that one should err on the side of life, and if there is a doubt about whether fetuses or embryos are human beings, then the default position is that they are human beings. That is, the ‘err on the side of life’ principle resolves any occasion for doubt on the side of life, so any doubt that X is a human being, should, for moral purposes, resolve to X is a human being.  
 
Once we delineate the argument against abortion, in conjunction with the ‘err on the side of life’ principle, we can see that the onus of proof is clearly on those who think that the fetus or embryo is not within the proper scope of the moral principle ‘killing an innocent human being is impermissible.’  
 
Of course, the response from the pro-abortion advocate is that the default position is on the side of liberty or freedom. That is, any freedom limiting policy (such as, making abortion illegal) needs to be defended since freedom is the default value in our society. If this is correct, then the onus of proof is on the anti-abortion position.  
 
Now, this response makes no sense, but it is remarkable in that it is accepted by numerous pro-abortion advocates. To see the error clearly, consider the following two claims:
     
  • Individual freedom is a fundamental value in society and should be protected at all cost.  
  • Protecting innocent human life is a fundamental value in society and should be protected at all cost.
 
If I were to ask the reader, “which one sounds more plausible?” I suspect that everyone will say the second. The first claim admits of too many qualifiers and conditions in order for it to be remotely true, even in our “rugged individualistic” culture. Do I have the freedom to drive 90 miles per hour down a city street? Do I have the freedom to drive drunk? Are these “freedoms,” or many like them, ones society should protect? I doubt it. If this diagnosis is correct, then the response by the pro-abortion advocate loses all plausibility and we are back to the anti-abortion position being the default position. Thus, we are back to the onus of proof being on the pro-abortion advocate. 
 
Another response by the abortion advocate is that embryos or fetuses are not full human beings since they do not manifest intellectual or cognitive abilities that us “full” human beings (i.e., adults) do. Now this response makes no sense either for two reasons. First, falling within the proper scope of the moral principle “killing an innocent human being is impermissible” (hereafter, the principle) does not require manifesting higher-order cognition. For then, it would be permissible to kill persons in a reversibly comatose state, or those who are sleeping, or those who are mentally disabled, or infants! But clearly we would not accept that, and therefore, we should not accept that only those well-developed humans are within the proper scope of the principle. Second, the locution “not a full human being” is itself internally inconsistent. The locution indicates that embryos or fetuses are not fully developed, they are developing human beings. The internal inconsistency is introduced when we ask “what is it that is developing?” Clearly, the proper answer is a human being. The point is, we are human beings that are developing, not developing human beings. A thing is either a human being or not, either a cat or not, either a dog or not. We do not say of a kitten that it is not a cat. We say that it is a cat that is developing. Again, what is it that is developing must refer to the kind of thing it is. And what kind of thing we are is human being and this is fundamental about what we are. Since the proper scope of the principle is tethered to what we are fundamentally, all human beings fall under the principle and should be protected.  
 
If we dig deeper into the pro-abortion mind, we will discover an important root concern: the concern is over the sequelae of teen pregnancies or of pregnancies where the mother (and father) simply do not have the resources to rear a child. But in discovering this, we should be firm in our stance that abortion is not a solution to the problem. One does not solve the problem of teen pregnancies or of limited resources to rear a child by killing the child. After all, the very reason why one is concerned about these things is because the child’s life bears inestimable value and we owe it to the child to properly rear him or her. Abortion, then, ends the life of what an abortion advocate must admit bears inestimable value! The “solution” is internally inconsistent and therefore abortion cannot be a viable solution to concerns about properly caring for a child. The onus of proof, again, is on the abortion advocate, with no plausible argument in sight. Public policy should reflect this onus and protect the lives of the unborn. 
NCBC Applauds the Adoption of the Health Care Provider Conscience Rule by the US Dept. HHS
12/19/2008

December 19, 2008. The Department of Health and Human Services (HHS) issued a final rule to ensure that HHS funds do not support morally coercive or discriminatory practices or policies in violation of existing federal law. The proposed regulations will reinforce and reaffirm existing federal laws, which prohibit recipients of certain federal funds from coercing individuals in the health care field into participating in actions they find religiously or morally objectionable. These provisions assist in assuring that the First Amendment protections of the free exercise of religion, not only for individuals, but for faith-sponsored ministries, are protected. The National Catholic Bioethics Center (The Center), which provided supportive comment on the proposed regulations (see news posting for Sept 11, 2008), welcomes these protections of religious liberty in the delivery of health care. The Center wishes to thank HHS Secretary Michael Leavitt for this affirmation of existing law, assuring that constitutional protections are afforded to all in the lawful exercise of their profession, regardless of their religious beliefs. 
 
As the largest provider of non-governmental health care in this country, the Catholic Church ministers to the many needs of diverse and vulnerable populations. To address these needs, health care workers from all backgrounds are required. The protection of conscience ensures a vibrant pluralism in the delivery of health care. Not protecting consciences implicitly endorses a monolithic view of health care delivery in a setting where there is legitimate moral disagreement. By ensuring that consciences are protected, the State will help to assure that the people of the United States continue to receive care from a reasonable, thinking, caring and conscience-driven health care force. Those who insist that only those who are willing to violate their consciences in the delivery of health care should enter the health care field may fail to see the dangers of such a position. That approach creates a health care delivery system of professionals who blindly follow directives rather than conscience, putting society at risk. Such an authoritarian environment is what has allowed and continues to allow the catastrophic violations of human life and dignity witnessed in oppressive governmental regimes abroad.  
 
These rules will help to assure that the people of the United States continue to receive care from a reasonable, thinking, caring and conscience-driven health care force. Furthermore, faith-based ministries, the backbone of health and social service programs in the United States, will not be subject to coercive measures which interfere in their delivery of services. The Center gratefully welcomes these rules, and sees them as essential to the continued delivery of quality health care in this country. It is our hope that the new administration will respect and enforce this much-needed HHS rule, precisely due to its claimed interest in pluralism, representation and dialogue. (President-elect Barack Obama, Acceptance Speech, 4 November 2008).
An Introduction to The Instruction Dignitas Personae On Certain Bioethical Questions
12/18/2008

December 18, 2008. There are no surprises in Dignitas Personaefor anyone who has been following Catholic teaching in the area of bioethics over the last twenty years. The point of reference in matters of “reproductive technologies” is still Donum Vitae (“The Gift of Life”) issued by the Congregation for the Doctrine of the Faith in 1987. It provided ethical analyses of new means of overcoming infertility, judging some to be ethical (such as the use of hyper-ovulatory stimulation drugs) and others to be in violation of human dignity (such as in vitro fertilization (IVF), that is, engendering embryos in Petri dishes). 
 
Donum Vitae sought to defend two basic fundamental human goods: innocent human life and the dignity of marital intercourse. Dignitas Personae mounts that defense anew. Donum Vitae did anticipate that many new technologies would arise and formulated principles that have continued to serve Catholic moral reflection well. If the intervention assists the marital act achieve its natural end, it might be morally licit. If the intervention replaces the marital act it is immoral. For example, with IVF, technicians, not the married couple, are the ones who engender new life through their manipulation of sex cells in the laboratory. The marital act is replaced.  
 
Also, any intervention which destroys or harms innocent human life was rejected. IVF, for example, invariably sacrifices some human lives in its attempt to overcome infertility. Defective embryos are simply discarded. Usually several embryos are implanted in this procedure. Some babies develop better than others. Those who do not are often simply killed in a process euphemistically called “fetal reduction”. 
 
Donum Vitae remains a useful document. But a great deal has happened since 1987. Back then there were not 500,000 embryos frozen in liquid nitrogen, left over from IVF and saved for possible future use. Stem cells had not yet been isolated, and there was no contentious social debate over embryonic stem cell research. Cloning was not yet an issue.  
 
So with all these developments over the past twenty years it was time for the Church to issue another document as authoritative as Donum Vitae. The teachings of the popes and various Vatican offices over the last two decades addressed new issues as they arose. However, even a statement from a Vatican office or papal remarks at some international gathering does not rise to the same level of authoritative teaching as a formal document issued by the Vatican’s highest doctrinal office, the Congregation for the Doctrine of the Faith, with the specific approval and authority of the Pope. Dignitas Personae rises to this level. 
 
The Vatican continues to affirm that life begins at conception, and asserts that science bears out this conclusion. There is no “change in nature or gradation in moral value” and therefore the human embryo has, “from the very beginning, the dignity proper to a person.”  
 
Despite the fact that the Church has consistently taught that IVF violates human dignity and is therefore immoral many Catholics thought the Church approved IVF because it helps couples have babies. So a lot of Catholics will be learning for the first time through this document what the Church actually teaches in this regard. 
 
The document addressed specific immoral practices that have arisen through attempts at overcoming infertility. The procedure of “fetal reduction” has already been mentioned. But another evil resulting from IVF is the freezing of excess embryos. For example, twelve embryos might be engendered in a Petri dish but only four implanted. In order that the couple avoid going through the process of having their sex cells collected a second time and avoid the costs associated with a second attempt, the remaining eight embryos are frozen in liquid nitrogen for future use. As mentioned, there are reliable estimates that there are more than 500,000 frozen embryos in the United States.  
 
This is a situation of grave injustice for these tiny, vulnerable human beings. Dignitas Personae addresses this deplorable situation and declares that there is ultimately no way in which this grave injustice can be remedied. 
 
Some well intentioned individuals thought that this injustice could be diminished somewhat by making these embryos available to infertile couples or to couples who already have children but who want to be able to “rescue” these embryos from otherwise certain death. 
 
Dignitas Personae clearly rejects the use of these embryos to help couples overcome infertility. “The proposal that these embryos could be put at the disposal of infertile couples as a treatment for infertility is not ethically acceptable . . .” Although the document does acknowledge that the motives of those who want to rescue these embryos through pre-natal adoption are “praiseworthy”, nonetheless such an act presents “various problems not dissimilar” to those associated with couples using frozen embryos to overcome infertility. One of the most fundamental problems is that such actions are not in accord with the nature of “human procreation. . . [as] a personal act of a husband and a wife, which is not capable of substitution.”  
 
This new document strongly supports the ethical use of science. One of the most contentious issues of our day concerns embryonic stem cell research, that is, research that involves the killing of embryos to obtain undifferentiated cells that can be developed into various kinds of therapies. The Church obviously rejects any research that would involve the destruction if innocent human life no matter how small and vulnerable. So many people think the Church is against stem cell research. Dignitas Personae corrects this misperception. What many people do not realize is that the Church has been a strong supporter of research with “adult” stem cells which can be obtained from a variety of sources and which have already proven to be highly effective in a number of therapies while embryonic cells have not.  
 
While rejecting the use in research of newly-created cell lines that have their origin in human cells or tissue that have been derived from destroyed human beings, the CDF permits the personal use of vaccines or other commercial products developed from these lines, so long as this is justified by a proportionate reason, there are no other sources of the needed product, and one makes one’s objection known to its illicit origins. This is a particularly significant result for parents who have been concerned about whether they may vaccinate their children against certain serious childhood diseases for which there are no products other than those with compromised origins.  
 
The Vatican takes a “wait-and-see” approach to the question of germ line therapy. While acknowledging the value of somatic cell therapy, when directed to treatment and not to enhancement, Dignitas Personae contends that germ line therapy cannot be justified at the present time given the current state of scientific knowledge.  
 
Dignitas Personae almost reads more like a scientific article on biology rather than a religious document. But it is written in defense of two fundamental human goods that the Church has always defended and which are sorely threatened in our day: innocent human life and the dignity of the marital act.  
 
This brief commentary is intended to be a general introduction to
Dignitas Personae
. Over the next several weeks the NCBC will be developing additional resources and commentary on themes presented in this document. Check back regularly for additional postings.
Proposition 8 and the Impossibility of Same-Sex Marriage
11/19/2008

November 19, 2008. November 15 and 16, 2008 witnessed protests in several cities across the nation concerning California’s passage of Proposition 8, an amendment to their state constitution defining marriage as a union between a man and a woman. Interviews with protesters engendered a flurry of slogans, “This is discrimination at its best.” “All we want are equal rights.” “I am straight and I can marry. Why can’t my gay friends marry? It’s ridiculous.” Likewise, well-meaning defenders of Proposition 8 retaliated with their own set of slogans referring to homosexuality as a violation of “God’s Law.” By doing so, defenders of Prop 8 have inadvertently defined the debate as an issue of religious freedom. Describing the debate in this way is woefully inaccurate.(1)  
 
Properly understood, marriage between a man and another man is simply impossible. Two persons of the same sex can no more get married than a man can get pregnant. Marriage is a unity between two kinds of persons, where the result is a composite whole. The man and the woman complement each other, and a necessary condition for this complementarity is that they are sexually different. A difference in sex implies a bodily difference. And if the psychologists are right, there is an interdependence of soul and body. Therefore, male and female are ordered differently in their respective souls. They are both instances of human nature, but manifest that nature in different ways. A male-male relationship cannot achieve a unity and therefore cannot achieve a completeness in terms of uniting each other’s souls. Again, a necessary condition for this is that the genders are distinct. A unity requires complements. Two persons of the same gender do not allow for complementarity.  
 
Of course, the immediate objection will be to point out that many homosexual couples do complement one another. Therefore what I have said above is completely false. In response, it is important to recognize that marriage is not merely a lifelong commitment. The unity referred to in marriage is not one characterized by intense feeling for each person. Thus, the complementarity constituting marriage is not at the level of talents, emotional disposition, or personality. Marriage is a fundamental unity of persons, and the second most important identifying factor about what we are is our sex/gender. The first identifying factor is our nature, namely, human kind. Marriage refers to the unity and complementarity effected at this (i.e., the sexual) fundamental level.  
 
If all of this is correct, then casting the debate as an issue of religious freedom or equal rights is inaccurate. The real issue is that Proposition 8 reflects the way human beings are and the necessary conditions for effecting a fundamental unity between persons. It is not denying rights to homosexuals, for it would be odd for one to demand a right to something he or she cannot have. It is not based on a religious argument with a starting premise in God’s law. It is simply reflecting on the order of nature, and rightly recognizing what marriage really is (a fundamental complementarity between two persons ordered toward children) and that this complementarity and fruitfulness requires a difference in gender.  
_____________________________________________ 
 
(1) It would be accurate, however, to cash out the gay-marriage debate in terms of religious freedom versus equal rights given the sequlae of a successful initiative to redefine marriage. For then homosexuals would have equal protection under the equal protection clause – for example, Catholic elementary schools would be forced to hire homosexuals. For more see the National Organization for Marriage at www.nationformarriage. In particular, see “Why Marriage Matters.” 
NCBC Ethicist is Collaborator on National Catholic Partnership on Disability (NCPD) Statement on “Futile Care”
10/28/2008

October 28, 2008. The Governance Board of the National Catholic Partnership on Disability issued a statement on September 3, 2008 explaining its position on futile care. Dr. Marie T. Hilliard, Director of Bioethics and Public Policy of The National Catholic Bioethics Center, is a member of the Governance Board of the National Catholic Partnership on Disability and a collaborator on that statement. The term refers to the practice of physicians withholding or withdrawing life-support they consider non-beneficial. Although recognizing that most physicians act with compassion and competence, the Statement acknowledges the reality that physicians are not immune from resting the decision to withhold or withdraw life-support on their patient’s quality of life rather than on the quality of the treatment involved, in relationship to the benefits and burdens on the patient. This is especially true today given the emphasis on containing costs. Since such decisions would impact disabled people disproportionately, NCPD, with its mission to implement the Bishops' 1978 Pastoral Statement on the rights of people with disabilities, decided to provide an analysis of futile care in light of Catholic moral teaching. The statement was featured in the September 18 (Vol. 38, #15) issue of Origins. See www.ncpd.org
Oklahoma Pregnancy Ultrasound Law
10/21/2008

October 21, 2008. A new Oklahoma pregnancy ultrasound law, set to go into effect on November 1st, 2008, was challenged in court. The law provides, among other prolife measures, for the expectant woman to see an ultrasound image of her unborn before deciding to have an abortion. The law firm filing the suit, based in the state of New York, is claiming that “giving women more information before an abortion violates privacy rights, endangers womens health, and violates their dignity.” (http://www.lifenews.com/state3543.html) 
 
A pregnancy ultrasound is part of prenatal diagnosis. From a Catholic perspective, it is permissible as long as the results are not used to procure an abortion but rather to either seek to treat a detected anomaly, or to prepare the parents for the birth of a child with a possible handicap (cf. Donum vitae, 1987). More and more, pregnancy ultrasounds are becoming standard medical practice―and are considered non-invasive. Thus, it could be reasonably argued, consistent with basic informed consent procedures, that not allowing the expectant mother to visualize her unborn child is a denial of a patient’s right to have the medical information necessary for making the proper decisions about her pregnancy.
Letter to Sen. Arlen Specter Regarding Proposed Changes in the National Organ Transplant Act
10/9/2008

October 9, 2008. On October 8, 2008 NCBC President Dr. John Haas wrote to Sen. Arlen Specter of Pennsylvania discouraging changes in the National Organ Transplant Act which would allow for economic incentives for organ donation.

 

The text of the letter may be read here. Adobe Acrobat Reader is required.


Genetic Infidelity?
9/23/2008

September 23, 2008. A study in the Proceedings of the National Academy of Sciences (PNAS) has reported a possible association between the genetic variant of a single gene to pair-bonding behavior in heterosexual men with women  
 
It is well known that the hormone arginine vasopressin (AVP) plays a role in the monogamous behavior of some mammals (voles and other rodents). Now, the PNAS study tracks a variant (AVPR1A) of the vasopressin gene in 552 twin men regarding the quality of their marriage relationship (pair-bonding behavior). The study reports that men who were homozygous for the variant gene exhibit a double risk of marital crisis when compared to their heterozygous cohorts. However, one of the quantitative instruments used―Partner Bonding Scale (PBS)―is a test that has been standardized in non-human primate social organization, but it is here used for the first time in humans. Even so, the categories are broad enough to be inclusive of human behavior. For example, PBS measures partner-specific affiliative interaction (e.g., play initiation), physical proximity comfort level, and intimate reciprocity between two individuals (e.g., kissing). If validated, this study will be the first one to correlate relational fidelity between a man and a woman down to a single gene. 
 
From the ethical perspective, we maintain that the engagement of reason and will in the human are also essential elements of pair-bonding and marital fidelity. At most, then, one could conclude that some men ―carriers of the AVPR1A variant― might have a lesser propensity for marital fidelity (interpreted as pair-bonding in this study). Similarly, it is known that certain ethnic groups might have less tolerance for alcoholic beverages, which would not excuse inebriation. 
 
It is interesting to note that the authors themselves concede that this study concludes nothing at the individual level, but rather, “by demonstrating a modest but significant influence of this gene on the studied behavior on the group level, we have provided support for the assumption that previous studies at the influence of the gene coding for V1aR on pair-bonding in voles are probably of relevance also for humans.” (p. 14155) 
 
Also at the group or social level, a concern is that, in view of the increasing linkage between the human genome and propensity to an expanding number of physical and psychological predispositions, genetic diagnosis on the human embryo will continue to lead our society toward a eugenic mentality and practice.
NCBC Letter to HHS Supporting Conscience Protections for Health Care Workers
9/11/2008

September 11, 2008. On September 11, 2008 NCBC President Dr. John Haas wrote to Secretary Michael Leavitt of the U.S. Department of Health and Human Services in support of President George W. Bush's proposed conscience protections for health care workers.

The text of the letter may be read here. Adobe Acrobat Reader is required.

Reflections on Non-Heart-Beating Donation and Brain Death
9/9/2008

September 9. 2008. Recently, several articles were published in the New England Journal of Medicine which address the issue of organ donation. One article was particularly interesting written by Robert Truog and Franklin Miller titled “The Dead Donor Rule and Organ Transplantation,” (NEJM Vol. 359 (7) (2008): 674-675). The authors argue that the so called dead donor rule should be abandoned. The argument essentially is as follows: traditional determinations of death are inadequate in terms of providing good evidence for death. In the case of brain death criteria, some claim that there are patients who give evidence of system wide functioning even with a total absence of brain functioning. In the case of cardio-pulmonary criteria, death is declared if the patient suffers the “irreversible” loss of cardio-pulmonary functioning. However, the authors argue that in the case of non-heart-beating donation if the heart can be restarted in the recipient’s body, then the heart did not satisfy the ‘irreversible’ criterion. The only way around this problem, they assert, is to define ‘irreversible’ with reference to a decision not to attempt resuscitation on the donor. So on their interpretation of ‘irreversible’ a patient satisfies irreversible cessation of cardio-pulmonary functioning if the patient/surrogate elect to withhold CPR measures.  
 
The authors assert that for both the brain death and non-heart beating criteria, the ethical justification for them cannot be that the patients are really dead since, in their judgment, both fail to provide good evidence for death. “Brain dead” patients sometimes continue to give evidence of system wide functioning. Non-heart-beating donors often do not satisfy the ‘irreversible’ criterion understood in the sense that their hearts cannot be resuscitated. In many cases, they most certainly can be. The other way of interpreting ‘irreversible’ is with reference to a decision by the patient or surrogate. If the patient (or surrogate for the patient) has made a decision not to be resuscitated, then when cardio-pulmonary functioning ceases we should consider it irreversible. But this notion of irreversible does not capture our idea of death either because it is based on a decision of the patient and not on the condition of the patient. Therefore, in the authors’ judgments we already are killing patients to extract their organs. And if this practice is permissible, then why not expand the practice to include those who are in a persistent vegetative state or those who are terminally ill? What is ethically relevant according to Truog and Miller is not whether the donors are dead, but whether they or their surrogates consent or decide to donate their organs. If so, then patients dependent upon life support may - through a reliable surrogate or directly - elect to donate their organs even if such donation would in effect kill them. Summarizing this argument the authors state, “Whether death occurs as the result of ventilator withdrawal or organ procurement, the ethically relevant precondition is valid consent by the patient or surrogate” (p. 675).  
 
Truog and Miller offer some interesting reflections, and their argument raises important questions about how to interpret the term ‘irreversible’ in the context of determining death by cardio-pulmonary criteria. But their “solution” to the problem of how to interpret ‘irreversible’ is in the end, not a solution but a complete abandonment of the dead donor rule. Clearly, this way out of the problem is really to dissolve it. What generates the ethical problem is that a just society would not endorse a policy which allows the killing of patients for their organs. By eliminating the dead donor rule, Truog and Miller effectively undercut the reason for ethical concern in the first place. By so abandoning the dead donor rule Truog and Miller recommend that it is permissible to kill patients for their organs so long as the patients consent to it. Obviously, we should resist this conclusion but at the same time thank Truog and Miller for pointing out a difficult issue regarding non-heart-beating organ donation.  
 
How can this issue be resolved? It should be noted first that any determination of death should be based upon the condition of the patient, not on what is technologically possible, and not on a decision to withdraw life support. Neither way of articulating appropriate evidence for death will work since death is a state of the patient. Knowing whether someone is dead requires knowing something about the patient’s overall condition. Second, there is a distinction between what counts as good evidence for death, and what death means. The Catholic tradition considers death as the soul’s separation from the body and a person’s soul is not some separate ghost-like entity, but a principle of organization. John Paul II tells us that death occurs “when the spiritual principle [the soul] which ensures the unity of the individual can no longer exercise its functions in and upon the organism, whose elements, left to themselves, disintegrate.”(1) The soul enables the organism to be an organism. Good evidence for death will be evidence that this separation has taken place in a given patient and disintegration is key evidence.  
 
With these points in mind we can ask, is the irreversible cessation of cardio-pulmonary functioning good evidence that someone is dead? And, how should we interpret the term ‘irreversible’? The term ‘irreversible’ must refer in part to whether the patient’s cardio-pulmonary functioning is capable of auto-resuscitation. If a patient’s cardio-pulmonary functioning loses the capacity for auto-resuscitation, this is evidence that the soul is not exercising its integrative function in the patient. Thus, we have good evidence that death has occurred if the patient’s cardio-pulmonary functioning loses the capacity for auto-resuscitation.  
 
Does this mean that a person who suffers an arrest and who needs CPR satisfies the ‘irreversible’ criterion? Not necessarily. If the patient suffers an arrest due to a manageable infarction, for instance, then the heart itself remains capable of functioning and will function on its own once the infarction is bypassed. A better example may be an arrest due to drug use. We can expect that the heart functions fine without the drugs in the person’s system. Here, too, such a person would not satisfy the criterion of irreversibility even though the person may need CPR at the time of arrest. The heart retains the capacity to function on its own in some cases of an arrest, and in these cases does not satisfy the irreversible criterion. 
 
In other cases of arrest, the heart does not retain this capacity. In the case of a non-heart-beating organ donor (NHBD), the donor requires ventilator support and in some cases pressure support. Such donors have without exception, Do Not Resuscitate orders. If the ventilator is withdrawn the donor’s cardio-pulmonary functioning ceases and is not capable of functioning on its own – in that patient.(2) Once in the recipient, however, cardio-pulmonary functioning may return, but this is not evidence that the donor did not satisfy the “irreversible” criterion, rather it is evidence that the recipient’s soul (i.e., the organizing principle) is still exercising its integrative functioning. After all, the donor and recipient differ in important ways. When life support is withdrawn from the donor, cardio-pulmonary functioning ceases. When the heart or lung is transplanted into the recipient, cardio-pulmonary functioning returns and is maintained. The best way to explain this asymmetry is that the donor’s soul, as the organizing principle, had departed, and the recipient’s soul remained. This asymmetry is not a counter-example to defining the “irreversible cessation of cardio-pulmonary functioning” as the “incapacity to auto-resuscitate in patient X.” Again, any good evidence that death has occurred in a patient has to be tied to the condition of that patient not to the condition of some other patient, not to what is technologically possible, and not to some decision by surrogates regarding transplant options.  
 
Given what has been said, the irreversible cessation of cardio-pulmonary functioning (understood as above) is good evidence that death has occurred in a given patient. Of course, we recommend along with the Institute of Medicine that in order to be morally certain that the cardio-pulmonary functioning cannot auto-resuscitate one must wait five minutes. Some centers only wait two minutes, but this may not be consistent with moral prudence. In the case cited by Truog and Miller, the transplant team based in Denver CO. waited a mere seventy-five seconds. The donors and recipients were infants and no evidence exists that an infant heart cannot auto-resuscitate in such a short time interval. If anything, we should expect younger hearts to be capable of longer intervals wherein auto-resuscitation is possible. We applaud the bioethicists George Annas, and Robert Veatch for repudiating the actions of the Denver team.  
 
What about Truog and Miller’s comments on brain death? They claim that certain patients who satisfy whole brain death manifest evidence of system-wide functioning (e.g., wound healing, and immunological defense). If so, is brain death good evidence for death? The answer to this question is, “yes,” but to explain why requires making several distinctions. First, there is a distinction between the persistent functioning of a sub-system (e.g., endocrine functioning) of a human being and the persistence of the human being. A human being may be dead and a sub-system may persist. Dead bodies may continue to grow hair, and nails, and some bodies satisfying brain death criteria have certain larger sub-systems which continue to function, albeit under external support. Conversely, a sub-system may be “dead,” or severely impaired as in the cases of kidney failure or ventilator dependent persons who otherwise are fully functioning. Thus such persons are fully alive. Consequently, to argue against brain death as an adequate determination of death, one must argue that in the setting of brain death the human being, not just a sub-system, still exists. Second, there is a distinction between sub-systems functioning because of external life support in a non-integrated manner, and sub-systems functioning autonomously in an integrated manner with other sub-systems. Patients satisfying whole brain death need external life support of some sort, typically ventilator support. Therefore if the organism requires artificial life support due to permanent loss of the organism’s own ability to integrate and regulate vital functions, this is good evidence that the soul has departed that body. In admitting that the body needs external support is just to admit that the body has lost its own resources to maintain vital functioning. This should be taken to be evidence for death, not life.  
 
With these two distinctions in mind, I think it is clear that the persistent functioning of a sub-system requiring artificial life support does not indicate that a person is still alive. To see this clearly consider an example from James Dubois. Dubois has us consider a decapitated patient who arrives in the ER. Miraculously, the ER team succeeds in restoring cardio-pulmonary functioning with intensive life support. Is the decapitated patient a human being? Intuitively, we should say no. To say yes would reduce what it means to be a human being to a pitter-patter of disintegrated biological sub-systems.  
 
______________________________________________________ 
Notes: 
1. Pope John Paul II, “Discourse of Pope John Paul II,” in Determination of Brain Death and Its Relationship to Human Death, eds. R.J. White, H. Angstwurm, and I Carrasco de Paula (Vatican City: Pontificia Academia Scientarum, 1989), xxvi.  
 
2. In the analysis that follows, it is assumed that a non-heart-beating donor can donate the heart, but this is exceedingly rare for obvious reasons. The only cases we are aware of are cases of “uncontrolled” NHBD. Uncontrolled donation typically involves a patient who arrives in the emergency department and all efforts at resuscitation fail. Uncontrolled donors are typically young and are trauma victims. Though rare, their hearts are capable of functioning in a person who has not experienced the same traumatic injuries. See Institute of Medicine, Non-heart-Beating Organ Transplantation: Medical and Ethical Issues in Procurement (Washington D.C.: National Academies Press, 1997), 27ff.  
 
3. James DuBois, “Avoiding Common Pitfalls in the Determination of Death,” National Catholic Bioethics Quarterly 7(3) (2007): 557. DuBois is commenting on the example as articulated in Kenneth V. Iserson, Death to Dust: What Happens to Dead Bodies? 2nd ed. (Tucson, AZ.: Galen Press, 2001), 19. 
President's Emergency Plan for AIDS Relief
8/21/2008

August 21, 2008. The XVII International AIDS Conference took place 3-8 August 2008 in Mexico City. The previous conference was in Toronto in 2006, and the next one will be in Vienna in 2010. This year’s theme was: Universal Action Now
 
The first conference of this kind was held in 1985 in Atlanta, Georgia, USA, and was partly sponsored by the US Centers for Disease Control and Prevention (CDC), which had first recognized and reported the syndrome in 1981. 
 
This is the second largest conference in over 30 years, with attendance of an estimated 24,000 participants from around the world, representing about 195 nations. Surprisingly, this year it got relatively little media coverage. 
 
Among the main events were: 17 plenary sessions focusing on the latest science, policy and practices; a Global Village networking effort; a Youth Program; a Cultural Program, and dozens of workshops on leadership, advocacy, policy formation and regional successes and failures. 
 
This biannual conference is sponsored and supported by the: World Health Organization (WHO), Joint United Nations Programme on HIV/AIDS (UNAIDS), International AIDS Society (IAS), Global Network of People Living with HIV/AIDS (GNP+), Ford Foundation, Bill and Melinda Gates Foundation, Kaiser Family Foundation, major pharmaceutical and allied public health companies, among many others. 
 
Recently, the UNAIDS 2008 Report on the Global AIDS Epidemic was released, where it is stated that: 
  • In 2007 (latest figures), there were about 33 million people worldwide living with HIV/AIDS;
  • An average 2.7 million new cases appear each year;
  • About 2 million people die yearly from complications of HIV/AIDS;
  • 5 new people become infected for every 2 who begin anti-retroviral therapy (ART)
Two highlighted reports of the Mexico City conference were: 
  • The increasing effectiveness of anti-retroviral therapy. 
  • The benefits of male circumcision and basic hygiene in slowing down transmission rates.
To help achieve universal access to prevention, care and treatment by 2010, three main goals were promoted:
  • The need to eradicate the stigma associated with the disease;
  • The need to support basic human rights, including gender equality;
  • The need to dispel the myth that funding for AIDS detracts from public funding of other vital healthcare needs. ;
Notably absent was any plenary session on vaccines, unlike in previous HIV/AIDS conferences
 
Dr. Julio Montaner, incoming president of the AIS, said in his closing speech: “The key word emerging from this conference is combination:
  • Combination prevention strategies tailored to decrease HIV transmission.
  • Combination antiretroviral therapy to dramatically reduce morbidity and mortality among those infected.
  • Combination antiretroviral therapy to reduce community viral load as an aid to HIV prevention.
  • Combination strategies to enhance HIV testing.
  • Combination strategies to reduce poverty, and discrimination.”
Dr. Pedro Cahn, conference co-chair and outgoing IAS president, said in his closing speech: “Again, it’s time to call on all UN Member States to actively include the most at risk population – men who have sex with men, injecting drug users, sex workers, youth, women and children- in the HIV/AIDS response.” 
 
In 2003, President George W. Bush launched the President's Emergency Plan for AIDS Relief (PEPFAR) to combat global HIV/AIDS - the largest commitment by any nation to combat a single disease in human history. On July 30, 2008, the President re-authorized PEPFAR, thus releasing up to $48 billion to combat global HIV/AIDS, tuberculosis, and malaria. The NCBC joined others, who support public policies respectful of all vulnerable human beings, in preventing the inclusion of family planning and abortion funding through amendments to PEPFAR. This much needed humanitarian aid advanced without such anti-life provisions.  
 
 
The NCBC applauds Congress for re-drafting PEPFAR in terms that respect the dignity of all human beings, and the President for signing it into law. The NCBC also encourages the participants of the XVII International AIDS Conference to persevere in working collaboratively world-wide with all sectors of society, including faith-based groups, that can make a positive contribution toward stemming ―and eventually eradicating― the HIV/AIDS pandemic. 
 
In line with the USCCB policy on HIV/AIDS: “Called to Compassion and Responsibility: A Response to the HIV/AIDS Crisis”, the NCBC highly encourages all peoples threatened by HIV/AIDS to seriously consider the only combination which is 100% effective in preventing the transmission of HIV: sexual abstinence before marriage and mutual fidelity within marriage, and the avoidance of illicit intravenous drugs. For married couples, one of whom is already infected (discordant), the Vatican is currently studying their predicament and no official pronouncement has yet been made. It is the tentative opinion of the NCBC that discordant couples should abstain from sexual intercourse until the Holy See provides further light on this complex and delicate issue, one that is also life-threatening.
30 Years of IVF: Advanced Technology or Capricious Ethics?
7/30/2008
Stephen Napier, Ph.D.
NCBC Ethicist


July 30, 2008. It has been 30 years since the first “test-tube” baby appeared on the scene. Louise Joy Brown was born on July 25th, 1978. Since then, the technology has not advanced much. The same basic procedure is being used today as in 1978 - namely, the mixing of male and female sex cells in a glass dish leading to the engendering of embryos - but the uses and ends to which IVF is employed have certainly grown in number. It is much more common today for couples to pick and choose which embryos to implant, with such a decision based on the traits, gender, or potential for disease the embryo may have. The embryos that are not chosen are either frozen for future implantation or experimentation or they are destroyed. It is more common now for single women who sense that their “clock is ticking” to seek IVF, or for a lesbian couple to choose to have a child through IVF. If one thinks that embryos are nothing but a cluster of cells and not full fledged human beings, then none of these activities would seem objectionable. But then, testing this or that embryo for his/her sex or for certain traits would not make sense unless the embryo were a human being who is either male or female and has certain genetically disposed traits. Mere clusters of cells are not male or female, and they certainly don’t possess traits; human beings do. I say this to clear away certain absurdities in ethically analyzing IVF.  
 
Some other clarifications should be made as well. Though infertility is certainly a cross many couples bear, it is important to distinguish between solving infertility by whatever means, and solving infertility by ethical means. It is also important to be clear that having a child is not a right: it is rather a gift. Being clear about these distinctions will go some distance in adjudicating the moral permissibility of IVF.  
 
The Church’s teaching on IVF comes from her long standing teaching about the nature of the marital act and the inherent dignity of new human life. Consequently, the Church cannot change its teaching, unless the nature of the marital act changes, or new human life does not posses inherent worth. This is to say, the Church’s teaching is not based on a whimsical prudishness, or on “hang-ups” about sex, but rather on the proper order of sexual relations and how an act of procreation ought to respect the dignity of new human life. The Church is merely peering into reality and reading off of it the proper moral order of certain actions. Those who object to the Church’s teaching must say in response that they have peered into the dense forest of reality and have discerned a different order, or no order at all. But such a claim is audacious at worst, and intellectual hubris at best. The Church avoids such hubris because she claims to be the final interpreter of the moral order under the direction and light of the very Creator Himself. These comments are sufficient to rebut the unsupported claim by Art Caplan who in a recent commentary on IVF said, “Even the Catholic Church, which has never approved the break between sex and procreation, has taken a relatively benign view of the use of IVF by married couples.” (Art Caplan “New IVF Dilemmas Make Old Fears Seem Quaint.” MSNBC July 24th, 2008.) The Church has firmly rejected, and continues to reject, all recourse to IVF, whether by married couples or not. Caplan is simply uninformed.  
 
But what is the Church’s objection to IVF? Caplan comes close to understanding the Church’s teaching when he says, “Some maintained that creating children this way was simply unnatural and would stigmatize the child. Others bemoaned the creation of life without sexual intercourse, fearing that in vitro fertilization would degrade human dignity as people became the object of mechanistic creation in glass dishes.” Neither of these reasons truly captures the Church’s position in total – though in fairness Caplan does not say he is recapitulating the Church’s teaching. The Church teaches that the dignity of new human life requires bringing that life about through an act of love, not through an act of manipulation. The marital act is by its very nature an act of self-giving and charity. The procedures associated with IVF are not. For IVF, embryos are typically destroyed because they are not fit enough or because they do not bear the traits desired by the couple. Even if care is taken to implant all that are conceived, the procreative process is still not an act of love shared between spouses. The dignity of the child and the dignity of the act bringing about the child (in IVF) do not comport with one another. The idea behind the Church’s teaching is fairly simple. There is an order and fittingness to the procreation of new human lives, and this order requires the procreative event to be an act of charity between spouses. Those who think that the Church objects to IVF because it is “unnatural,” as if the Church were saying that sexual intercourse per se is the only proper means by which to procreate, miss the point. Not just any act of sexual intercourse is proper to procreation, for example, fornication and adultery certainly are not. What is proper to procreation is an act of charity realized only in the conjugal act.  
 
The 30th anniversary of IVF should be viewed in light of another important anniversary, namely the 40th anniversary of Humanae Vitae. The Church’s teaching on IVF is a mere extension of her teaching about the integrity of the marital act and how preserving such integrity comports with charity. In fact the two teachings can be viewed as following from one and the same teaching. As my colleague Fr. Alfred Cioffi has noted, contraception is an attempt to experience unity without procreation and IVF is an attempt to experience procreation without the unity. Insofar as the Church prohibits such disintegration, the teaching should not then be viewed as a restriction but rather as an invitation to experience the fullness of the goods available to a couple through the sacrament of marriage. The Church’s teachings are not only consistent but fulfilling. 
 

Federal De-Funding of Planned Parenthood
7/25/2008

July 25, 2008. On Wednesday, July 9, several members of the U.S. House of Representatives issued a call to de-fund Planned Parenthood (http://www.lifenews.com/nat4037.html). 
 
Planned Parenthood (PP) is the single largest abortion provider in the United States; by their own standard, they do about twenty percent of all U.S. abortions. Its affiliate branch, International Planned Parenthood Federation (IPPF) is the largest abortion provider in the world. Last year, PP reported over 1 billion dollars in revenue (see URL above), with about one-third of that money (about $337 million) coming from U.S. grants and contracts. PP has turned the abortion business into an immensely profitable industry, even placing abortion centers near grocery stores and shopping malls in order to process the large number of pregnant women on their way to or from their daily activities. 
 
Representative Chris Smith and a dozen other U.S. House Members are calling on the U.S. government to get out of the abortion business by seeking to stop all public moneys to Planned Parenthood.
NCBC Publications Win 7 Awards from the Catholic Press Association
6/12/2008

June 12, 2008. The National Catholic Bioethics Center is pleased to announce numerous awards from the Catholic Press Association for its two serial publications, Ethics & Medics and The National Catholic Bioethics Quarterly. 

The prestigious first prize for general excellence in a scholarly journal was awarded to The National Catholic Bioethics Quarterly, another of several top awards that have been won by this publication over the years.  
 
Also awarded were six additional prizes for authors published in both the Quarterly and Ethics & Medics and for the book review section of the Quarterly. 
 
The awards and reviewer comments are listed below. Congratulations to all of our authors. 
 
For subscriptions to NCBC publications visit our website. 
 
 

Best Essay 
Scholarly

First Place 
National Catholic Bioethics Quarterly, Philadelphia, 
Pa., “On Marriage and Metaphysics” by Robert E. Rodes, Jr. 
The author uses a variety of interesting techniques to frame the discussion of same-sex marriage, from the references to Cole Porter to key legislative developments. The article is well researched and discusses a timely issue. 
 
Second Place 
National Catholic Bioethics Quarterly, Philadelphia, 
Pa., “The Duty to Care: When Health Care Workers Face Personal Risk” by Marie T. Hilliard, R.N. 
"This well-researched article will help health care workers to understand their obligations to care when they face personal risk, such as when caring for patients with SARS. The author incorporates both legal and ethical issues in this thorough discussion." 
 

Best Essay 
Special Interest Newsletters

First Place
 
Ethics and Medics, Philadelphia, Pa., “The Pill and Breast Cancer Risk” by Timothy P. Collins, M.D. 
"Dr. Collins lays out the case that birth control pills are bad, not only because they violate the teachings of the Church, but they also pose serious health risks. He states his intention clearly in the opening paragraph, then lays out a convincing case for his thesis. He sums up his argument, showing that the Church and science agree on this subject. This essay stands out in that it is well organized, written clearly, it stays focused, and it effectively proves its point." 
 
Second Place 
Ethics and Medics, Philadelphia, Pa., “Spiritual Care in Hospital Policies” by Rev. Christopher M. Saliga, O.P., 
R.N. & Rev. Carlos Quijano, O.P. 
"Rev. Saliga and Rev. Quijano’s essay comes in a very close second. It offers an incontrovertible argument for medical professionals and clergy working together to provide for patients’ spiritual as well as medical needs in the hospital environment. The writing is persuasive and the content is backed up with real life examples and suggests actions to address this issue." 
 

Best Book Review Section

 Third Place
 
National Catholic Bioethics Quarterly, Philadelphia, 
Pa., “Book Reviews” 
"These were exceptionally well-crafted reviews, though sometimes a tad dry. On the whole, however, 
they provide the reader with a broad understanding of the subject matter, its context and importance, and the book’s/author’s success (or lack thereof) in adding to that understanding." 
 

Best Feature Article 
Scholarly

 Second Place
 
National Catholic Bioethics Quarterly, Philadelphia, 
Pa., “Avoiding Common Pitfalls in the Determination of Death” by James DuBois 
"This story took a very interesting view of organ donation as it relates to death of an individual. It’s 
a difficult question to answer, yet the writer did an outstanding job of supporting the notion of the irreversibility of death before consenting to donation. The author did not have an agenda. The writer shared 
the facts, providing the words of those who are involved in the project. There was also no editorializing." 
 

General Excellence 
Scholarly Journal

 First Place
 
National Catholic Bioethics Quarterly, Philadelphia, Pa. 
"This magazine serves as an excellent example of academic discussion. Contributors keep the journal lively 
by debating each other’s points in passionate letters to the editor from issue to issue. For readers interested in bioethics, this magazine provides an excellent resource. Washington Insider keeps readers up to date. Articles do an excellent job at analyzing current affairs and challenging their readers."
The Medicated Child
4/29/2008

April 29, 2008. Several weeks ago PBS broadcasted a Frontline report titled “The Medicated Child.” In its own words, the report’s brief says, “Six million American children are taking psychiatric drugs, but most have never been tested on children. Is this good medicine -- or an uncontrolled experiment?”  
 
The report is interesting from an ethical perspective for at least two reasons. First, it highlights the fact that many drugs, especially psychiatric drugs, are being used on children without having been tested on children. The report points out a fairly large lacuna in research regulations, namely, if a scientist wants to study the effects of a drug across a population, the scientist is obliged to follow the regulations governing research on human subjects – regulations which are quite comprehensive and ethically sound. If the scientist does not desire to do a formal study, but instead prescribes drugs based on ‘gut feelings’ or anecdotal evidence, then the drugs he or she prescribes need not be tested (even in the case of children). So long as research is not the intention of the scientist/physician, he or she is free to prescribe medications for off-label use. (Off-label use of a drug is prescribing it for a condition for which it has not been tested, or for a population for which it has not been tested.) From an academic perspective, the Frontline report gives good material for thinking about the current regulations governing research, and to consider ways to protect not only research subjects, but vulnerable populations from untested and potentially harmful “therapies.”  
 
A second reason why the report is interesting is that it provides parents with crucial information regarding the proper upbringing of their children. The report has the viewer seriously consider whether medication is the best option to address behavioral or emotional disorders. Additionally, the report cautions against making such diagnoses in the first place, since it is well known that at certain developmental periods the spectrum of “normal” behavior is quite broad. Granted, there are children who evince disruptive behavior and mood swings, but the problem may be more appropriately addressed through different parenting techniques, or cognitive-behavioral therapy. The report alludes to the potentially serious side effects many medications may have on developing brains. This is important information for parents to consider. For more information see the “Parents Guide” located on the link referenced above. 
The Groningen Protocol
3/27/2008

March 27, 2008. Recently, the academic journal The Hastings Center Report published an essay defending the practice of infant euthanasia. The article is titled “Ending the Life of a Newborn: The Groningen Protocol”, (H. Lindemann and M. Verkerk, Jan-Feb [2008]: 42-51). Developed in the Netherlands and named after the hospital at which it was originally developed, the protocol outlines five criteria that must be satisfied before an infant may be euthanized. They are (1) the diagnosis and prognosis must be certain; (2) there must be “hopeless and unbearable suffering”; (3) the presence of hopeless and unbearable suffering must be confirmed by a second physician; (4) both parents must give informed consent; and (5) the procedure by which the infant is killed must be performed “in accordance with the accepted medical standard.”  
 
The authors of the article make some startling claims. First, they say that the protocol does not apply to infants who are at risk of dying, but rather applies to infants who “are in no danger of dying” (46). The reasons for killing them would be because the two physicians think the infant’s life will not be worth living. To give context to the second startling claim, an earlier description of the protocol in the New England Journal of Medicine (NEJM) pointed out that numerous infants with only the diagnosis of spina bifida were euthanized. The interpretation of criterion (2) was so broad as to include infants who may likely grow into adulthood and live fulfilling lives. The authors of the present article say without argument that the protocol does not apply to any infant with a fair prospect for a good quality life. They do not address directly the charge that the protocol has been used on infants who had disabilities that were no more serious than spina bifida, and the present article cites no evidence to the contrary. Third, the authors say that satisfaction of criterion (2) is met even if the infant is not at present experiencing unbearable suffering. The authors assert that the assessment of the infant’s future state of health is sufficient to satisfy (2). The reason seems to be that when two physicians can foresee that an infant will be permanently disabled, or unable to communicate, or suffers some similar disability (that does not cause physical pain), then (2) is satisfied (p.48). Properly understood, this is not a reason but rather an appeal to the reader’s moral conscience. The reader is expected to ‘see’ that criterion (2) is legitimate.  
 
Criticisms of the Groningen protocol have focused on numerous contentious aspects. The most common criticism has to do with the opacity of the term “unbearable suffering.” The authors of the present article suggest that suffering involves either a disability (e.g., mental disability), or physical pain. If condition (2) is satisfied by the mere presence of a disability, then the physicians are involved in an outside assessment of the worth of someone else’s (the infant’s) life. If condition (2) is satisfied by the presence of pain, then, granted, the physicians can see that the infant is in pain. But there still is an outside assessment of the worth of the infant’s life, namely, an infant who experiences this much pain has a life not worth living. In either case, the physician who follows the protocol ends up killing an infant, reasoning as follows: “I don’t think that that infant’s life is worth living.” No one would think that this is a reason to kill someone, and yet it is the only reason that could be given in support of infanticide. Likewise, no one ought to think that the worth of a human’s life is determined by how another person views that life. Each human life is inviolable. Once the prohibition against the direct taking of innocent human is breached there can be no reasoned defense against the taking of any life by those who have the power over it. The article merely appeals to the emotions of not wanting to see a child suffer to make make its case rather than trying philosophically to defend what, ultimately, is indefensible.
The UK Human Fertilisation and Embryology Bill of 2008
3/17/2008

March 17, 2008. Since the beginning of this year, the Parliament of the United Kingdom (UK) has been involved in an intense debate over their Human Fertilisation and Embryology Bill. The bill aims to relax current government regulations that specify what is legal and what is not regarding artificial human procreation and human embryo research. 
 
If passed, the bill would allow for the creation of artificial sperm (and eggs), and for experimentation with human-animal hybrids Also, it would remove the current provision that requires a child conceived through IVF to have a father. Under the new bill, a single woman could self-fertilize using “sperm” manufactured from her own (bone marrow) stem cells. Biologically, this is different from cloning (asexual reproduction) in that self-fertilization is a type of sexual reproduction. Ethically, however, a similar grave objection (as to human cloning) exists in that the resulting human zygote was not conceived through the marital act, and because it denies the child a father. 
 
At its root, the fundamental divide comes when one sees human procreation either as a utilitarian process of manufacturing the baby that I want here and now, or as the deepest of human mysteries through which God collaborates with a married heterosexual couple in the miracle of creating a new human life. 
 
It is not hard to see that, if human infertility is approached as a practical problem to be solved solely by technology, then no amount of technology will suffice in the most difficult cases, resulting in utter frustration. In contrast to such a utilitarian approach, respect for the dignity of human life requires that each person be treated as a subject and not as an object. It is only logical to include the desired child into the equation of dignified human life. 
 
Increasingly, the bulk of these legislative efforts seem to focus more on not interfering with the supply-and-demand processes of a free market economy rather than on the fact that what is at stake here is the engendering a new human being in the lab. We need to take into consideration the good of the child. What will the child have to say as she grows up and gradually finds out that she was intentionally conceived without a father? 
 
And finally, it should be pointed out that the sperm is not “artificial” as though it were made from synthetic material. Rather, it is the result of the manipulation of existing biological material.
"Creating" Life in the Lab
2/5/2008

February 5, 2008. Recently, there have been two controversial news reports involving the beginning of life. First, the United Kingdom’s Human Fertilisation and Embryology Authority (HFEA) officially approved the creation of human-animal hybrids for research purposes. Second, Dr. Craig Venter and associates, here in the United States, announced the completion of crucial steps in the construction of “synthetic life.” 
 
British Hybrids
 
HFEA is the government agency in England in charge of regulating human fertilization and embryology research and the disbursement of public funds for this research. HFEA has recently approved the manufacture of “cybrids” (cytoplasmic hybrids). In this process, scientists replace the nucleus of a non-human mammalian egg with a nucleus from a human somatic cell such as a skin cell. This type of cloning seeks to circumvent the problem of obtaining human eggs for research which is controversial in part because of its exploitation of women. Animal eggs (cow, rabbit, sheep, goat) are typically discarded by the food industry and so are in abundant supply. The aim is to manufacture embryos for the harvesting of human embryonic stem cells.  
 
Some claim that these cybrids are not human embryos, but that is obviously false because only human embryos can give rise to human embryonic stem cells. Since a human somatic cell nucleus contains the entire human genome---and since all mammalian (placental) embryonic development is rather similar during the first couple of weeks―we have every reason to expect that, in creating a cybrid, one is indeed engendering a human being.  
 
Scientists who pursue this research state that the cybrid embryo will not be allowed to live beyond the very early stages of development and will certainly not be implanted in a (mammalian) womb. But this only means that living human beings, immorally manufactured in laboratories, will not be given the home that is natural to their proper development and survival. As tempting as it is to experiment on defenseless human embryos, a civilized society should rather seek to protect them from harm. We should not allow any blurring of the fundamental distinctions between human and non-human life for the sake of advancing research. 
 
Synthetic Life
 
Regarding the claim of Dr. Venter and associates to have created synthetic life, we note that there has been considerable confusion on this matter in the media. Venter has not created life, but has used existing life in an effort to produce a new synthetic organism. Several segments of DNA were spliced together according to the specifications of a pre-determined information sequence. The final DNA string was about half a million base-pairs long, which is indeed a considerable amount of genetic information. Venter plans to introduce this into a living bacterium in the hope that the bacterium’s own chemical machinery would translate the inserted information into functional proteins.  
 
Certainly, this would be a new and highly important step in genetic engineering, but it is not the creation of life out of non-living matter. Those who claimed that Venter was on the verge of such a feat simply did not understand what was involved. Specifically, they overlooked the fact that the existing life of a bacterium would power the new synthetic organism. We know that many scientists have conducted experiments which duplicate the primitive conditions necessary for the appearance of organic life on Earth, but no scientist has ever produced life out of non-living matter. Whether that is even possible remains an open question.  
 
As to the usefulness of Venters’ enterprise, yes, it may certainly have many useful applications for biofuels, biodegradants, and bioimmunities, but it may also have dangerous uses in bioterrorism and ecological disaster. Therefore, these experiments should be subjected to rigorous government scrutiny and public debate.
Research Subjects and Informed Consent
1/25/2008
Stephen Napier, Ph.D.
NCBC Ethicist


January 25, 2008. A very interesting book has been published on clinical research titled, What the Doctor Didn’t Say: The Hidden Truth About Medical Research, by Jerry Menikoff and Edward P. Richards. The authors offer a very clear, informative, and engaging discussion on the challenges of conducting clinical research. They offer some very important points that anyone thinking about research participation needs to know. I include three here.  
 
First, some research involves drugs that are already on the market but are being researched for alternative uses. Sometimes, potential participants do not know this. This is important since most clinical research trials have a placebo group – a group that does not know that it is receiving a substitute rather than the drug being researched. If the drug is available outside of the research and it may likely benefit the research subject, then one should have knowledge of this in order to make an informed decision. To the extent researchers gloss over that information, the participants may not be able to provide truly informed consent.  
 
Second, many consent forms will tell the potential participant that the study drug “may benefit you." In many cases, the statistical probability of the drug providing an actual benefit is very low - sometimes a mere 1%. When potential participants see this phrase in a consent form, they should ask what it really means statistically.  
 
Third, it is important to know the alternatives to research participation. Informed consent documents are required to provide information on the alternatives to being in the study. Often, however, the only stated alternative is as follows: “The alternative to not being in this study is to not be in this study.” I have actually seen such a statement in research protocols. Some others do better by telling the subject to discuss with a doctor some appropriate alternatives. If potential research subjects do not know their alternatives, then they should certainly discuss them with a doctor.  
 
There are other lessons to be learned from this text, but the most important is this: The authors point out that the attitude that informs these subtly deceptive practices is driven by a concern to have enough research subjects. Researchers are tempted to think that full disclosure will dissuade potential subjects from participating in their studies. The research community is certainly doing something to curtail this attitude, but responsibility falls to potential subjects as well. Potential subjects should actively read informed consent documents and discuss therapeutic options with a doctor not associated with the research staff.  
 
The NCBC encourages involvement in research in that it comports with the virtue of charity. Violations against one’s bodily integrity, however, should be resisted and that responsibility is the responsibility of the potential subject as well as the researcher.
The Revised Uniform Anatomical Gift Act (2006)
1/15/2008

January 15, 2008. The National Conference of Commissioners on Uniform State Laws approved in July 2006 and revised in 2007 The Revised Uniform Anatomical Gift Act (UAGA). The purpose of the UAGA is, in part, to address the critical organ shortage for transplantation by providing additional ways for making organ, eye, and tissue donations. Since the original UAGA was promulgated in 1968, and updated in 1987 with only 26 states adopting that version, the diversity of laws is seen as an impediment to transplantation. Thus, there has been a state-by-state effort to encourage the adoption of this most recent revision of the UAGA. At the same time, there is a need to educate the public to the provisions contained in the UAGA to ensure the protection of donors, especially the most vulnerable, while also encouraging this act of charity.  
 
A section by section analysis of the UAGA will follow, however, the overall concerns relate to: the authority for anatomical donations of the person who has “jurisdiction” over the body and has the authority to dispose of the body or anatomical parts and tissue, such as a coroner or medical examiner (perhaps equating to “presumed consent” of the homeless); the difficulty which exists for removing one’s name from a donor registry (See Section, 5 (c) and (d), Page 20, and bullets, attached, pertaining to Sections 5, 7, and 8 ); the abil